Our members don't often get together irl, but when they do, it's magic 😍
Her ALS Story
395 posts
Her ALS Story
@HerALSStory
We are a group of women diagnosed with ALS before our 35th birthday who are challenging the stereotype that this is an old white man's disease.
Joined July 2021
- Alyssa is a straight up regulation hottie with those dreamy eyes and that Fuck You ALS tee. Get yours here: heralsstory.org/merch
- There's no denying each lady of Her ALS Story got it going. That's why we're celebrating each one of these baddies all month long. Meet Alyssa #InternationalWomensDay #IWD2022 #womenpower
00:00 - Angelina hasn't let ALS stop her from seeing the world. Today, we celebrate her wanderlust and that sweet, sweet ass seated on her wheeled throne #WomensDay #Womenwarriors
00:00 - We love our furry friends 🐶🐾 #alsawareness #servicedog #als #mnd #endals #babeswithmobilityaids #heralsstory
- I was wrong for this one #galpals #heralsstory #als #disability #girlstrip #problems Follow our TikTok star: @limpbroozkit
00:00 - Thanks to the great @CathyStandish our #heralsstory members look like movie stars while attending #morethanourstories this week in Washington DC 🤩 #alsadvocacy
- We’re still reflecting on our shared experiences from #haswellnessweekend and thankful for women like @sandymorris333 ❤️ #talkalstome #ThislsMyALS #ALSAwareness #EndALS #HerALSStory #FuckALS #ALS #ALSHumor #LifeWithALS #Accessibility #Disability #MotorNeuroDisease #ALSSucks
- THIS IS EVERYTHING 👇👇Today, I signed the Accelerating Access to Critical Therapies for ALS Act. Thanks to a movement led by patients and caregivers and bipartisan members of Congress, we are finally closer than ever to new treatments, and hopefully a cure.
- YOU ARE INVITED: This #ALSawarenessMonth, please join us in participating in the #FightALSFilmFest, where each week you will have the opportunity to view a film and join a conversation about the realities of #ALS. Register here for the month-long event: alsfilmfest.com
- If one of us has a problem, then we all have a problem. What are you going to do to fix this @RoyalCaribbean?@RoyalCaribbean FIX THIS NOW #twittershame @redfoxals My poor wheelchair is still MIA. I have reached out to people at Royal Caribbean and so far gotten nothing but polite assurances they will try to find out where it is. I’m trying to stay hopeful, but I’m very discouraged.
- Keep swinging! We nominate @SlangsOnSports @lorisshoes and @katefagan3 for the #swing4ALS challenge! Love, the gALS of Her ALS Story #swing4als #heralsstory #iamals #ALS #alsawareness
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