ThePOTSPostman (@ThePOTSPostman) / X

ThePOTSPostman

21.8K posts

ThePOTSPostman

@ThePOTSPostman

Just a mailman with #POTS. Here to spread awareness and advocate for those with #dysautonomia #chronicillness

Joined September 2023

Pinned
ThePOTSPostman
@ThePOTSPostman
Feb 2
I used to wonder how I lifted so heavy for so long with hEDS. Turns out my muscles were holding everything together. Literally. They compensated for my lax connective tissue until they couldn’t anymore. That adaptation helped but muscles aren’t designed to replace connective
16K
ThePOTSPostman
@ThePOTSPostman
Sep 27, 2024
My doctor, a board certified neurologist with over 20 years of experience believes I need an MRI. But Frank, from Blue Cross Blue Shield, believes otherwise. What a joke.
6.8M
ThePOTSPostman
@ThePOTSPostman
Feb 19, 2024
I have a customer on my route who has MS. She lives in an apartment complex on the third floor of her building. The mailroom is a good 10 min walk from her building. I saw her mail piling up in her box and I got worried so I went to her building and knocked on her door
542K
ThePOTSPostman
@ThePOTSPostman
Dec 14, 2023
Today I learned, 2 years later, a friend of mine tested positive for Covid 19 in December of 2021. They were asymptomatic at the time but didn’t tell any one of their positive testing. We had a Christmas party which they attended, knowing they were positive. A week later I
497K
ThePOTSPostman
@ThePOTSPostman
Dec 23, 2024
They say to rest 5 minutes before taking blood pressure. Instead, doctor’s offices have you sprint from the waiting room, sit down, and immediately answer 14 questions while checking your vitals. Then they act surprised when our BP is elevated.
140K
ThePOTSPostman
@ThePOTSPostman
Jan 30, 2024
New doctor: You're rather educated about your condition. Me: Yeah. I have to be. I’ve had to teach myself about my illness because doctors not only are uneducated about it but seem to think gaslighting is more appropriate than treatment.
139K
ThePOTSPostman
@ThePOTSPostman
Dec 10, 2023
Doctors say that to understand the fatigue of a person with a chronic illness, a "normal person" would have to stay awake for three days straight and then try to function. But yes please continue to tell me you are just as tired as I am.
144K
ThePOTSPostman
@ThePOTSPostman
Nov 29, 2023
Does anyone else with a chronic illness suffer from the fact that you are still the same motivated driven person you were before your illness but are just trapped inside a body that is constantly fighting against you, fatigued and just needing loads of rest?
116K
ThePOTSPostman
@ThePOTSPostman
Mar 5, 2025
I think fatigue is harder for healthy people to understand than pain. Everyone has felt pain, even if they don’t grasp how severe chronic pain can be. But waking up after 10 hours of sleep feeling just as drained as before? That’s almost impossible for them to comprehend.
49K
ThePOTSPostman
@ThePOTSPostman
Jul 15, 2025
I’m having a hard time explaining this to people. Just because I can do something like the dishes or cook, doesn’t mean it won’t wipe me out. For them it’s nothing, for me it could cost me days. How do you explain that kind of energy disparity to people who don’t get it?
142K
ThePOTSPostman
@ThePOTSPostman
Nov 15, 2024
So I messaged my doctor asking if there were any meds I could trial for my fatigue because it is getting brutal. This was the response I got.
230K
ThePOTSPostman
@ThePOTSPostman
Feb 13, 2024
I wish people understood brain fog is more than just feeling a little groggy. How would you explain your brain fog to others to get them to understand how hard it is to deal with?
218K
ThePOTSPostman
@ThePOTSPostman
Jul 10, 2024
One thing I’ve come to realize is that when you become sick, the majority of work places, not all, but most, will not care. They will forget all the times you helped them, they will forget all the hours you put in, they will forget all the overtime you did, all the projects you
74K
ThePOTSPostman
@ThePOTSPostman
Apr 21, 2024
When someone with chronic illness tells you they are fatigued please understand that it is different from ordinary tiredness. Our fatigue means we are drained, physically, mentally, and emotionally to our core . We have nothing left in us . Trying to function with fatigue
88K