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Whitney Dafoe
@DafoeWhitney
Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Stanford, CA
lnk.bio/whitneydafoe
Joined December 2019
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    Whitney Dafoe
    @DafoeWhitney
    Mar 20, 2025
    ✏️ My ME/CFS Blog: whitneydafoe.com/mecfs ❓What is ME/CFS? whitneydafoe.com/mecfs/whatisme… 👤 My Story: whitneydafoe.com/mecfs/mystory 📄 ME/CFS Resources: whitneydafoe.com/mecfs/resource… 🙏 Donate to ME/CFS Research: whitneydafoe.com/donate ⤵️ Useful Document Downloads whitneydafoe.com/mecfs/download… 🖼️ My
    37K
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    Whitney Dafoe
    @DafoeWhitney
    Feb 4, 2025
    No one who hasn't experienced chronic illness will understand the devastating grief of letting go of another day of your life. When you try to be active whatever that means for you and you realize you just can't do it today, that you have to let the day go and hope for tomorrow.
    48K
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    Whitney Dafoe
    @DafoeWhitney
    Apr 9, 2024
    New Severity Scale for ME/CFS I wrote this new severity scale for ME/CFS about 2 years ago.  I really wanted to express how severe the illness can actually get which is not at all reflected in our current mild-moderate-severe-v.severe scale.  And I wanted to make it more
    I wrote this new severity scale for ME/CFS about 2 years ago. I really wanted to express how severe the illness can actually get which is not at all reflected in our current mild-moderate-severe-v.severe scale. And I wanted to make it more accurate to our lives. It’s not perfect, I know, mostly because every ME/CFS patient is so different.
    192K
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    Whitney Dafoe
    @DafoeWhitney
    Sep 7, 2022
    It’s ok that I accomplished nothing today but roll over in bed. It’s ok. I am not what I achieve or produce. I am the same person on a good day when I create works of beauty as I am on a day when I lay in desolate slumber. No matter what I do or achieve I am always glorious.
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    Whitney Dafoe
    @DafoeWhitney
    Oct 1, 2022
    When someone questions the legitimacy of your illness, it is a reflection of them, not you. it is them not being able to accept the fact that bad things do indeed happen to good people, and that they too could fall sick to an illness with no cure or treatments. #MECFS
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    Whitney Dafoe
    @DafoeWhitney
    Jul 17, 2022
    Happy Birthday Ron Davis! Happy Birthday to my father! The most dedicated ME/CFS researcher in the world, who will stop at nothing until he finds a cause, diagnostic and a cure for us all. And the most caring, loving, kind father I could ever imagine. 1/4
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    Whitney Dafoe
    @DafoeWhitney
    Feb 17, 2025
    I started eating real food again in 2024!…I have now stopped the Peptamen food formula completely, and get all my calories from real food!...And I want to tell you because I want you to hear this story!...what will 2025 bring? #MECFS New post on my blog:
    whitneydafoe.com
    I Started Eating Food Again in 2024...What Will 2025 Bring?
    I started eating real food again in 2024!...I have now stopped the Peptamen food formula completely, and get all my calories from real food!...It has come time that I feel stable enough with this new...
    69K
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    Whitney Dafoe
    @DafoeWhitney
    Oct 26, 2022
    I can’t wait for the day there is a diagnostic test and we stop having to listen to "recovery stories" from people who had "fatigue".
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    Whitney Dafoe
    @DafoeWhitney
    Jan 16, 2023
    It constantly amazes me that no matter how much "healthy stuff" I give myself, it has no affect on ME/CFS. I take a million supplements that "should" help my body. But it’s like throwing confetti at a brick wall. The party never reaches the other side. #MECFS
    39K
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    Whitney Dafoe
    @DafoeWhitney
    Nov 8, 2024
    I have a severe iron deficiency. There is a nationwide shortage of the one brand of iron infusions my insurance will cover. They won't cover the other brand. That brand costs $1800 per infusion. In Germany, an iron infusion costs €8. WTF is wrong with this country? #MECFS
    40K
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    Whitney Dafoe
    @DafoeWhitney
    Oct 21, 2022
    ME/CFS on the front page of the SF Chronicle! #MECFS
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    Whitney Dafoe
    @DafoeWhitney
    Dec 9, 2024
    I've been bedridden for 12 years. Last night I dreamt of running for the first time. And not just running, but running in a race and barely missing first place. My legs moving, muscles firing. The ground under my feet. The wind and sweat on my face. It was glorious. #MECFS
    18K
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    Whitney Dafoe
    @DafoeWhitney
    Oct 20, 2024
    I want to wake up feeling refreshed and inspired. I want to feel excited about a project. I want to then sit down and work on it until it's finished. No pacing, breaks, PEM, months of crashing delaying things, brain fog. Just ideas and action like the good old days. #MECFS
    15K
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    Whitney Dafoe
    @DafoeWhitney
    Feb 27, 2023
    Everyday upon awaking with ME/CFS, it is a battle to find the energy, motivation and sense of purpose to get up and start another day of desolation; To re-find those shattered bits of life amongst the wreckage. It is a battle we must fight every single day. #MECFS
    31K