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10 years ago on 12/26, I was diagnosed with stage IV #EGFR+ #lungcancer. I’m still here thanks to research and making memories with my family! #lcsm @EGFRResisters
Ivy Elkins
3,530 posts
Ivy Elkins
@ivybelkins
Co-Founder, @EGFRResisters LC Patient Group; writer for lungcancer.net; lc advocate/survivor; dx stage IV 2013, @Princeton & @Wharton alum.
- Today is my 6 year cancerversary thanks to the power of RESEARCH. I was diagnosed Dec 2013 with stage IV EGFR+ #lungcancer that had spread to my brain and bones. Today, I climbed a Mayan pyramid in Coba, Mexico. @EGFRResisters #lcam #ResearchMatters #livingwithlungcancer
- Today I did something that I never would have imagined doing in 12/2013 when I was diagnosed with stage IV #lungcancer that had spread to my bones and brain. Thanks to research, I moved my 18 year old son into college! @EGFRResisters #lcsm #livingwithlungcancer #ResearchMatters
- As a stage IV #lungcancer patient, I never thought this would happen...but I have become eligible for surgery! After 6+ years on targeted therapy, I will have the right upper lobe of my lung removed @UCCancerCenter tomorrow by @jdoningtonmd!So very excited! #lcsm @EGFRResisters
- There’s lots of bad news around, but I’d like to share something positive! Today, I am celebrating 8 years of living with stage IV #EGFR+ #lungcancer. Happy to be healthy and surrounded by my family! #lcsm #lcam @EGFRResisters #researchmatters
- Sharing some good news — had my first scans today after starting my new targeted therapy combo of osimertinib and selumetinib 7 weeks ago and the drugs are working! My EGFR+ #lungcancer with a TRIM24 BRAF fusion is shrinking! #LCAM #LCSM @EGFRResisters #diecancerdie
- NED after 6+ years! Upper right lobe of my lung — GONE! So glad I have such an awesome team @jdoningtonmd @JPatelMD. VATS made possible for this stage IV #lungcancer patient! #lcsm #ResearchMatters #ScienceIsAwesome #HopeLives @EGFRResisters @UCCancerCenter
- Today I am celebrating 7 yrs of living w/stage 4 #lungcancer w/my family! Thx to #EGFR #TKIs, my amazing onc @JPatelMD @LurieCancer @NorthwesternMed, fantastic surgeon @jdoningtonmd @UCCancerCenter & my LC sisters! #lcsm #whiteribbonproject @EGFRResisters #ResearchMatters
- Wonderful dinner last night celebrating 9 years of living with #EGFR+ stage IV #lungcancer! The past 6 months have been tough due to an unexpected recurrence/treatment change, but I’m still hanging in there and hoping for many more future cancerversaries! #lcsm @EGFRResisters
- Heading home from the hospital post-lobectomy! Thanks for the great care @jdoningtonmd @DSBryan1 @UCCancerCenter! #lcsm #lungcancer @EGFRResisters
- THANK YOU so much to everyone who retweeted, contacted me, and liked this thread today. I just heard from @Aetna and THEY HAVE APPROVED the medication!!!!PLEASE RT: I need help from the #lcsm community @Aetna, pls approve my onc’s 2nd appeal for #selumetinib for the TRIM 24 BRAF fusion that is driving my #lungcancer progression. I have received 2 prior denials What’s the use of #biomarker testing if I can’t get the drug I need🧵
- Today is my 5 YEAR STAGE IV #lung cancerversary. I am celebrating in Curacao with my new friend #LuluTheLung! I plan to start taking pictures with Lulu everywhere I go to raise awareness that ANYONE with lungs can get #lungcancer! Who wants to join me? #lcsm @iheartguts
- 64 months since I was dx w/stage IV #lungcancer and still stable! Got this great news from my fantastic oncologist @JPatelMD @UCCancerCenter today. Thanks to #targetedtherapies I was able to see my son commit to college yesterday! #bestweekever @EGFRResisters @Princeton #lcsm
- PLEASE RT: I need help from the #lcsm community @Aetna, pls approve my onc’s 2nd appeal for #selumetinib for the TRIM 24 BRAF fusion that is driving my #lungcancer progression. I have received 2 prior denials What’s the use of #biomarker testing if I can’t get the drug I need🧵