ME Association (@MEAssociation) / X

ME Association

33.9K posts

ME Association

@MEAssociation

We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.

Gawcott, Bucks, for all UK

linktr.ee/meassociation

Joined December 2009

Pinned
ME Association
@MEAssociation
May 20
A Step Forward in Recognition: New ‘Very Severe ME/CFS’ SNOMED CT Code The ME Association’s Healthcare 4 ME (H4ME) team are pleased to share an important step forward for people with very severe ME/CFS in the UK. Following an application submitted in January 2026, we can
A Step Forward in Recognition: New ‘Very Severe ME/CFS’ SNOMED CT Code - The ME Association
From meassociation.org.uk
6.4K
ME Association
@MEAssociation
Nov 10, 2020
Stop prescribing exercise for ME sufferers, doctors told | The Times | 10 November 2020 (cutting attached). #NICEdraftguideline #mecfs #cfsme #MyalgicE #pwme #gradedexercise
ME Association
@MEAssociation
Jun 27, 2025
The truth about the welfare concessions The government says existing claimants are protected. But if your condition improves and you have to reapply — or if you become disabled in future — you’re out of luck. That’s not reform. It’s rationing. People with fluctuating
The Truth About the Government’s “Concessions”: They Don’t Go Far Enough - The ME Association
From meassociation.org.uk
9.3K
ME Association
@MEAssociation
Nov 29, 2020
ME Association demands instant corrections to article that appeared in 'The Observer' today (29 November 2020): theguardian.com/world/2020/nov… Full text of our letter appears below. #mecfs #cfsme #MyalgicE #pwme #TheObserver
ME Association
@MEAssociation
Jan 23, 2024
. @itvnews Dragons' Den: ME charities criticise BBC show for 'promoting unproven treatment' "ME charities, including the ME Association, have criticised Dragons' Den for promoting an "unproven treatment" for the condition." itv.com/news/2024-01-2… #pwME #MECFS #MyalgicE
ME charities criticise Dragons' Den for 'promoting unproven treatment' | ITV News
From itv.com
21K
ME Association
@MEAssociation
Aug 15, 2023
Protein found that disrupts energy levels in ME/CFS Catherine Offord, Science Researchers have identified a protein that’s present at unusually high levels in the muscles of people with ME/CFS and that disrupts cells’ ability to generate energy. meassociation.org.uk/t5dy #MECFS
17K
ME Association
@MEAssociation
Mar 14, 2021
Graded exercise therapy is not the right way to treat people with ME or long Covid, argue Dr Charles Shepherd and Rachel Harding | letters, The Guardian | 14 March 2021: theguardian.com/society/2021/m… #GETlost #longcovid #gradedexercise #mecfs #cfsme #MyalgicE #pwME
When rest may be best for post-viral fatigue | Letters
From theguardian.com
ME Association
@MEAssociation
Aug 9, 2023
Graphic - Living with ME/CFS: 'Out of Reach' A graphic that accurately represents the losses that many people with ME/CFS endure due to this awful disease and its debilitating symptoms. Thank you to LuBaker Art for allowing us to share with our followers. Credit:
11K
ME Association
@MEAssociation
Nov 4, 2017
New Scientist: “We’ve shown definitively that it’s a fault in mitochondria,” meassociation.org.uk/2017/11/new-sc… @meassociation #MECFS #Mitochondria
ME Association
@MEAssociation
May 22, 2023
In a first-time test of public opinion, Britain’s oldest charity for people with the energy-sapping disease Myalgic Encephalomyelitis will today start asking hundreds of thousands of sufferers whether they’re satisfied with the support they’re getting from the National Health
45K
ME Association
@MEAssociation
Jul 11, 2024
Always worth sharing, and especially during #DisabilityPrideMonth Credit: @chronicluvclub #MECFS #MyalgicEncephalomyelitis #LongCovid #HiddenDisabilities #InvisibleIlness #Disability #DisabilityPride
12K
ME Association
@MEAssociation
Sep 20, 2020
"Gaslighting from doctors is a huge thing for people with chronic illnesses; it is traumatic to believe that you are causing your own symptoms, and to realise that no one in the medical community is willing to help." Read @littleworldofliv blog here: bit.ly/3cmO2vn
ME Association
@MEAssociation
Jan 26, 2024
BBC pulls Dragons’ Den episode after ‘unfounded claims’ of curing ME theguardian.com/society/2024/j… #pwME #MECFS
BBC pulls Dragons’ Den episode after ‘unfounded claims’ of curing ME
From theguardian.com
8.7K
ME Association
@MEAssociation
Jan 23, 2024
. @DailyMail @BBCDragonsDen entrepreneur who was the first to get 6 offers for device that 'cured' her ME is reported to advertising standards for 'selling snake oil' as doctors slam BBC show for 'misleading desperate patients' The ME association has reported Acu Seeds to the
11K