If I told you I have epilepsy… how would you react?
💜 Watch, reflect, and help normalise the conversation.
👉 Please share this video and help us change the narrative.
#EpilepsyAwareness#ChangeTheNarrative#EndTheStigma
It's irresponsible and dangerous for @MileyCyrus to announce her new album with the video she has. It's an unnecessary risk for people affected by photosensitive epilepsy and flashing images. We encourage Miley and @RCARecords to take the video down and re-think the marketing.
What is it really like for children living with epilepsy? Amrit, Alfie, Darcie, William, Jenson, Freddie, Sophie and Oscar tell us 💜💜 epilepsy.org.uk/purple
All people with epilepsy deserve to be able to access the best possible care and treatment for their condition. It is unacceptable that excessive profit has come at the expense of patient safety and put people with epilepsy at risk of further seizures. 1/3
Beth had her first seizure aged 13 and fell unconscious for 15 minutes. Eleven years on, Beth is a 200m record holder and British champion. We are proud to announce @BethDobbin as a new Epilepsy Action ambassador 🙌 Read her full story - epilepsy.org.uk/beth#GreatNorthRun
Today is Purple Day, the international awareness day for epilepsy. What will you be doing to raise awareness of epilepsy today? We know it's going to be a lot different this year but please get involved in any way you can! 💜 - epilepsy.org.uk/purple#PurpleDay
Today is Purple Day, which means that hundreds of people like you are preparing to play their part in raising valuable funds and awareness to help people with epilepsy.
How are you going to make a difference this year?💜
#purpleday
We support this move. The crisis is already affecting people with epilepsy, with 2 in 5 telling us they're having more seizures as a result of stress.
Many are also cutting back on their energy use, which is already coming at a huge cost to their health, safety and wellbeing.
I have just sent the Chancellor @Jeremy_Hunt - supported by major charities - a letter asking him to postpone the government's 20% increase in energy bills on 1 April.
The letter is at attached (plus supplementary explanation) please read and feel free to share