🤩 Hello, #RemissionBiome.
📣We are thrilled to announce that we just got a $250k grant from @VitalikButerin's Kanro Foundation AND a private donation of $45k!
@tessfalor @chydorina @IsabelRamirezRD
RemissionBiome MECFS/LongCovid Patient-Led Science
9,210 posts
RemissionBiome MECFS/LongCovid Patient-Led Science
@remissionbiome
Project run by @renegaderes, a non-profit 501c3 focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org💙 Donate now ▶️ tinyurl.com/44azdsxm
Joined December 2022
- BIG NEWS! Balvi (@vitalikButerin) is giving us a grant for our @RemissionBiome pilot study! Along with our GoFundMe, private donations, & sponsors we have full funding. This is huge. We will be able to sample before, during, & after remission with all of the tests that we wanted.
- We have too many new followers recently and it's making us soo happy. Welcome to #RemissionBiome everyone 👋 #RemissionBiome is a #PatientLed #MECFS & #LongCovid #SelfExperiment protocol founded by PhD Scientists/Patients @chydorina & @tessfalor. We are a big/caring familyApply to be part of the community-science self-experiment project, @remissionbiome! Let's show potential donors how much support and interested there is in the #MECFS #LongCOVID community. We'll review applications on a rolling basis.
- We were keeping a secret - we had another person, @IsabelRamirezRD, doing the experiment with us (but on a shoe string protocol). It turns out she is fully in a Level 1 remission as of Day 5. We are obviously all so excited that keeping her a secret any longer just isn't an
- 1 day until we attempt to kick our systems into a new, higher baseline, state! @chydorina @ales_frost Tomorrow we start: Amoxiclav Doxycycline DeltaG exogenous ketone esters D-lactate free custom Probiotics L. reuteri Akkermansia
- .@remissionbiome is in @ScienceNews! sciencenews.org/article/patien… "Patient-led research “moves orders of magnitude faster than traditional modes of research,” @PutrinoLab says, because it focuses on the questions that are of greatest concern to patients, leading more quickly to
- We're excited to announce that Peter Rowe, MD will be presenting to the @remissionbiome @renegaderes community on Feb 9 & 16! What’s new in ME/CFS, OI/POTS, CCI, MCAS, and more Sign up now! us06web.zoom.us/meeting/regist… #MECFS #LongCOVID #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS
- The next phase of @RemissionBiome will include 50 people completing the protocol as a self-experiment, supervised by their healthcare providers. Apply to become one of those 50! All questions visible at once: forms.gle/D4ezdAmnwoebQd… Split by sections: forms.gle/Kcv9R22Nsmw2vB…
- Tamara @chydorina + Tess @ales_frost are scientists + patients who improved from severe #MECFS after taking antibiotics Our aim w/ @remissionbiome is to look at how modifying the microbiome can shift the baseline in #MECFS Please consider donating:
- Prof. Dr. Karl Morten : Mitochondrial Dysfunction-Relevance for CFS and Long Covid H/T @Michaeltikus
- Tamara @chydorina & Tess @ales_frost are scientist-patients who improved from severe #MECFS after taking antibiotics Our aim w/ remissionbiome.org is to see if modifying the microbiome or other effects of antibiotics can shift the baseline in ME/CFS gofund.me/2a6e35b8
- Some news from RemissionBiome: The project is at an inflection point. Some members of the community had a desire to go a different direction and we wish them well wherever new ventures take them. We will share more details when we can. We at RemissionBiome remain committed to
- 50 people (the #Renegade50) will start the #RemissionBiome self-experiment, supervised by healthcare providers, soon. More than half of the 50 need financial support for the base protocol, which costs $3k including safety testing. If we add on additional interventions that we
- How can the antibiotic AmoxiClav completely turn off sickness symptoms, like a switch flipping? @KatBoniface explains why Clav (Clavulanic acid) might be 📷 (This is directly related to the new paper that came out about glutamate & #LongCOVID! sciencedirect.com/science/articl…)
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