PoTS UK (@UKPoTS) / X

PoTS UK

4,857 posts

PoTS UK

@UKPoTS

A charity passionate about supporting those with Postural Tachycardia Syndrome; raising funds to provide information, education, research, awareness & advocacy.

Joined May 2014

Pinned
PoTS UK
@UKPoTS
Apr 6
1/4 IT'S HERE 🎉 POTS UK's Educational Video Series is officially LIVE! After months behind the scenes, we're so excited to bring you 13 bite-sized videos designed to support, empower, and guide you. 🎬 Today’s video: potsuk.org/managingpots/e… #PoTS #MECFS #EDS #LongCovid
1.2K
PoTS UK
@UKPoTS
Oct 25, 2024
💜🌟#PoTSAwarenessDay🌟💜 #PoTS is so much more than just a fast heart rate upon standing! Quality of life can be equivalent to COPD and congestive heart failure. Many patients are told that their physical symptoms are ‘all in their head’ and instead are given psychiatric
101K
PoTS UK
@UKPoTS
Oct 25, 2023
Thank you so much to @DrAmirKhanGP for making this excellent educational video about #PoTS 🙌🏻 Please help by sharing this today for ⭐️#PoTSAwarenessDay⭐️ PoTS can develop after viruses, such as #COVID19 Comorbidities can include: Myalgic Encephalomyelitis (#MECFS),
00:00
94K
PoTS UK
@UKPoTS
Oct 25, 2023
Today is ⭐️#PoTSAwarenessDay⭐️ ✨PoTS on a Page - GP Guide✨ If you are a healthcare professional please download this guide which summarises information about #PoTS For those seeking a diagnosis or attending medical appointments, please take this along to increase knowledge
45K
PoTS UK
@UKPoTS
Oct 25, 2024
Today is🌟#PoTSAwarenessDay🌟 ✨PoTS on a Page - GP Guide✨ Please share this guide among the medical community to educate about #PoTS. For those seeking a diagnosis or attending medical appointments you can view and print the guide here: potsuk.org/wp-content/upl… A more
24K
PoTS UK
@UKPoTS
Oct 25, 2023
⭐️Why is #PoTS often misdiagnosed as anxiety when the symptoms are physical?⭐️ Please listen to Dr @nickgall Cardiologist, PoTS Specialist & Patron to @UKPoTS answer this question. “A lot of the symptoms of PoTS relate to adrenaline, (increase in heart rate, variable blood
00:00
23K
PoTS UK
@UKPoTS
Oct 1, 2024
Our NEW ⭐️What is PoTS⭐️ video! To mark the first day of #DysautonomiaAwarenessMonth (disorders of the autonomic nervous system) please educate about #PoTS by sharing our new ‘What is PoTS’ video💜 This video gives a summary of symptoms, QOL, associated conditions & treatments.
00:00
48K
PoTS UK
@UKPoTS
Oct 10, 2021
It’s day 10 of #DysautonomiaAwarenessMonth Please help us by sharing these 10 important facts about #PoTS potsuk.org/UserFiles/File… #TakeAStandForPoTS #LongCovid #EDS #MCAS #MECFS #pregnancy #trauma #viruses #MedTwitter #MedEd #TeamGP @DrNighatArif @DrSdeG @Dr2NisreenAlwan
PoTS UK
@UKPoTS
Oct 25, 2022
If you only share one thing for #PoTSAwarenessDay, let it be this💜 If you are new to #PoTS (Postural Tachycardia Syndrome) & reading this, please take the time to learn more about this widely unrecognised & commonly misdiagnosed condition! potsuk.org #MedTwitter
PoTS UK
@UKPoTS
Oct 13, 2023
Today we stand in solidarity with the #LongCovid groups @LongCovidKids @long_covid @LongCovidSOS presenting evidence at the @covidinquiryuk Many children & adults are sadly developing #PoTS post #COVID19 potsuk.org Please support their campaign online today by
Long Covid SOS @longcovidsos.bsky.social
@LongCovidSOS
Oct 13, 2023
The Long Covid charities are at the Long COVID Inquiry today. Using their voice with dignity, with power, with exhaustion. We Will Not be Forgotten! #longcovidruinslives #weneedanswers #listenlearnhope #giveushope @long_covid @LongCovidKids @LongCOVIDPhysio @LCNMUK
00:00
14K
PoTS UK
@UKPoTS
Nov 10, 2022
Please download our newly updated ‘PoTS on a Page - GP Guide’ to take to your #GP if they do not have knowledge of #PoTS. You may wish to ask them to perform a ‘stand test’, which is described on this guide. potsuk.org/wp-content/upl… #TeamGP #MedTwitter @RCPhysicians @theRCN @rcgp
PoTS UK
@UKPoTS
Oct 1, 2023
October marks the start of #DysautonomiaAwarenessMonth = disorders of the autonomic nervous system, including #PoTS💜 Many are diagnosed after viruses, such as #Covid19 Please learn more on our website: potsuk.org #Medtwitter #TeamGP #MECFS #EDS
28K
PoTS UK
@UKPoTS
Oct 1, 2024
Today marks the start of #DysautonomiaAwarenessMonth = disorders of the autonomic nervous system, including #PoTS 💜 Triggers: viruses, bacterial infection, pregnancy, surgery, a traumatic event, immunisation. Common co-morbidities: #LongCovid, Myalgic
12K
PoTS UK
@UKPoTS
Mar 15, 2024
1/2 Today is #LongCovidAwarenessDay & we stand in solidarity with all the incredible #LongCovid charities & supporters 💪🏻 Many with #LongCovid are diagnosed with #PoTS- symptoms mainly felt in an upright position: palpitations, lightheadedness, physical & mental fatigue,nausea..
7.5K