Neurologist Mom (@NeurologistMom) / X

Neurologist Mom

6,063 posts

Neurologist Mom

@NeurologistMom

A neurologist, M.D., mother of a 18-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.

Seattle, WA

neurologistmom.substack.com

Joined March 2023

Pinned
Neurologist Mom
@NeurologistMom
May 12, 2023
I have devoted my entire life and career to advocating on behalf of Alzheimer's patients, their families, and their caregivers. I've managed treatment plans for thousands of patients and conducted hundreds of social initiatives. Now I am the mother of a 14-year-old with
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Neurologist Mom
@NeurologistMom
Aug 23, 2024
I remember the time when I gave birth to my daughter. They had to keep me in the hospital for 10 days because I wasn’t feeling well. Every time I tried to stand up, I fainted. At one point, I even stopped breathing, according to my husband. He panicked and called a friend who was
6M
Neurologist Mom
@NeurologistMom
Aug 23, 2024
Replying to @NeurologistMom
Even though both my husband and I are physicians, we experienced this. I can’t imagine what it’s like for those who aren’t in the medical field.
712K
Neurologist Mom
@NeurologistMom
Jun 20, 2023
- My daughter learned how to read at 2 years old. - At 6, she was accepted into a prestigious conservatory for piano as the most talented applicant. - She played complex pieces by Chopin, Liszt, Mozart, Rachmaninoff, and others with ease from a young age. - When they tested her,
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Neurologist Mom
@NeurologistMom
Aug 7, 2025
He died from Long COVID today. His words: “I’ve experienced more discrimination and stigma for being openly disabled by #LongCovid than I ever did for being openly gay” When will the gaslighting stop? How many more need to die?
Jon Douglas
@atranscendedman
Aug 7, 2025
New York designer Derrick Kardos, known for Black Swan and The Departed, has died at 53 from complications of Long COVID. He was a fierce creative force and advocate for Long COVID recognition. hollywoodreporter.com/movies/movie-n…
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Neurologist Mom
@NeurologistMom
Aug 23, 2024
Replying to @lennonfan69
I’m so sorry😔💔
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Neurologist Mom
@NeurologistMom
Aug 11, 2023
It's been a while since I've been active here. I recently traveled to Turkey to obtain a list of medicines for my daughter, as per the prescribed regimen that I and some colleagues arranged. I took all the necessary precautions, including using nasal protective spray. I was
462K
Neurologist Mom
@NeurologistMom
Jan 25, 2025
I’ve lived in two countries and visited over ten others, treating patients across Europe, but I’ve never seen as many people outside with clear signs of Parkinsonism (gait patterns, hypomimia, bradykinesia, anteflexed posture, etc.) as I have in the US.
229K
Neurologist Mom
@NeurologistMom
Jul 5, 2025
I promised you a long time ago to share how to make yogurt in the traditional Turkish way (where yogurt was invented). Here I am, sharing it with videos and explanations. If you haven’t succeeded yet, feel free to share your experience. I’ll do my best to give you my opinion⬇️
Neurologist Mom
@NeurologistMom
Jun 30, 2025
The yogurt I made after a long break. Nothing tastes like homemade yogurt.
00:00
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Neurologist Mom
@NeurologistMom
Oct 7, 2024
Replying to @MorbidKnowledge
The worst part is that he called Ikbal Uzuner’s mother to the place where he brutally m*rdered her daughter, threw her daughter’s d*capitat*d head in front of her, and made her watch while sitting on the wall😔#turkishwomenareindanger
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Neurologist Mom
@NeurologistMom
Mar 3, 2025
As a physician for 25 years, I never imagined I would feel this level of anxiety before every health appointment my daughter or I have. What is happening here is not right and not our fault.
44K
Neurologist Mom
@NeurologistMom
Aug 21, 2024
I feel frustrated by the attitude of healthcare professionals towards masking. My husband is almost the only one in his department at the hospital who wears a mask. Last week, one of his co-workers was coughing without a mask. He had COVID but 'cleared' himself with a recent
51K
Neurologist Mom
@NeurologistMom
Aug 20, 2023
I came to the Starbucks drive-thru as I always do every morning. Since November 2022, I have been coming here because my daughter cannot tolerate the scent of coffee at home. The girl at the store, who sees me daily, asked how I was doing and noticed that I looked very tired. It
117K
Neurologist Mom
@NeurologistMom
Sep 6, 2024
The Alzheimer’s Conference in California opened with the statement, “We’re so happy to have overcome the hard times of the pandemic and to be together again.” Guess what’s not a topic at the conference? “COVID and dementia” 🤷🏻‍♀️ #LongCovid
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