Julie Houston (@JulesAHouston) / X

Julie Houston

17.6K posts

Julie Houston

@JulesAHouston

Body malfunctioning since 1998 MECFS POTS MCAS. #LongCovidKids #LongCovid #PANS #PANDAS ally #MasksInHealthcare #CleanAirForAll julesahouston.bsky.social

Loch Lomond, Scotland

Joined June 2016

Pinned
Julie Houston
@JulesAHouston
Jan 10, 2024
M.E. is a story of abandonment, abuse, coverups, neglect, injustice, gaslighting & scandal. The trail of nefarious behaviour leads to the very top of our institutions. It's now being repeated with #LongCovid patients. #MEAwarenessHour @worldprods @KenLoachSixteen #ExposeMENow
19K
Julie Houston
@JulesAHouston
Sep 17, 2022
I had my first appointment with the amazing @drclairetaylor earlier this week and just WOW! She was lovely, so kind & understanding. It is no exaggeration to say that she has helped me more in 45 minutes than the NHS has done in 24 years. 🧵
Long Covid Clinic | Dr Claire Taylor
From drclairetaylor.com
Julie Houston
@JulesAHouston
Aug 7, 2023
On Severe ME Understanding and Remembrance Day my thoughts are with all those suffering silently, chained to their beds, hiding in the shadows, waiting in vain for a better day that never arrives. #SevereMEDay #EndMEMalnutrition #MyalgicEncephalomyelitis
9.4K
Julie Houston
@JulesAHouston
Mar 4, 2024
"Millie is declining further in hospital and has communicated she can only stand a few more days and needs to go home extremely urgently. She can no longer get out of bed at all and even turning over in bed is becoming a big struggle." #SaveMillie
Latest update - and please keep sharing
From change.org
19K
Julie Houston
@JulesAHouston
May 10, 2023
This year it's my silver M.E. anniversary so I think it's finally time to accept that I won't be wearing these again. #MEAwarenessWeek seems like an apt time to let them and all that they signify go. 😥 #MEAwarenessHour #CanYouSeeMENow #MillionsMissing #LearnFromME
13K
Julie Houston
@JulesAHouston
Mar 4, 2024
Update! Things have been much better for @Mariararoo since she's been moved to her own room. Most of the nurses & drs are treating her with care. One of the consultants she saw earlier in her stay visited her this week & has now read the NICE guideline. What a breakthrough! 🧵
9.1K
Julie Houston
@JulesAHouston
Feb 23, 2024
Update! "Millie continues to be a patient in Royal Lancaster Infirmary. She has very severe ME and, prior to her mistreatment by the hospital, was estimated to have a mere 3% capacity by Dr Speight." 🧵 #VerySevereME #NHSProtocol4SevereMENow #DontLetMeDie
43K
Julie Houston
@JulesAHouston
Oct 29, 2021
"I worry that this guideline seems to suggest that patients need to learn to live with CFS/ME, rather than be helped to recover from it." Yes Peter White, this has been our reality for decades! Imagine where we would be now if the focus had been on biomedical research. #pwME
Julie Houston
@JulesAHouston
Apr 9, 2024
This is a big day for Millie & her family. In addition to the Twitterstorm at 11am, there will be a protest outside the RLI & her story will be covered by @ITVGranadaTV. Very grateful to @JoshuaStokesITV. Big thanks also to @NickyProctor @juancorlett who made this happen.
@TheChronicCollaboration
@TheChronicColab
Apr 9, 2024
URGENT #BringMillieHome #DontLetMEDie We are in Lancaster at the request of Millie's family, Lucy and Abbie. We spent a few hours with them last night and they are amazing people. Why are we here? Watch below and sorry there's no captions 😔
00:00
6.7K
Julie Houston
@JulesAHouston
Sep 17, 2022
Replying to @JulesAHouston
I'm not adequately expressing all I want to say ( brain mostly on holiday & it has taken me so long to compose this) but you get the picture. Dr Taylor's parting words to me "Go home & rest, that's Drs orders!" No other dr has told me to rest - ever! /End
Julie Houston
@JulesAHouston
Sep 17, 2022
Replying to @JulesAHouston
I left the appt stunned really & laughed hysterically most of the way home. Now, a few days later, feeling 😭. Just starting to realise the extent of anger I have been holding in for so long. Sinking in that there is a degree of trauma caused by the medical profession. /4
Julie Houston
@JulesAHouston
Apr 18, 2024
This is 2024, not 1924. We won't accept this treatment any longer @gmcuk @rcpsych @RCPhysicians. NICE guideline NG206 routinely ignored by HCPs @NICEComms. Patients abused, harmed & neglected. #SaveCarlasLife #ExposeMENow #SevereME #VerySevereME #MedTwitter #DontLetMeDie
5K
Julie Houston
@JulesAHouston
Mar 18, 2024
Update from the family, Millie has an official ME/CFS diagnosis! "On 15/03/24 Dr Weir sent a very clear letter stating that Millie’s diagnoses is ME/CFS and for this to be added to her medical records." #SaveMillie #VerySevereME #DontLetMeDie #MEKills
Update about Millie from her family
From change.org
5.7K
Julie Houston
@JulesAHouston
Mar 29, 2024
Update! Please keep Millie and her family in your thoughts #pwME #SaveMillie #VerySevereME #MedicalNeglect #MedicalAbuse
11K