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It's #HelplinesAwarenessDay, a great opportunity to remind you that for anyone looking for information or support with any aspect of #cysticfibrosis, our friendly Helpline team are here for you. ☎️
Plus, you can now reach us via WhatsApp!
Cystic Fibrosis Trust
33K posts
Cystic Fibrosis Trust
@cftrust
We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
- A deal has been done. Finally, people with #cysticfibrosis living in England will have access to #Orkambi and #Symkevi. We thank the community for their support and campaigning to get access to #LifeSavingDrugsNow! More to follow
- When @BenOxlade1 started documenting the birth of his son Rufus on Twitter back in July, he could never have imagined how his family’s story would capture the hearts and minds of people from all over the world. (1/4) ❄️ bit.ly/3gU4wld
- Remember Tim, who we've been following on his #LondonMarathon journey? Well he just made it extra-special 💍
00:00 - The end of an amazing day for everyone eligible for Orkambi & Symkevi in England as we celebrate access finally arriving. It’s been 4 years of dedication and commitment from everyone in the CF community, but the fight continues until everyone can benefit from #LifeSavingDrugsNow
00:00 - It’s a week until Wear Yellow Day and the perfect weekend to buy something bright and bold for your #CFYelfie. Don’t take our word for it, we’ve a got a different kind of doctor to help remind you all!
00:00 - "My advice to other disabled people would be, concentrate on things your disability doesn't prevent you doing well and don't regret the things it interferes with. Don't be disabled in spirit as well as physically." Prof. Stephen Hawking, seen here with @CF_vs_Everest
- NHS England has announced a deal for access to the life-saving drug #Kaftrio, called #Trikafta in the US, on the day it receives its European licence, bringing hope to thousands across the UK. Read our news story here: bit.ly/3eNlqLV #cysticfibrosis
- BREAKTHROUGH: Deal to be announced today on access to Orkambi, Symkevi and other #LifeSavingDrugsNow for people with #cysticfibrosis in #Scotland. More details to follow after formal announcement.
- We are delighted too @MattHancock, and we pay tribute to the #cysticfibrosis community and everyone who fights for access to #LifeSavingDrugsNow across the UKWe're delighted to announce that @VertexPharma and @NHSEngland have reached an agreement on Orkambi and other cystic fibrosis drugs. 🔽 Watch Health Secretary @MattHancock share his views on this fantastic news. @cftrust | @Daily_Express | #CysticFibrosis | #Orkambi
00:00 - We’ve written to all major supermarkets to tell them that people with cystic fibrosis need their help, right now, to get the food and basic essentials they need. Read the letter here: cysticfibrosis.org.uk/the-work-we-do… #cysticfibrosis #cfandcoronavirus
Replying to @CommonsHealthSimon Stevens closes the session by telling the Committee that this morning @NHSEngland has signed a commercial agreement with @VertexPharma to make available its triple therapy for cystic fibrosis patients--on the very day it receives its European licence- Today, NICE have given approval for the life-changing #cysticfibrosis modulator drugs to be made available on the NHS in England. This follows many years of campaigning by Cystic Fibrosis Trust and people right across the CF community. ow.ly/XGMs50SmgJR
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