@TheChronicCollaboration (@TheChronicColab) / X

@TheChronicCollaboration

4,866 posts

@TheChronicCollaboration

@TheChronicColab

A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.

thechroniccollaboration.com

Joined August 2021

Pinned
@TheChronicCollaboration
@TheChronicColab
Aug 23, 2024
We've decided that it's time to properly call it a day. We've tried our best with the Collaboration and wish all future campaigns the best. Please continue to support @TheCanaryUK where there will be coverage of #ChronicIllness & updates. Our accounts will close on Sunday 👇
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@TheChronicCollaboration
@TheChronicColab
Mar 8, 2023
Eliana (16 years old) Covid Pneumonia Sept 2021. Diagnosed with ME September 2022. Bedbound. Not yet able to even watch TV, listen to music or engage in conversation with the people she loves. Struggling to keep down even ‘safe foods’. Missing out on so very much #DontLetMEDie
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@TheChronicCollaboration
@TheChronicColab
Mar 8, 2023
This is why we're protesting at parliament. Louise is currently extremely sick in an NHS hospital. Doctors are trying to psychologise her ME & other conditions On the left is Louise in 2021. On the right, is Louise NOW. Try telling us that's 'all in her head' #DontLetMEDie #PMQs
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@TheChronicCollaboration
@TheChronicColab
Apr 24, 2024
DON'T. LOOK. AWAY. #SaveCarlasLife #MEAwarenessHour Please meet Pierre, Carla's father. We cannot overstate how distraught he is by what is happening to his daughter. However, he wanted to speak to everyone directly. Please watch & share widely. She is running out of time 💚
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@TheChronicCollaboration
@TheChronicColab
Apr 7, 2024
URGENT #BringMillieHome At the request of Millie's family, we're holding a Twitterstorm at 11am on Tues 9 April to make some major noise. This MUST TREND. Please get involved then using #BringMillieHome AND #DontLetMEDie. Share articles. Share the petition. Tag the NHS Trust.
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@TheChronicCollaboration
@TheChronicColab
Mar 8, 2023
I’ve had severe ME for 17 years & have had so many experiences of neglect and abuse in hospitals that I now have a PTSD diagnosis. I don’t know anyone in the severe ME community who doesn’t also have similar horror stories to tell. It’s about time something was done #DontLetMEDie
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@TheChronicCollaboration
@TheChronicColab
Apr 18, 2024
UPDATE 6pm 18/4 #SaveCarlasLife: Thanks to YOU - yes, ALL of YOU - Carla's dad has been able to block the door window off AND neurology will be seeing Carla first thing tomorrow. This is thanks to the community's action. Not us, not a charity - YOU. Remember that #ExposeMENow
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@TheChronicCollaboration
@TheChronicColab
Apr 17, 2024
CW: distressing We want you to meet Carla #SaveCarlasLife #ExposeMENow With family's permission we're sharing some videos of her experience in West Middlesex hospital. This first video is what happens when she is exposed to bright light. Staff won't cover the door window.
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@TheChronicCollaboration
@TheChronicColab
Apr 9, 2024
Thank you so much to everyone who supported us online today - trending at number two is remarkable. Lucy and Abbie send their love and we'll update you on any developments throughout the day #BringMillieHome #DontLetMEDie We're off to get warm now
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@TheChronicCollaboration
@TheChronicColab
Jun 3, 2024
We have an announcement. We're upset, sad, sorry, exhausted, and devastated. But there's nothing we can do. Please watch and feel free to comment #ChronicIllness #MEcfs #LongCovid
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@TheChronicCollaboration
@TheChronicColab
Apr 16, 2024
As of 2pm on 16 April, Carla was unconscious for 24 hours. Yet doctors have done nothing. They don't believe she is having seizures. They have not got other specialisms such as neurology or cardiology involved #SaveCarlasLife #ExposeMENow Full story below:
The family of ANOTHER young woman with very severe ME are scared their daughter is going to DIE in...
From thecanary.co
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@TheChronicCollaboration
@TheChronicColab
Sep 20, 2021
We at @TheChronicColab are OVERWHELMED with the amount of online support & interactions that the #ProtestNICE4ME demo received. We really are humbled. Thank you so much to the #pwME who came out in person & virtually. Wow 🥺 It's amazing. And @NICEComms: #PublishThatGuideline.
@TheChronicCollaboration
@TheChronicColab
Jul 11, 2024
It has taken since May to get this sorted & needed a lot of back & forth, but here's a BBC article on #SaveCarlasLife Her story & interviews with Pierre & Caroline will be on BBC London tonight as well from 6:30. Watch on iPlayer #MEcfs @WestMidHospital
bbc.co.uk
Father of woman with ME/CFS scared she will "die in hospital"
Carla Naoum's father is unhappy with care she is receiving at West Middlesex University Hospital.
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@TheChronicCollaboration
@TheChronicColab
Mar 15, 2024
Here's what people will be hearing around Westminster today, thanks to @LCMEBillboards Digivan that is currently circling around DWP, parliament and SW1 generally!#LongCovidAwarenessDay
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