CEO & founding member Renegade Research, Co-founder Renegade Medical Coaching, Director Remissionbiome Decentralized research/care @renegaderes@remissionbiome
I am still seeing way too many #LongCovid patients who had a very active lifestyle continuously trying to exercise regularly while feeling horrendous. Please decouple general health recommendations for otherwise healthy individuals from #LC - your body needs that energy resource
1. The power of community in all aspects of life: After my adult kids were back home with us in 2020-2021 we decided to stay living together and buy a property with some separation, but lots of communal living, which we did in November 2022.
I have been waiting for this for a couple of years. We are starting to see the connections of different manifestations of immune dysfunction triggered by infection, head trauma and other triggers
The #GreatestMEdicalscandal and the decades of abandonment for #MECFS patients. How we went through a pandemic that added more people to the post infectious chronic illness pool and we have all been abandoned #JohnvsJonvsME
11. You don’t have to follow whatever expectations society has of how things “should be” - do what works for you, what makes sense for your situation, and hopefully what brings you closer to yourself and others!
1. Many people with chronic illness have severe financial restrictions that limits access to care and interventions that could help.
We know about the straight forward limitation, but we don’t speak about the opportunity cost.
George Monbiot described the treatment of #MECFS as "one of the greatest medical scandals" & "this is about how the scientific and media establishment closed ranks around bad science, defending it from legitimate questioning and criticism." #GreatestMEdicalScandal
It infuriates me to see ME/LC psychologized. Not only because it seeks to minimize the very real pathophysiology of these conditions, but also bc it shows a gross lack of understanding of biochemical processes by those who are supposed to know. 1/
Dr. David Systrom, harvard medical school: #MECFS and #longcovid insights from invasive cardiopulmonary exercise testing: This is being used in the investigation of all forms of exercise intolerance
The individual costs of #chronicillness like #mecfs and #LongCovid are profound. This is why it baffles me when critics think that people prefer to sit at home and do nothing. even people who opt out of the workforce do so for a purpose. 1/n