How it can help: explains chemo/scalp cooling to children
Mom’s Magical Crown is a children’s book written by Lauren McClain, a schoolteacher and mother of three from Pittsburgh, Pennsylvania. Based on her own experience of cold capping, Lauren’s story introduces children to chemotherapy and scalp cooling in an informative and uplifting way.
How it can help: self-care, gratitude, healing.
Where there is hope, there is healing. This renewal diary template can help you with daily reflection, mood tracking, positive affirmations and celebrating the small wins during your journey to post-treatment renewal.
The Paxman Scalp Cooling Facebook Group
How it can help: ask questions, connect with patients, join a community
The Facebook Group is an online community over 12,000 people strong. This patient-to-patient support group is used to share progress updates, ask questions, aid the decision-making process and offer support, advice or personal experiences – not all posts are necessarily scalp cooling related. Even if you decide not to scalp cool, the group could be another place to get support. The Paxman team also watch over the group and can answer questions that are related to treatment with the Paxman Scalp Cooling System.
How it can help: educational resources, research news, community conversation
BreastCancer.org’s mission is to help you make sense of the complicated medical and personal information about breast health and breast cancer, allowing you to make the best decisions for you. They are a reliable source of information, completely free.
How it can help: hair loss support, scalp issues support
Cancer And Afro Hair, the only Trichology led Cancer-related Hair loss service in the UK, specialising in Afro-Textured Hair. Services included support groups, hair clinics, workshops and webinars.
How it can help: practical and emotion support for breast cancer, UK-based breast cancer support centre, resources and information
Future Dreams provides support services for those navigating a breast cancer diagnosis as well as those who have been through breast cancer in the past. It assists patients with managing the key issues and pain points associated with cancer. They deliver workshops, classes, therapy services and support groups in addition to raising awareness of breast cancer and funding research.
How it can help: financial support across the US for scalp cooling
HairToStay is the only national non-profit organisation in the US dedicated to helping low-income cancer patients afford scalp cooling. In 2023, they raised over $1.7 million to subsidise 1,179 patients. HairToStay also helps to raise awareness and offer information and support to patients considering scalp cooling to keep their hair during chemotherapy.
How it can help: resources, support, and awareness for kids and families facing a parent’s cancer
Kesem is an organisation that supports children facing a parent’s cancer. They strive to ensure these children have the chance to fully experience the joys of childhood. They provide free summer camps, day programmes, and virtual meetups for youth and adolescents. They create a supportive community to ensure that a child is never alone.
Living Beyond Breast Cancer (LBBC)
How it can help: U.S. breast cancer helpline, find support, practical resources
Living Beyond Breast Cancer is a US national non-profit that connects people with trusted information and a community of support. They provide a wide range of breast cancer resources, host events and fundraisers, along with a free breast cancer helpline.
Key pages
How it can help: UK-based live support, comprehensive resources for all cancers, physical, emotional and financial support
Macmillan is one of the largest UK charities and provides specialist health care, information and financial support to people affected to cancer. The charity also campaigns for better cancer care, improving the lives of everyone affected in the UK and participates in large fundraising events, such as the World’s Biggest Coffee Morning.
How it can help: workshops, courses, one-to-one and group support
Maggie’s recognises that when you’re diagnosed with cancer, you need more than just medical treatment. The charity offers emotional support and practical advice acting as a place to go to meet and talk to people who are going through the same experiences.
How it can help: personal and family support, resources on BRCA, breast cancer & ovarian cancer
Sharsheret, a U.S. non-profit organisation, seeks to improve the lives of Jewish women and families living with (or at increased genetic risk for) breast or ovarian cancer through personalised support and educational outreach.
While our expertise is in young women and Jewish families as related to breast cancer and ovarian cancer, Sharsheret programs serve all women and men.
How it can help: product recommendations, product guidance
A website by Helen Addis and her friend Lisa Potter-Dixon, the C List was created as a product recommendation website that understands the side effects of cancer treatment. It signposts to tried and tested beauty products, specifically for those who are navigating (or have navigated) a cancer diagnosis. Helen is also passionate about showing you how to use the recommended products and how to get the most out of your skin.
How it can help: studies and data on scalp cooling efficacy
If you’re interested in the science and data behind scalp cooling, The Scalp Cooling Study Library may help you to feel more confident. It brings together key clinical research studies and data to provide an independent overview of global research and practice on scalp cooling and cryotherapy for chemotherapy side effect management.
