I’m Jake Schneider — the 7th person in the world to receive a Neuralink brain implant. 🧠⚡
I have ALS, but I’m tweeting this… with my mind.
Life at the intersection of hope and technology. Wired for the impossible.
Some charge their car, I charge my brain. 🧠⚡️
This is what charging my #Neuralink brain inplant looks like! A disc slides into the beanie that plugs into the rechargeable silver base. I just sit back and relax! #BCI#FutureIsNow
I’m 34.
My mind is sharp.
My body is failing.
ALS doesn’t care about age, dreams, or plans — it just moves in and takes everything.
Here’s what living with it is like. 🧵
I share this not for pity, but for awareness:
ALS research is underfunded compared to other fatal diseases.
Every voice matters in pushing for change.
If my story moves you, share it. Be part of the fight.
I’m one of the first 9 people in the world with a Neuralink brain implant.
It’s not a cure — yet. But it’s a bridge.
A way to keep communicating, even as my body shuts down.
Hope is a powerful drug.
ALS is trying to take my body.
I’m using my voice — while I still can.
If you want to follow my journey, the science, and the fight for a cure… stay here.
We’re just getting started.
#ALS#Neurodegenerative#Hope
Sitting here charging my Neuralink brain implant and my son says “Dada, you should get a superhero belt to hold your charger.” All of the feels right now. @neuralink#ThisIsMyWhy#DadwithALS#Neuralink
Friends don’t always know what to say. Some drift away.
Family becomes your lifeline.
My son is my anchor — he keeps me fighting for more time, more memories.
ALS is 100% fatal.
Most people die within 2–5 years of diagnosis.
There is no cure.
But there is still life to live. I refuse to let ALS define all of me.
The world sees the wheelchair, the frail body.
What they don’t see:
The mental exhaustion of planning for decline
The grief for things I can’t do with my son
The pressure to make every day count