Quick update on NRG-GI011 (LAP100) pancreas cancer RCT: accrual status, recent amendment, etc.
Hope this is helpful & appreciate the support for our trial 🙏! @NRGonc
Ceci died unexpectedly on Dec 5, 2022 at 14 months old. She was our daughter & we are devastated. She was so smart, smiley, stubborn & squishy. She adored the rabbits in our yard & playing with her nanny “Shang NaiNai” & sisters. She is loved & missed beyond comprehension (1/5).
We created a donation site in honor of Ceci. Funds will support research at Children’s Medical Center Dallas, where Ceci received outstanding care. Please RT & share. @childrens@utswnews (5/5)
Ceci had limited mobility of her right leg, but despite whatever pain or discomfort she experienced, she eagerly fought to stand and keep up with her sisters. All she wanted was to share laughs with those around her. Ceci was so spoiled and so happy (3/5).
Ceci had gross motor delay and right lower extremity weakness. After extensive work-up, including an open neurosurgical biopsy, she was found to have a tumor in the lumbar and sacral nerve roots. The exact tumor origin or type is still unknown (2/5).
I think the NIH/NCI should create its own FREE open access journal and
1) Publish all NIH funded research
2) Pay reviewers ($ or some sort of credit system)
Better quality reviews, research transparency (& less profit for publishing companies/predatory journals).
In this week's @JAMA_current, my husband @EthanLSanford writes about the deaths of our daughter Ceci and his patient Terry.
About how grief has informed his practicing of medicine and living a fuller life.
Please read about our girl and share.
Pancreas Cancer 101 video!
25 minutes on diagnosis & management of pancreas cancer, including discussion of several ongoing trials.
Slides 🧵and full video link below. 1/8
Happy to share that I have been promoted to Associate Professor! 😀
Getting to practice academic medicine is a privilege in many ways.
I am grateful to my colleagues, mentors, patients, & family.
Wow. Ethan’s piece on Ceci has received more than 30,000 views.
Thanks to all who read, shared, reached out ❤️.
The end of 2022 was tough, but we had so many happy moments with Ceci.
Sharing a few here - her birth day, etc.
jamanetwork.com/journals/jama/…
HCC 101!
For the longest time, HCC was a bit of a blackbox to me.
So for today’s ROVER presentation, I started off with a 5-slide summary of HCC basics: a 20,000 foot overview.
Sharing here. Short thread 🧵 1/6.
After our daughter Ceci died at 15 mo of a paraspinal tumor, we’ve been committed to supporting pediatric cancer research.
We’re honored this year's Cattle Baron’s Ball will establish Ceci’s Fund through the American Cancer Society.
Please share/donate💕
cattlebaronsball.com
A 33 min overview of GI rad onc!
I made this video for an oral boards review course, sharing here.
It’s just 5 slides (below) & me talking the whole time, so you can just listen.
Hope it’s helpful! Link next post, and short 🧵.