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It's very hard to get reasonable adjustments out of unreasonable ppl and organisations.
Christine McClements
24.7K posts
Christine McClements
@Chris_McClem
Mum of 3 girls, carer to daughter STXBP1 & advocate for the full equality, inclusion & dignity of disabled persons. Changing Places
Joined July 2018
- It's is Lilia's 16th birthday today 🎂🥳🎉 She is the loveliest and sweetest young lady and we're so proud of her. Unfortunately Lilia and I are both sick at the moment so will have to leave the big time partying until the weekend.
- My 16 year old severely disabled daughter will never work or be employed. She is made for higher purposes, like full-blown awesomeness.
- This is my severely disabled daughter Lilia when she was age 4 & in pre-school. It is little shoulders like these, those of our most severely disabled children, that are expected to bear the weight & brunt of the latest education cuts due to political failure & disfunction here.
Nurseries in special schools are at risk as the Education Authority says it faces an "extremely challenging situation". bbc.in/3paHgna - My daughter Lilia has a rare genetic disease causing epilepsy & severe disability. She'll be economically inactive for life. She'll also be completely awesome for life & I'm proud of her & her work to have more public money spent on disabled ppl to support full & equal lives.
- My daughter has been assessed as having Profound & Multiple Learning Disabilities & she has severe physical disability. Neither of these things make her less than any other person. She is a full & equal citizen, living her best life on her own terms in a family that adores her.
- Good news 🙌 Lilia got the all clear today from her ovarian cancer. She'll be kept under surveillance with regular scans & tests but consultants are positive abt her prognosis. Feel like I can breathe again & maybe stop daily crying & to top it off we'd a MMF surf session 🏄♂️
- My beautiful daughter with profound & multiple learning disabilities is one of the loveliest humans on this planet ❤️ She doesn't deserve what is happening to her. Cancelled respite from Stormont cuts & reduced benefits from Westminster cuts 😔 A devastating double whammy
- I'm a woman with degrees in civil engineering & maths. I've worked for 25yrs in the construction industry. My severely disabled daughter is expected to lie on disgusting public toilet floors for her toileting & period needs. I can't enjoy my equality until my daughter has hers.
- To me, my severely disabled daughter is unique, interesting, loving, joyful & absolutely equal to anyone else. What she is not is second rate, second class, a burden, not worth the time or money. I'll never ever be on the same page as anyone who sees her in this way. #MyGirl
- I never imagined when I became mummy to a severely disabled child that I'd have to spend years trying to convince people that my beautiful daughter is worth more than a disgusting public toilet floor for her toileting arrangements. And even now I can't convince everyone of that.
- It's Lilia's 17th birthday today and she's just cracked into her 2nd birthday cake of the day 🎂🎉 This is such a special birthday for us after her cancer diagnosis last summer. We're so grateful to have her in our lives. She's our sun, moon and bright shining star 🌟
- Ppl supportive of the benefit cuts arguing abt who are the 'deserving' disabled. My 16yr old child got full points in nearly every PIP category as she has PMLD & needs full support but she too will be subject to cuts. The cuts are an attack on ALL disabled ppl across the board
