ALS affects nerve cells in the brain and the spinal cord. As these cells deteriorate, people living with #ALS lose the ability to walk, talk, eat, and eventually breathe.
Learn more and find resources: bit.ly/Understanding-…
(1/4) We are deeply saddened to share that Pat Quinn, co-founder of the ALS Ice Bucket Challenge passed away at the age of 37. Pat was diagnosed with ALS in 2013 and went on to help popularize the greatest social media campaign in history.
Carmen Schentrup was killed in the Parkland mass shooting. Because #CarmensDream was to become a medical researcher & discover a cure for #ALS, her parents have created the Carmen Schentrup ALS Research Fund. Join us in Carmen's quest to find a cure: bit.ly/2pNCusZ
(2/4) The Ice Bucket challenge dramatically accelerated the fight against ALS, leading to new research discoveries, expansion of care for people with ALS, and greater investment by the government in ALS research.
(3/4) Pat continued to raise awareness and funds for the fight against ALS and our thoughts are with the Quinn family and all of his friends and supporters. Pat was loved by many of us within the ALS community and around the world.
@alsassociation BOT Chair Stephen Winthrop on Hawking: "Most people describe ALS as a disease that, bit by bit, robs a patient’s ability to move and function. But Stephen Hawking has inspired me to focus on what I can do, rather than what my body can no longer do."
(1/2) BREAKING NEWS: @US_FDA approved AMX0035, a new treatment that has been shown to slow progression of #ALS and extend life. This is an amazing development in the fight against ALS, and a meaningful win for the entire ALS community who worked tirelessly to make this happen.
Our hearts go out to Frates family and Boston community. @PeteFrates3 changed the trajectory of ALS forever and showed the world how to live with a fatal disease. His efforts to lead the Ice Bucket Challenge had a significant impact on the search for treatments and a cure for ALS
Hugh Hoffman wanted to help ensure more children don’t have to lose a parent to ALS. His historic $58 million gift will advance more clinical trials, expand clinic access, and provide some financial support for people living with ALS.
Learn more here: bit.ly/hugh-hoffman-g…