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Duchenne UK
@DuchenneUK
Duchenne UK has one clear aim – to end Duchenne, a devastating muscle-wasting disease. We are the leading Duchenne muscular dystrophy charity in the UK.
duchenneuk.org
Joined October 2012
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5,095
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  • user avatar
    Duchenne UK
    @DuchenneUK
    Jun 17, 2023
    We're delighted to announce that our founders, Emily Reuben and Alex Johnson, have been recognised in His Majesty The King’s Birthday Honours list. They have been awarded an OBE for their services to charity and to people with Duchenne muscular dystrophy.
    Duchenne UK founders awarded OBEs in King’s Birthday Honours - Duchenne UK
    From duchenneuk.org
    161K
  • user avatar
    Duchenne UK
    @DuchenneUK
    Jun 29, 2023
    In case he is thinking of looking for a new suit, Spiderman actor Tom Holland checked out our SMART Suit when we met with @alexswish and @BrothersTrustUK to discuss its development! A huge thank you to Tom and his family for their support for the DMD community!
    15K
  • user avatar
    Duchenne UK
    @DuchenneUK
    Jul 20, 2016
    Think @owen_faz is strong? Try the World’s Strongest Boys goo.gl/80yvAw #WorldsStrongestBoys @DuchenneUK
    00:00
  • user avatar
    Duchenne UK
    @DuchenneUK
    May 31, 2022
    A big thank you to @eddiemarsan for recording this special message! Duchenne UK CEO Emily will be going out of her comfort zone and cycling to Paris for the first time for this year's #DuchenneDash - show her some support at bit.ly/duchennedash and help us to #EndDuchenne
    00:00
  • user avatar
    Duchenne UK
    @DuchenneUK
    May 14, 2024
    We are delighted to announce that Her Majesty The Queen has chosen to continue her role as President of the charity following a review of Patronages by the Royal Household. 🔗duchenneuk.org/her-majesty-th… (Photo credit: Hugo Burnand)
    2.5K
  • user avatar
    Duchenne UK
    @DuchenneUK
    Nov 26, 2019
    Today our cofounder Emily went to speak @Saracens⁩ training ground and meet many of the amazing players and staff to explain a bit more about our work and how they can get involved in the charity partnership #togethersaracens
  • user avatar
    Duchenne UK
    @DuchenneUK
    Jun 9, 2018
    We made it! 160 cyclists 300km Over £800k raised !!! Thank you so so much to everyone involved 🚴‍♂️🚴🏻‍♀️💙💙💙💙 To donate: bit.ly/ddash18 OR text: DUCH10 £10 TO 70070 #duchennedash
  • user avatar
    Duchenne UK
    @DuchenneUK
    Nov 22, 2019
    We can't wait for tomorrows match! Thank you @Saracens for this great opportunity to raise awareness for Duchenne muscular dystrophy. @alljoinjack @DefndwilliamDMD
  • user avatar
    Duchenne UK
    @DuchenneUK
    Jul 19, 2016
    Santander support the campaign via their ambassador @J_Ennis thank you! goo.gl/80yvAw #WorldsStrongestBoys
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  • user avatar
    Duchenne UK
    @DuchenneUK
    Jan 29, 2018
    Thank you @theJeremyVine @BBCRadio2 for inviting Emily on to the show and helping us to raise awareness for Duchenne muscular dystrophy
  • user avatar
    Duchenne UK
    @DuchenneUK
    Feb 28, 2023
    Thank you so much to @SkyNews for welcoming us this morning, and to the people of @PostcodeLottery for supporting the suit - helping people with Duchenne Muscular Dystrophy to restore function to their arms, helping them to chase their dreams 🙌 Now it's time to #GetEliToGlasto
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    15K
  • user avatar
    Duchenne UK
    @DuchenneUK
    Jun 8, 2019
    We made it to Paris! AND WE RAISED A MILLION POUNDS! A huge HUGE well done to our incredible Dashers, and big THANKS to our amazing support team, our sponsors and all those who have donated. Please donate by following this link bit.ly/ddash19 and help us #ENDDUCHENNE
  • user avatar
    Duchenne UK
    @DuchenneUK
    Jan 12, 2024
    Breaking news! Vamorolone, the first treatment for all DMD patients regardless of ambulatory status has been approved in the UK! The drug (sold under the brand name Agamree) has been approved for the treatment of DMD in patients aged 4 yrs+ by the MHRA.
    First treatment for all patients with DMD approved in UK - Duchenne UK
    From duchenneuk.org
    3.3K
  • user avatar
    Duchenne UK
    @DuchenneUK
    Nov 13, 2017
    We are very pleased to share with you that the founders of Duchenne UK have been honoured by the Prime Minister's... fb.me/K2cXFPUE