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#MEAction Network
@MEActNet
A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing linktr.ee/meactnet
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meaction.net
Joined May 2014
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  • Pinned
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    #MEAction Network
    @MEActNet
    Apr 2
    This #MillionsMissing, we are #FrailAndFurious! Injustices are happening worldwide because ME is not taken with the seriousness we deserve. Let's come together to show the world how devastating this disease is. Join the fight: millionsmissing.org
    New Frail and Furious logo plus the MEAction logo on red slightly swirled background. "Frail and Furious" is shown on a swath of white paint. Underneath is the text "#MillionsMissing" but the second I is the outline of a person. MEAction logo is a circle with the text #MEAction in the circle.
    1.3K
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    #MEAction Network
    @MEActNet
    Jun 18, 2022
    Update: Jen has been found and is safe. Thank you for spreading the word, and acting so quickly. We are so relieved with this news and now we ask for privacy for Jen and Omar. Thank you for your love and for your swift response. ❤️❤️❤️ #findjen #MissingPerson
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    #MEAction Network
    @MEActNet
    May 12, 2023
    We are putting the finishing touches on our #MillionsMissing art installation & press conference! Join us in person at the Washington Monument or online at 2 pm ET & throughout the day. Your pillowcases are the perfect final touch. Thank you! millionsmissing.org #pwME #pwLC
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    161K
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    #MEAction Network
    @MEActNet
    Sep 18, 2022
    MEDIA ALERT: People with #MECFS and #LongCovid are protesting in front of the White House TOMORROW to demand President #Biden declare Long COVID & ME/CFS a national emergency. Watch LIVE here at 12 p.m. ET. bit.ly/DCprotest22 #MillionsMissing, #NationalEmergency, #press
    meaction.net
    #MEAction Network
    Our movement fights for all people with ME/CFS and Long COVID to have access to compassionate and effective care. Join us!
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    #MEAction Network
    @MEActNet
    Jun 18, 2022
    We have an emergency in our community. Our founder, Jennifer Brea, has been missing for over 48 hours and was last seen in Miami, Florida. We are concerned for Jen’s well-being as she is in the midst of a mental health crisis. We are asking for your help to spread the word.
    Text: MISSING PERSON - Name: Jennifer “Jen” Brea - Missing since: June 15, 2022 - Last seen: Near Gate D37 at Miami Int’l Airport - Age: 39 - Height: 5'6" - Weight: 135 lbs - Race: Mixed - Sex: Female - Eyes: Brown - May be suffering a mental health crisis. IF FOUND, PLEASE CONTACT: findjen@meaction.net Picture (left) Jen Brea smiling outside on a trail next to some trees. She’s wearing black pants, black shirt, and black jacket - Picture (right) close up of Jen Brea smiling in front of a window.
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    #MEAction Network
    @MEActNet
    Sep 19, 2022
    #MEAction in Washington DC to Stop #LongCovid x.com/i/broadcasts/1…
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    #MEAction Network
    @MEActNet
    Sep 19, 2022
    Video from the protest today! Protesters with #LongCovid & #MECFS lay down on the #WhiteHouse sidewalk today risking arrest to tell @POTUS that millions are being disabled from post-viral disease, including Long COVID & ME/CFS. Join our post-protest chat at 7 pm ET here! #press
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    #MEAction Network
    @MEActNet
    Dec 22, 2023
    Replying to @MEActNet
    It is with deep sadness that we share with you that we lost one of our heroes and champions of ME yesterday. Beth Mazur passed away after battling ME for 15 years. She was a selfless beacon of hope & light in our community. She demonstrated an unwavering commitment to the cause.
    Photo of Beth Mazur smiling a beautiful big smile.
    242K
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    #MEAction Network
    @MEActNet
    May 26, 2023
    16M Americans have Long COVID—as of last year—& half of them meet the diagnostic criteria for ME/CFS. This has tripled or even quadrupled the number of people living with ME/CFS in the US to apx 9M. Every number has a name & every name is at the core of a story of profound loss.
    00:00
    67K
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    #MEAction Network
    @MEActNet
    Sep 19, 2022
    TODAY IS THE DAY WE PROTEST! We are gathering at the White House & online from our beds to demand bold, urgent governmental action for the millions of people living with #MECFS #MyalgicEncephalomyelitis, #LongCOVID, & other infection-associated, complex- chronic diseases.
    Graphic in red, black & white. 2022 #MillionsMissing Today we protest to demand bold, urgent governmental action for the millions of people living with myalgic encephalomyelitis (ME), Long COVID, and other infection-associated, complex- chronic diseases. Sept. 19th
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    #MEAction Network
    @MEActNet
    Sep 19, 2022
    Civil Disobedience has begun the next stage- lying down and blocking the sidewalk. Right now honestly our #pwME & #LongCovid probably are slightly relieved to lie down but we know the heat is rough! Send your love & SHARE the livestream. #NationalEmergency #CovidIsNotOver
    Protestors lying on the sidewalk in front of the White House holding signs
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    #MEAction Network
    @MEActNet
    Nov 16, 2022
    "Alarmingly, more and more patients are also meeting the criteria for myalgic encephalomyelitis (ME), which in its severe form has been compared to 'late-stage AIDS, multiple sclerosis and kidney failure.'" New article by @SheanaOchoa featuring @r_prior.
    Ryan Prior, author of "The Long Haul."
    How patients wrote 'the first textbook' on long COVID
    From latimes.com
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    #MEAction Network
    @MEActNet
    May 12, 2023
    We are at the Washington Monument for a powerful #MillionsMissing art installation & press conference. We unite to honor one another, uplift our community & show the world that while we might individually be stuck in our darkened rooms, we can come together to demand to be seen.
    Graphic illustration of rows of cots lined up in front of the Washington Monument . "Millions Missing May 12, 2023 Washington D.C. " is written at the top.
    30K
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    #MEAction Network
    @MEActNet
    Sep 19, 2022
    The #LongCovid & #MECFS community will protest at the White House TODAY at 12 pm ET to tell @POTUS that #CovidIsNotOver & to call on him to declare a #NationalEmergency. Activists are planning acts of civil disobedience to send a message. Livestreamed here. #MillionsMissing
    People sitting around a table making protest signs. The person pictured has on a mask