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Epilepsy Action
@epilepsyaction
Epilepsy says stop. We say go.
Leeds, UK
Joined November 2008
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    If I told you I have epilepsy… how would you react? 💜 Watch, reflect, and help normalise the conversation. 👉 Please share this video and help us change the narrative. #EpilepsyAwareness #ChangeTheNarrative #EndTheStigma
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    Today is #PurpleDay the international awareness day for epilepsy. What will you be doing today to raise awareness of epilepsy?
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    Today is #purpleday the international awareness day for epilepsy. What will you be doing today to raise awareness of epilepsy?
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    Today is #PurpleDay, the international awareness day for epilepsy. What will you be doing to raise awareness of epilepsy today? 💜
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    It's irresponsible and dangerous for @MileyCyrus to announce her new album with the video she has. It's an unnecessary risk for people affected by photosensitive epilepsy and flashing images. We encourage Miley and @RCARecords to take the video down and re-think the marketing.
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    What is it really like for children living with epilepsy? Amrit, Alfie, Darcie, William, Jenson, Freddie, Sophie and Oscar tell us 💜💜 epilepsy.org.uk/purple
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    All people with epilepsy deserve to be able to access the best possible care and treatment for their condition. It is unacceptable that excessive profit has come at the expense of patient safety and put people with epilepsy at risk of further seizures. 1/3
    Drugs firms Pfizer and Flynn accused of forcing NHS to pay 'unfairly high' prices for epilepsy tablets news.sky.com/story/drugs-fi…
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    Beth had her first seizure aged 13 and fell unconscious for 15 minutes. Eleven years on, Beth is a 200m record holder and British champion. We are proud to announce @BethDobbin as a new Epilepsy Action ambassador 🙌 Read her full story - epilepsy.org.uk/beth #GreatNorthRun
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    Today is Purple Day, the international awareness day for epilepsy. What will you be doing to raise awareness of epilepsy today? We know it's going to be a lot different this year but please get involved in any way you can! 💜 - epilepsy.org.uk/purple #PurpleDay
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    Today is Purple Day, which means that hundreds of people like you are preparing to play their part in raising valuable funds and awareness to help people with epilepsy. How are you going to make a difference this year?💜 #purpleday
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    Doctor Who and Sense 8 star @FreemaOfficial wants more people to learn about epilepsy. Read her story - epilepsy.org.uk/freema #purpleday
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    Shout out to @BeckyLynchWWE who seems to have helped a fan who had a seizure while at an autograph signing - irishpost.com/news/irish-wwe…
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    We support this move. The crisis is already affecting people with epilepsy, with 2 in 5 telling us they're having more seizures as a result of stress. Many are also cutting back on their energy use, which is already coming at a huge cost to their health, safety and wellbeing.
    I have just sent the Chancellor @Jeremy_Hunt - supported by major charities - a letter asking him to postpone the government's 20% increase in energy bills on 1 April. The letter is at attached (plus supplementary explanation) please read and feel free to share
    

 

 

The Rt Hon Jeremy Hunt MP 
Chancellor of the Exchequer 
HM Treasury 
1 Horse Guards Road 
London SW1A 2HQ 
CC: The Rt Hon Grant Shapps MP

 

Thursday 9 February 2023

 

 

Dear Chancellor,

 

In your November Autumn Statement, you announced a 20% increase of the energy price guarantee (EPG) – the state-subsidised energy rate – from April. This will increase energy bills yet again for almost every home across England, Scotland and Wales. This comes at the same time that the £400 energy bills support scheme comes to an end.

Yet things have changed since then, and I would ask you to urgently consider postponing that increase. This cannot wait until the Budget – in practice, energy firms will need to know much sooner if the planned rise isn’t happening on 1 April, or they are bound to have to communicate to customers that it is coming. 

This decision to increase prices was made at a time when wholesale rates were looking to be far higher than they are now. In fact, on current