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CureDuchenne
@CureDuchenne
We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
Newport Beach, California
Joined April 2009
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    Tweet and RT: #WPMOYChallenge + Matthews to help @ClayMatthews52 win $25,000 for #CureDuchenne! We need everyone's help!
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    Starting tweeting! Every tweet with #TheDeed from now until 8 PM will raise $1 for #CureDuchenne and @TeamGleason! Thank you for your support @SidneyDTorresIV and @thedeedcnbc!
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    Today, our partner Dr. Eric Olson and his team at @ExonicsTx, a company CureDuchenne helped form, published data in the online journal, Science that shows an increase in dystrophin restoration of 92% in the heart of the canine’s. via @WIRED Read more -
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    BREAKING NEWS: @Sarepta Therapeutics Announces Expanded US #FDA Approval of #ELEVIDYS to #Duchenne Muscular Dystrophy Patients Ages 4 and up. MORE DETAILS TO COME WITH WEBINAR INVITE. STAY TUNED.
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    Today is World Duchenne Awareness Day! A day dedicated to spreading awareness about Duchenne muscular dystrophy. We encourage you to join by posting on social media using the hashtag #WDAD2023. You can share what you want people to know about Duchenne or your personal story.
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    It is a landmark day for the Duchenne community! Thank you to Sarepta Therapeutics and the FDA for granting... fb.me/5MYfXe1nr
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    BREAKING NEWS: FDA Approves New Therapy for Duchenne muscular dystrophy. This is a significant step forward, both in the field of gene therapy and for individuals with Duchenne muscular dystrophy. @Sarepta cureduchenne.org/research/fda-g…
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    Congratulations Sarepta on the first approved Duchenne drug. Received FDA accelerated approval today $SRPT #Duchenne #CureDuchenne #DMD
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    Happy Superbowl Sunday! Adam Aref, a #Duchenne teen from Rhode Island will be heading to the #Superbowl today thanks to the @MakeAWish Foundation! loom.ly/sS6Ki0k
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    It is #GivingTuesday and you can give hope to the 87% of Duchenne patients without a treatment. Help fund... fb.me/1DMHO8TU9
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    Thank you Fergie for supporting CureDuchenne! As a mother of a young son, you know how important our research is... fb.me/7G1vr3g4s
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    MUST WATCH: Clay Matthews III unveils the #CureDuchenne inspired cleats he'll be wearing this Sunday for the #MyCauseMyCleats campaign! The cleats were designed by boys suffering from #Duchenne muscular dystrophy. #LetsCureDuchenne #GoPackGo
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    We are so proud of @HawkenMiller for graduating from @USC today! Please join us in congratulating the graduate 😊 #FightOn #LetsCureDuchenne ocregister.com/2019/05/10/usc…
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    FDA Approves Duvyzat (givinostat) for Duchenne Treatment. Read the full press release here: #DMD #duchenne #duchennemusculardystrophy #FDA