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Sandra Abrevaya
@sabrevaya
Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
Chicago, IL
synapticure.com
Joined August 2010
3,639
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21.3K
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Posts
  • Pinned
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    Sandra Abrevaya
    @sabrevaya
    Oct 29, 2025
    Thank you @melindagates and the team at @PivotalVentures for believing in our dream to build better care for families with ALS, Parkinson's and Alzheimer's!
    user avatar
    Synapticure
    @synapticure
    Oct 29, 2025
    When co-founders @sabrevaya and @bsw5020 received a life-altering diagnosis, they built a cost-effective, accessible neurology care network across the U.S. Thanks to @melindagates @PivotalVentures for supporting our vision.
    00:00
    7K
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    Sep 7, 2023
    The girls just got home, saw the chair lift and started shrieking with excitement “Dad is sleeping upstairs tonight!!!!!!” I don’t think I’ve ever heard anything better. ❤️
    user avatar
    Brian Wallach
    @bsw5020
    Sep 7, 2023
    The chair lift is in. The wall mount is up. And tonight, for the first time in two years, I will see the second floor of our house. Not today ALS. Not today.
    318K
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    Sandra Abrevaya
    @sabrevaya
    Sep 17, 2022
    Wearing my heart on my back. ALS you will be gone. Soon. Thank you for the birthday love friends, it was a great day ❤️❤️
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    Sandra Abrevaya
    @sabrevaya
    Feb 29, 2024
    Last night I burst into tears when I saw that Brian posted this picture. There is so much grief in what has already been lost. Before we fell asleep I told Brian how sad I was and he said, "don't be, I'm still here." I am anchored by my husband's hope ❤️
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    Brian Wallach
    @bsw5020
    Feb 29, 2024
    Just a dad holding up one of his daughters. Something which I took for granted, but now never will. Good night moon.
    466K
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    Sandra Abrevaya
    @sabrevaya
    Mar 6, 2022
    This weekend was going to be my first girls trip in 2 years. Because of caregiver life, I cancelled. So my friends changed their tickets to come to see me for one night. We covid tested, snuggled and watched movies. It was all I needed. I hope every caregiver has a love squad.
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    Oct 9, 2024
    For Brian’s 44th birthday, and 7 years into surviving ALS, I cleared the calendar so we could do whatever @bsw5020 wanted to celebrate. He asked to spend the day taking his caregiving team shopping to get them each something they wanted. Happy birthday sweet Bri ❤️
    65K
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    Sandra Abrevaya
    @sabrevaya
    Oct 30, 2022
    I ache for this version of life.
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    Sandra Abrevaya
    @sabrevaya
    Feb 11, 2024
    Replying to @sabrevaya
    I lifted his hand and put it on mine as I lay beside him and I put my head on his chest as our girls took in one of my favorite childhood movies, commenting loudly throughout. And at that moment I couldn't be more grateful that I asked for help and that I fought for this joy. ❤️
    35K
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    Sandra Abrevaya
    @sabrevaya
    Dec 8, 2020
    I am just one of the forty million Americans who are caregivers at home on a daily basis. Every time you set up an IV bag in your pjs, help your partner sit up in bed, help them pick up pills they dropped on the floor... I am right there with you. You are not alone.
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    Sandra Abrevaya
    @sabrevaya
    Mar 8, 2024
    If you read about a failed drug trial please get that this is what that news feels like to families dying from these diseases. We are the faces of grief and suffering behind those headlines.
    246K
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    Sandra Abrevaya
    @sabrevaya
    Feb 14, 2022
    As I lay here with our 4 year old sleeping in my arms, I hear voices coming from downstairs. Brian’s old voice from videos that he’s playing for our 6 year old. When he could speak and joke and dad easily. When we were healthy. We really had it all.
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    Oct 9, 2022
    Birthday eve with my GQ hubby 🔥
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    May 12, 2023
    Today I put our groceries on our credit card because we have nothing left in savings or checking. 24-7 caregiving bankrupts families across the country. I am not sharing this for help, we will find a way through it. I just want the world to understand what ALS is. #EndALS
    227K
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    Sandra Abrevaya
    @sabrevaya
    Jan 21, 2023
    This is my husband. He tells terrible dad jokes. I love him so much. Please #EndALS
    128K