Pinned
A global story of urgency, love, and science, now ready for the world.
Matter of Time is available to Netflix members everywhere on February 9.
EB Research Partnership
2,517 posts
EB Research Partnership
@EBResearch
EB Research Partnership funds research aimed at treating and curing Epidermolysis Bullosa (EB).
🦋 #HealEB
🔬 Find a cure
- Hey @elonmusk! Thanks for inspiring @elongateog to use the power of #cryptocurrency for good. As this week's charity spotlight, #ELONGATE has shared our mission to #healEB with thousands of generous #crypto donors. We hope to see you Sunday 12pm ET for the Charity Party!
- THANK YOU @elongateog for a generous $150,000 gift to launch our #CryptoForCures Fund! We aim to raise $1M in #cryptocurrency by the end of 2021 to fund groundbreaking #tech to accelerate a cure for EB! Join the fund by making a #crypto donation at ebresearch.org/cryptocurrency
- According to @chrishemsworth, John Hudson is a true hero. He lives with the equivalent of 3rd degree burns all over his body due to Epidermolysis Bullosa (EB). Learn about our mission to #healEB at @elongateog's Charity Party on Sunday at 12pm ET! Follow #ELONGATE for details 💫
00:00 - This week, we're @elongateog's Charity Spotlight! We're co-hosting their Charity Party on Sunday 12PM ET. Tune in to learn more about our progress to cures and how #cryptocurrency donations can fuel research. Follow @elongateog for updates! Donate #crypto: ebresearch.org/cryptocurrency
- The announcement you've all been waiting for ✨ Spider-Man & MJ have teamed up to #healEB. @Zendaya will join her #SpiderMan costar @tomholland1996 at #VentureIntoCures on Nov 18 at 8pm EST to raise awareness & funds to cure EB. Register to watch at l8r.it/m1nb 🦋💖
- .@oliviarodrigo has generously donated this signed #Gibson guitar for auction to benefit #VentureIntoCures! Bid now at bidpal.net/ventureintocur… through Dec 2 at 11:59 PM ET. All proceeds go directly to critical research to #healEB. Bid high and bid often!🦋💖
- Announcing this year's host of #VentureIntoCures, @TomHolland1996! We are beyond excited to have #TomHolland and @BrothersTrustUK join us to host this year's digital stream on Nov 18 alongside courageous EB families and celebrity friends. RSVP at ventureintocures.org 🦋✨
00:00 - Our friend @thatgeekAaron spoke to @AdamSandler about how he doesn't let EB stop him. This week, we're co-hosting @elongateog's Charity Party on Sunday at 12PM ET. Join us to learn more about our mission to #healEB and how #crypto can fuel life-saving research. #ELONGATE4CHARITY
00:00 - We're co-hosting #ELONGATE's Charity Party TODAY at 12pm ET! Follow @elongateog for details on how to join us. We'll discuss our innovative model to #healEB and find cures for all #raredisease, as explained here by #BradleyCooper, and how #crypto can power life-saving research.
00:00 - Thank you @elongateog for highlighting our mission to #healEB! Join us at the Charity Party this Sunday at 12PM ET 🦋✨
- HUGE thank you to @TomHolland1996 for hosting #VentureintoCures 2021!!! We are eternally grateful. See you next year!! ❤️🦋❤️🦋 VentureintoCures.org
- Thank you @elongateog for donating $150K as the Founding Member of our #CryptoForCures Fund! We want to raise $1M in #cryptocurrency this year for innovative research to #healEB by 2030. Donate #Crypto: ebresearch.org/cryptocurrency Learn more: prn.to/2RVL7Dz #ELONGATE 💖🦋
