Raiden Science Foundation (@RaidenScience) / X

Raiden Science Foundation

253 posts

Raiden Science Foundation

@RaidenScience

Give kids suffering from UBA5 disease a chance to live a healthy life.

Joined February 2022

Pinned
Raiden Science Foundation
@RaidenScience
Feb 11, 2025
🎧 Tune in to our podcast episode sharing Raiden's journey. Produced by @UMassChan, Real Diseases, Real Stories highlights families changing the world of rare diseases. Listen to our episode & more here: umassmed.edu/rarediseasesre… #RareDiseases #UBA5 #RareDiseasesRealStories
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Raiden Science Foundation
@RaidenScience
May 16, 2022
We thank Dr. Helen Chen @helenc327 for her #research efforts in creating more than just #hope for #kids impacted by #UBA5 disease and other #RareDiseases. Dr. Chen is a Senior Researcher from @StJudeResearch Center of Pediatric Neurological Disease Research.
Raiden Science Foundation
@RaidenScience
May 5, 2023
We made it @StJudeResearch to finally meet @hcmefford and check out the UBA5 organoids created by @helenc327 in real time! 😱🧫 #uba5 #research #progression
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Raiden Science Foundation
@RaidenScience
Oct 1, 2023
💔 Two beloved UBA5 warriors have earned their wings this week. Our hearts ache as we remember their strength and courage during their journey. Please join us in keeping their families and our rare community in your thoughts and prayers during this challenging time. 🙏
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Raiden Science Foundation
@RaidenScience
Oct 21, 2024
Thank you, Cleveland Gaming Classic community. Thank you, Mortal Kombat Kommunity. Thank you to everyone for your ongoing support. ❤️💙💛 Every dollar we raised goes directly to #RareDisease research. #UBA5 #Hope #Cure
Cleveland Gaming Classic 🔜 Sept 11 - 13, 2026
@GameOnCleveland
Oct 21, 2024
Thank you helping raise over $35,000 for the @RaidenScience in our CGC for the Cure campaign. This was our largest-ever fundraising campaign for a charity partner - and we have YOU to thank! @KerriAnnGallery @noobde @therealsaibot @youngsaibot #charity #games #ohio #cle
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Raiden Science Foundation
@RaidenScience
Mar 28, 2023
Big thank you to the @thegamehers community for supporting our fight against UBA5 disease! Shout out to the streamers that took part in the Ambassador Dream Stream to help raise awareness. ❤️ @Lgndofthestar @ZeldaandFairies @tygarlily @Girl9552Gamer @Emzii192
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Raiden Science Foundation
@RaidenScience
Nov 28, 2023
Thank you for hosting the charity stream on Twitch today @EsfandTV! What an incredible amount raised through your community and the awareness that was raised as well. ❤️
Esfand.TV
@EsfandTV
Nov 28, 2023
INSANE!!! Over $10,000 raised on stream for @RaidenScience today! I'm so thankful and proud to have such a charitable community! GREAT JOB GUYS!
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Raiden Science Foundation
@RaidenScience
Sep 14, 2023
Exciting update from @OHSUNews The latest UBA5 research from OHSU is bringing new hope to rare disease families! This study establishes a framework that can lead to the development of life-saving treatments from diagnosis.
OHSU researchers now can predict severity of a rare genetic disease in children
From news.ohsu.edu
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Raiden Science Foundation
@RaidenScience
Nov 26, 2023
Our latest video Hope Again 💙. Your views light our path to greater awareness and change. We need your support as we unite for #DearRaiden, advance the fight against #UBA5, and elevate voices in the #RareDisease community. Donate 🔗 ❤️ raiden.raisely.com
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Raiden Science Foundation
@RaidenScience
Mar 1, 2024
The momentum of our UBA5 research is a testament to the dedication and passion demonstrated by our research partners nationwide. We have made remarkable progress over the past two years, all thanks to them. ❤️❤️❤️ @UMassChan @OHSUNews @StJudeResearch @bcmhouston
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Raiden Science Foundation
@RaidenScience
Oct 9, 2023
Heartbreaking news as we learned that another UBA5 child earned their wings this weekend. This unexpected loss, marking the third in two weeks, weighs heavily on our hearts 🕊️💔 Please keep our UBA5 community in your thoughts and prayers as we navigate this difficult time. 🙏
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Raiden Science Foundation
@RaidenScience
Oct 8, 2024
3 years ago today, we took the first step towards writing down our early ideas and research goals on paper. This was the start of creating a pathway for accelerated translational research, all with the ultimate goal of developing a therapy for UBA5 disorder. @RuthJeanNapier
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Raiden Science Foundation
@RaidenScience
Aug 16, 2023
Thanks again @humble for the incredible support! The $41,521 raised will go towards much needed rare disease research. 🙏🔬 #Gratitude #RareDisease #UBA5 #Research #BetterTomorrow #Hope
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Raiden Science Foundation
@RaidenScience
Feb 28, 2023
Kicking off #RareDiseaseDay with the first Twitch stream for @thegamehers Ambassador Dream Stream benefiting the Raiden Science Foundation later today!
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