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Grateful to @PeteATurner @jonlg69 and @EchoinRamadi for the opportunity to share my story on @BreakItDownshow #BIDS #IAMALS #NoWhiteFlags #MADALS
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Phil Green
11.9K posts
Phil Green
@pjgreen
Father to 4. Husband to 1. Right-brained.. 2x Rose Bowler. 1x Nat'l Champ. ALS Advocate. PLWALS. Type with my eyes.. #PurpleReign #NoWhiteFlags #NotTodayALS
- Huge shoutout to the Coronado Lifeguards for use of their beach power wheelchair yesterday! It gave me some independence at the beach that #ALS had taken. #NotTodayALS #NoWhiteFlags
- Had lunch at Buffalo Wild Wings today with my 19 year old son. As he was attempting to pay our bill, our server told us that it had been picked up by a generous gentleman two tables over who had watched my son patiently feed me. Thank you kind sir! #RandomActOfKindness
- Was able to get in the pool for the first time this year. It felt great to float around and stretch my legs. #NotTodayALS
- Over the past 2+ weeks, I’ve been doing pool exercises. I struggled to even stand when I started & today I’m knocking out squats in reps of 10! #NoWhiteFlags #NotTodayALS
00:00 - Yesterday, I spent #LouGehrigDay in a clinic getting #NurOwn. Today, I attended my youngest son’s 8th grade promotion ceremony. Next week, I will be at my oldest son’s high school graduation. I don’t believe that I would be here to do either without NurOwn!
- Six years ago, I was on top of the world and oblivious to #ALS. Today, I am no longer oblivious to ALS but still feel like I am on top of the world. #NoWhiteFlags
- ALSland has lost a giant & unrelenting force to do things better, be more patient-centric & on the #ALS clock. I already miss you! You have been a best friend & my partner-in-crime! I will continue to make good trouble for you! I love you @sandymorris333!
- On this day six years ago, I heard those words that nobody should have to hear… You have ALS! Well, I am still here thriving in spite of the disease that tries to keep me down. #NotTodayALS
- 2 years ago today, I was diagnosed with ALS & given 2-5 years to live. Since that day, I have partnered with other amazing people to move mountains in the fight against ALS, & made sure that the important people in my life know how much I love them. #EndALS #Diagnosiversary
- I’m a 50 y.o. husband to an amazing woman & father to 4 wonderful children, living in Temecula, CA. Was a National Champ with @UW_Football & played semi-pro soccer before a successful 25+ career in technology. Was diagnosed with ALS in August 2018. #ALSAwarenessMonth #Day1
- Same clinic. Same respiratory therapist. Same spirometer. Breathing increased by 13% after #NurOwn treatment. 9/13/21: FVC 34% 12/13/21: FVC 32% 3/30/22: NurOwn Treatment 4/11/22: FVC 45% #NurOwnWorks #LivingProof #RealWorldEvidence