Pinned
We would like to announce the launch of our new website sbhpag.com and our #páistíinpain campaign. On our website you will be able to read our children’s stories, and about the absolute failings of the Irish health system to provide care
Spina Bifida & Hydrocephalus Paeds Advocacy#backus
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Spina Bifida & Hydrocephalus Paeds Advocacy#backus
@SBH_PAG
Parent-led voluntary group advocating for children living with Spina bifida and/or Hydrocephalus in Ireland Co-leads @mandacoughlan @UnaKeightley #backus
- This is the reality for Hannah living with Spina Bifida & Scoliosis a short Luas journey leaves her in pain, tears & discomfort. Behind every child waiting is a family carrying the toll #JusticeForHarvey
00:00 - Today we mourn the loss of one of the most beautiful & courageous little warriors Harvey. Your zest for life & the resilence you showed in such adversity will stay with us all forever. You are adored and have the most wonderfully strong parents, continue to guide them from above
- Brianna had spinal surgery in London last October. She came home after a very difficult surgery — in the wheelchair she left in. For the last 10 months, Brianna has been waiting for a new wheelchair. She cannot sit in her current one it digs into her back, cuts her skin, and
- Feb 2024: @SBH_PAG & @scolionetwork protested at the Dáil. Our children begging Govt to pass a motion to end the suffering their suffering FF & FG voted it down The consequences have been grave #JusticeForHarvey The motion they ignored is here 📜 sl1nk.com/h38nh
- A Hard “NO” from children living with scoliosis, you were given their trust. Some waited so long under your tenure they became inoperable, many live with the life long effects & consequences of delays in care. You failed them on a children’s rights issue.
- But the children living with Spina Bifida & Scoliosis can speak?
- Harvey would be so proud of you both @Stephen63224725 & @GillSherratt23 just like we are ❤️ #justiceforharveyHeart-breaking 😢 The parents of Harvey @Stephen63224725 & @GillSherratt23 speaking at the #March4Harvey rally this afternoon. #CustomsHouse #ResignHarris
00:00 - Join us tomorrow Sat 23 Aug at 2pm, Garden of Remembrance Dublin For Harvey For every child still waiting #JusticeForHarvey @scolionetwork @AccessForAll7
00:00 - Meeting surgeons after years of failure is not action, it’s optics @JenniferCarroll it’s like asking the arsonist to explain after the fire 🔥 You were warned repeatedly by us at the April meeting & @scolionetwork that @CHI_Ireland's claim that “prioritised on clinical need”
- 2017: the Dickson report identifies significant failures in the urological care in children living with Spina Bifida @CHI_Ireland To this day @CarrollJennifer & @SimonHarrisTD refuse to publish Why…well read yourself 👇 …neglect #JusticeForHarvey #ResignHarris
- Two weeks ago wildflower seeds were placed at Harvey’s celebration of life service asking people to plant them in honour of the love he brought into our lives. Harvey’s legacy continues to grow. #JusticeForHarvey #ResignHarris
