Scott Smith (@ScottFightsALS) / X

Scott Smith

1,905 posts

Scott Smith

@ScottFightsALS

Father, husband, gym owner, ALS warrior and storyteller. Founder of BodySmith and Flex On ALS. 💪

Kansas City, KS.

Joined January 2013

Pinned
Scott Smith
@ScottFightsALS
Nov 2, 2022
The next chapter, "A Date with Redemption," is up on my #blog! It’s definitely different. Link in bio. #FlexOnALS #endals #alswarrior #alsadvocacy #alsawareness #blogger
Scott Smith
@ScottFightsALS
Oct 1, 2022
.@JamieLW8 & I have decided to accept in-home hospice services. My health took a turn for the worse and we needed to shift goals. This doesn’t mean I plan on dying in the near future. Some stay on #hospice long term. But I’m feeling the full weight of #ALS and could use some ❤️
Scott Smith
@ScottFightsALS
Oct 2, 2022
1,227 comments and you better believe that through teary eyes I read EVERY. SINGLE. ONE. Wow. Just wow. #FlexOnALS
Scott Smith
@ScottFightsALS
May 8, 2022
Day 9 Hospital Confession: the real hero of this story is a working single mom of a 1 & 3yo who also cares for her terminally ill #ALS husband. She’s not out celebrating #MothersDay like the 🐐 she is. She’s by my side watching over me. Please show @JamieLW8 some ❤️ for me today.
Scott Smith
@ScottFightsALS
May 1, 2022
I had big plans for #ALSAwarenessMonth and now I’m in the damn ICU fighting for each breath! #COVID19 and #ALS don’t play well together. I’m not ready for the tracheotomy they think is inevitable if I vent. My wife and I haven’t even discussed it yet. I need my ALS fam right now.
Scott Smith
@ScottFightsALS
Jun 18, 2022
It’s hard not to take "I’m not kissing Daddy cause I don’t like him!" personally when you have #ALS. Even if she is only three. She’s too young to understand why I can’t move or have to talk with machine. I’d be scared of me too! This is definitely a f*ck ALS day. #heartbroken 💔
Scott Smith
@ScottFightsALS
May 8, 2022
Day 8 Hospital Recap: Just happy to be alive, out of ICU. This is officially the longest I’ve gone without seeing my girls. I miss them like crazy but I’m going to binge watch so many Disney movies with this one right here! Then it’s back to spreading #ALSAwareness. #FlexOnALS 💪
Scott Smith
@ScottFightsALS
Aug 20, 2022
My daughter, Iris, just told me she can’t wait to play with me after I get better 😢. She’s super confused why it’s taking me so long getting over being "sick." That’d be a question I’d love @US_FDA to field for my 3-year old. #endALS #Nurown #AMX0035 #dyingwaiting
Scott Smith
@ScottFightsALS
May 5, 2022
Day 5 ICU (#COVID19/#ALS) Update: I’m so proud of my family for being here for me. There’s not a moment I’ve been left alone. And I’m thankful for this amazing community for all the love. I read each and every comment through teary eyes 😢. As far as my health goes… (1/4)
Scott Smith
@ScottFightsALS
Sep 29, 2022
#AMX0035 becomes the the third @US_FDA approved drug for #ALS! This is a rare victory for this community and deserves celebration. #FlexOnALS 💪
Scott Smith
@ScottFightsALS
May 21, 2021
Not sure if I should be washing a highly experimental #ALS drug down with a beer but here we are. Trying to do normal things in #Boston. My dad accompanies me on all my trips to receive treatment. He isn’t on #Twitter so he’ll never see this but... He’s the best. 🍻
Scott Smith
@ScottFightsALS
Dec 25, 2021
It’s tradition in the Smith household for dad to read “The Night Before Christmas” before bed. Only problem, I can’t speak a lick this year due to #ALS. Thank God we have a recording from last year. Merry #Christmas to all, and to all a good night! 🎅 🎄 #ChristmasEve #FlexOnALS
Scott Smith
@ScottFightsALS
Apr 23, 2022
I’ve had to watch the evolution of my 3-year-old’s understanding of #ALS and it’s heartbreaking. "Daddy, did I get you sick?" she asked last night. "No sweetie." Then she fired the million dollar question, "Well, how did you get sick then?" “Nobody knows sweetie. Nobody knows."
Scott Smith
@ScottFightsALS
Oct 13, 2022
#TBT to last Halloween where I was still cool cause I could talk and go really fast. Cut to last night and Iris matter ‘o factly told me I was only going to get sicker and then die. The therapy is working. 😭