Shaney Wright (@ShaneyWright) / X

Shaney Wright

28K posts

Shaney Wright

@ShaneyWright

@WestHam Fan ⚒ 🏴󠁧󠁢󠁥󠁮󠁧󠁿 | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.

Joined February 2021

Shaney Wright
@ShaneyWright
Apr 16, 2022
In years to come, when the reality of #LongCovid – of mass autoimmune, cardiovascular & neurologic disease – finally hits home, we better not hear from politicians/health leaders lines like "in retrospect, we should've done more/acted quicker" etc... We're telling them RIGHT NOW
Shaney Wright
@ShaneyWright
Feb 15, 2022
Test all #LongCovid patients for cerebral hypoperfusion, endothelial function, dysautonomia, brain hypometabolism, NK cell activity, T-cell function, cytokines, GPCR & anti-ACE2 AABs, microclots, SFN, SvO2 level & CSF abnormalities, & then try & say 'all the tests are normal'...
Shaney Wright
@ShaneyWright
Jun 5, 2022
For me, one of the absolute worst things about having #LongCovid is that my brain just doesn't work properly. The unrelenting derealisation, short term memory issues & more. It cuts into your very sense of self. It's as though the brain is sedated; continually half-asleep.
Shaney Wright
@ShaneyWright
Jan 10, 2023
Never realised that #LongCovid patients referencing peer-reviewed scientific studies, and sticking to the biomedical science like glue in their quest for proper, effective treatments to what is a life-altering and chronic condition, would offend so many doctors. Just incredible.
123K
Shaney Wright
@ShaneyWright
Dec 5, 2022
It is unbelievable that major #LongCovid clinics, 2yrs on from establishment, aren't doing endothelial function, venous blood oxygen, microclot & hyperactivated platelet, cytokine, t-cell function, dysautonomia & MCAS testing on every Long Covid patient who comes through the door
Shaney Wright
@ShaneyWright
Jan 29, 2022
I can honestly say that having had #LongCovid for 22 months, I haven't once felt close to recovery. This illness isn't improving for me. It just goes on. I might have a *relatively* better day once in a blue moon but that's all they are; still nowhere near normal. #TreatLongCovid
Shaney Wright
@ShaneyWright
Jul 30, 2022
I personally know 5 people who developed high blood pressure (with other new health issues) following Covid, & 4 of them wouldn't necessarily class themselves as having #LongCovid. Far from being overestimated, the hidden, long-term burden of the virus is going under-the-radar.
Shaney Wright
@ShaneyWright
Feb 5, 2022
If I didn't have #LongCovid, didn't know ppl with it & didn't follow research, I likely wouldn't think of it as the utterly devastating, life-ruining, chronic illness it actually is if all I kept reading/hearing was, "sufferers had lingering symptoms for several weeks or months".
Shaney Wright
@ShaneyWright
Sep 10, 2022
For those with #LongCovid, 'Living with Covid' literally means living with a chronic, immune-mediated, small-vessel vasculitis that can't currently be treated by modern medicine. That's the reality for millions across the globe.
Shaney Wright
@ShaneyWright
Nov 5, 2023
There are 3 eye tests that've been shown in studies to effectively distinguish #LongCovid patients from controls. Nearly 4 years on, none of them have yet been rolled out clinically, & I can guarantee you that virtually no-one staffing a Long Covid clinic is aware of any of them.
140K
Shaney Wright
@ShaneyWright
Mar 4, 2022
This #LongCovid tinnitus is very close to being literally insufferable. It's incessant.
Shaney Wright
@ShaneyWright
May 15, 2022
Why do we have people literally obsessing over whether #LongCovid prevalence is 5, 15 or 30% of those who get Covid, when the bottom-line is that millions across the world are now ill with a debilitating, multisystem, treatment-less condition, notwithstanding the denominator?
Shaney Wright
@ShaneyWright
Mar 26, 2022
Tonight: - Heart rate 120bpm just sitting on sofa; - Eyes stinging/ watering; - Blaring tinnitus; - Toes deep purple; - Struggle to bend fingers on right hand; - Head pain/ neck pain/ rib pain. This is what Saturday nights now consist of. 2 years of #LongCovid. No end in sight.
Shaney Wright
@ShaneyWright
Oct 6, 2023
Don't know how many times 'experts' have to be told this, but #LongCovid isn't prolonged recovery, lingering symptoms or a slow return to baseline. It's a full-blown, chronic, neuroimmune & microvascular disease triggered by SARS-CoV-2 infection that has no effective treatments.
65K