Katrin Boniface (@KatBoniface) / X

Katrin Boniface

21.9K posts

Katrin Boniface

@KatBoniface

Historian. Equestrian. Cheese-lover. ko-fi.com/kboniface Also sometimes at: @Equine_History Previously: @SHOT_ECIG @HNet_Sport @Wheats2018 @RsideLatinoPH

Riverside, CA

katboniface.equinehistory.org

Joined August 2015

Pinned
Katrin Boniface
@KatBoniface
Sep 4, 2024
Starting to see new trends. Current treatment based on the order in which clavulanate affects glutamate transporters & metabolism (and my great-grandmother’s recipes, credit where due). Guess when I started? @RenegadeRes @remissionbiome #TheGlutamateBoss
10K
Katrin Boniface
@KatBoniface
Mar 2, 2024
I still have about a 10% hospitalization rate among my students each quarter- at least, those are the ones that insist on sending me records. For each class I teach, 1 or 2 are unlikely to finish because that hospitalization stretches on and they can’t recover. Every quarter.
19K
Katrin Boniface
@KatBoniface
Jul 2, 2022
One of my earliest memories is a food bank employee running out to catch us and hand me a bag of skittles. I was maybe 3 or 4? It felt like the most amazing treasure, and that she handed it directly to me made the wide world less scary.
Katrin Boniface
@KatBoniface
Sep 6, 2024
At the end of this talk today for #MECFS24, I finally stated publicly: it’s been three months and I do now consider this to be remission.
Katrin Boniface
@KatBoniface
Sep 5, 2024
26K
Katrin Boniface
@KatBoniface
May 3, 2024
“U.S. labor law allow workers to violate no-strike provisions in order to protest “abnormally dangerous” working conditions … (see Section 502 of the National Labor Relations Act and the U.S. Supreme Court’s Arlan’s Department Store decision)” labornotes.org/2023/02/no-str…
Michael Sainato
@msainat1
May 2, 2024
UC says in response to the strike vote; "The University of California is deeply alarmed, concerned and disappointed that our UAW-represented academic employees would choose this moment of crisis to take a vote to engage in an unlawful work stoppage"
20K
Katrin Boniface
@KatBoniface
Sep 5, 2024
Janet Dafoe
@JanetDafoe
Sep 5, 2024
#mecfs24 Kat Boniface, Renegade Research. Work on glutamate.
66K
Katrin Boniface
@KatBoniface
Jun 19, 2023
Ahhh! How can I sleep after this fell into place? From my own @remissionbiome experience and comparing notes with others, I had two suspicions: 1. That a metabolite or downstream effect of clavulanic acid was key the the on/off switch of cell sickness behavior.
Katrin Boniface
@KatBoniface
Jun 19, 2023
Replying to @chydorina @tessfalor and 3 others
BAM! Clavulanic Acid affects DMN directly on its own (w/o mox). Not a whole lot of research on it, but seems to be a very likely candidate mechanism! “CLAV altered the connectivity of ACC with default mode network” archive.ismrm.org/2021/3161.html
58K
Katrin Boniface
@KatBoniface
Jun 7, 2024
My primary trigger for ME was a TBI. My symptoms are nearly indistinguishable from LC. It was timing of effects that led me to clavulanate as a mechanism for @RemissionBiome, but it was seeing the same altered glutamate metabolism in ME, LC, GWI, and (critically) TBIs that 🤯
Amy Cook
@AmyCookOC
Jun 7, 2024
“When they applied standard concussion tests to Long Covid patients, the University of Denver researchers noticed the same tell-tale issues…patients had effectively experienced a traumatic injury to the brain.” bbc.com/future/article…
7.6K
Katrin Boniface
@KatBoniface
Jan 1, 2019
Replying to @KatBoniface
One of my new fave books, the infamous History and Social Influence of the Potato
The Museum of English Rural Life
@TheMERL
Oct 27, 2018
Today on @FarmersOfTheUK we’re sharing favourite finds from our library. Here’s a couple to whet your appetite...
Katrin Boniface
@KatBoniface
Nov 22, 2024
Rooting for Rutin? There's a lot going on, and it seems like there have been breakthroughs every day- thanks to many fabulous @RenegadeRes self-experimenters! There was a fantastic discussion on Rutin's myriad effects back in June, and I'd like to offer a few updates.
14K
Katrin Boniface
@KatBoniface
Jul 8, 2020
Replying to @JohannaMellis
Second person plural, inclusive and gender neutral. Words mean things and they're beautiful, y'all!
Katrin Boniface
@KatBoniface
Jul 24, 2024
Replying to @bhanlon15
“Participants were adults aged 18 to 64 years with acute symptoms suggestive of SARS-CoV-2 infection who received a FDA–approved SARS-CoV-2 test at the time of illness and did not die… by 3 months” This isn’t a study of ME rates. It’s a study of covid test accuracy.
1.8K
Katrin Boniface
@KatBoniface
Apr 1, 2023
Four participants, four remissions. Even if it’s not permanent, this is incredibly exciting. The depth and breadth of data being collected will also have usefulness beyond #MECFS/#LongCovid
RemissionBiome MECFS/LongCovid Patient-Led Science
@remissionbiome
Mar 28, 2023
@remissionbiome is a citizen science #MECFS self-experiment being done by @ales_frost @chydorina @IsabelRamirezRD, which has grown exponentially due to community support. Thanks to all of you for your support! gofundme.com/f/Remissionbio…
4.6K
Katrin Boniface
@KatBoniface
Jun 1, 2024
My wife came with me to an appointment last year. She was appalled by how I was treated. I was surprised by her reaction- it was the best appointment I’d ever had with a specialist! #GeeatestMEdicalScandal #JohnVsJonVsME
Lou Thornley
@Lou_vs_ME
May 31, 2024
"They came to a doctor with Chronic Fatigue Syndrome; they left with PTSD" - Nancy Klimas, 2009 #MECFS #pwME #GreatestMEdicalScandal (full text below)
1.6K