user avatar
The Lily Foundation
@4Lilyfoundation
The UK's leading mitochondrial disease charity. We support patients & families, raise awareness & fund pioneering research to find treatments & a cure
London
thelilyfoundation.org.uk
Joined October 2009
1,516
Following
4,295
Followers
Posts
  • Pinned
    user avatar
    The Lily Foundation
    @4Lilyfoundation
    Jul 16, 2025
    10 years ago, The Lily Foundation stood at the heart of the campaign to legalise #mitochondrialdonation. Today, research confirms it’s working, giving families the chance to have healthy, genetically related children 💗 Read more and please share! ow.ly/FBLt50Wp5Zq
    780
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    Jul 17, 2018
    The fabulous @joshwiddicombe has joined our #floss 4 a Fiver Challenge. It really is harder than it looks!! Record & upload your floss then RT to help us raise #awareness. Text Flos45 5 to 70070 to donate £5. Help us give #hope to families affected by #mitochondrialdisease. xx
    00:00
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    Apr 10, 2018
    It's official! #PeterKayCarShare charity screenings raised an incredible £34,620 to fight mitochondrial disease! This will make a real difference to lives of children with mito. HUGE thank you to @peterkay_co_uk you are what true ⭐️s are made of.💚
    thelilyfoundation.org.uk
    Latest news and updates on mitochondrial disease - The Lily Foundation
    The Lily Foundation is delighted to share news that Peter Kay’s charity screenings of Car Share have raised more than £34,000 to help fight mitochondrial disease. That money will be invaluable in hel…
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    May 10, 2020
    Fans of our #lilypubquiz are in for a treat as Perrier Award-winning comedian, writer & broadcaster @domholland takes his turn to be our host with the most! Join us Thurs at 7.45pm (pausing for NHS applause). Full details here: bit.ly/2WBVjjk #mitochondrialdisease
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    Apr 12, 2019
    Sometimes Liz gets all the best jobs - hanging out with the lovely @DomSherwood1 and friends, Seb H and Seb S @TheGrandClapham last night. Thanks Dom for helping us to raise awareness & to the Sebs for taking on this challenge for us. #fight4lily #DominicSherwood #lilyfoundation
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    Apr 23, 2020
    Super excited to confirm that next week's #lilypubquiz quizmaster is comedian, writer, actor, presenter & all round great guy, #AlanDavies Returning Thursday, 30th April from 7.45pm live on YouTube (pausing for NHS Clap) ow.ly/JRt150zmorE #QI #JonathanCreek #Gunners
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    Oct 18, 2022
    An amazing achievement on our 15 year anniversary, Liz Curtis received her MBE from Princess Anne this morning at Windsor Castle. Read more: thelilyfoundation.org.uk/news/liz-celeb… #MBE #lilyfoundation #mitochondrialdisease
    Liz, Dave, Kate and Rosie Curtis in front of Windsor Castle. Sun is shining in the background. Liz is proudly displaying her MBE award, received earlier today.
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    Oct 15, 2023
    Remembering all the babies and children that have died too soon. Remembering Lily, who died at just eight months old to #mitochondrialdisease #waveoflight #lilyfoundation
    2.5K
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    Jun 11, 2021
    We are thrilled to be able to announce that our founder, CEO & Lily's Mum, Liz Curtis has been awarded an MBE in the Queen's Birthday Honours list, for services to people with #mitochondrialdisease Read the full story here: bit.ly/2RHxacJ #queensbirthdayhonours
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    Apr 8, 2019
    So thrilled to have the support of @DomSherwood1 who is backing his friends Seb H and Seb S fighting in our annual fight night @TheGrandClapham on Thursday evening. Awareness is key to helping us beat #mito
    user avatar
    Jalec Squad
    @JalecSquad
    Apr 8, 2019
    One of Dom’s best friends, Seb, is trying to raise money for @4Lilyfoundation which gives support to families affected by Mitochondrial disease. To learn more about the disease and donate if you are able, please visit his page justgiving.com/fundraising/se… 🎥@DomSherwood1’s IG stories
    00:00
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    Feb 19, 2018
    Much excitement as we travel to @comedystoreuk for our annual Lily Comedy Night. What a line up!! @alandavies1 @mattforde @TerryAlderton @joshwiddicombe @domholland @kevinhunterday #mitoaware #findacure
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    Sep 26, 2019
    Thanks so much @joshwiddicombe for winning £1,200 for us on @ComedyCentralUK #Blockbusters show this evening! So grateful to Josh for all his support as patron of our charity. Helping raise awareness of #mitochondrialdisease is key to our work to find a cure! x #lilyfoundation
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    Oct 18, 2022
    Today is a big day for our CEO, & Lily's Mum, Liz Curtis, who is attending Windsor Castle to receive her MBE! We wish Liz & family a wonderful day as she receives the honour, in recognition of her work with our amazing charity, supporting those affected by #mitochondrialdisease
  • user avatar
    The Lily Foundation
    @4Lilyfoundation
    Jul 1, 2020
    The heartache continues for @RealJaneDanson @simongregson123 #BenPrice & #KateFord @itvcorrie with Oliver's Mum, Leanne hoping against hope that he does not have #mitochondrialdisease In this short film, Mum Claire shares her real life experience. Please watch & please RT. x
    00:00