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Educating Our Community

Lukasiewicz Friendly Shoe 6.

Education is Essential

Education is a pillar of the Association's services - for individuals and families impacted by Spina Bifida, the professionals working with our consumers, and the general public. Information related to Spina Bifida is distributed via social media, email news, and quarterly newsletters. The Association also participates in community trainings, tabling events, working with media, and New York State representatives to provide education on life with Spina Bifida.

Community Training

The Assocation offers Spina Bifida trainings in-person (when reasonable) and virtually statewide. Presentations are tailored to the target audience. Requests can come from schools, clinicians, systems specialists, and disability service providers. Complete the form here to request training.

E-News

Each month the Association provides an email with relevant resources regarding advocacy, health, research, social security, and other disability-related programs. You can find the most recent archive here and sign up to receive e-news here.

Newsletter

The Association distributes a quarterly newsletter via USPS and email with organizational updates, program invitations, and educational resources. Sign up to receive our Newsletters and find the most recent versions here:

January 2025 Newsletter | October 2024 Newsletter | July 2024 Newsletter | April 2024 Newsletter 

School-Based Resources

Spina Bifida school-based resources, such as the Toolkit for Educators and the Parent Supplement, provide valuable information and support for educators working with students with Spina Bifida. These resources aim to enhance the educational experience of students with Spina Bifida and provide guidance for educators and parents.

Toolkit for Educators | Toolkit for Educators: Parent Supplement 

Resources

Guidelines for the Care of People with Spina Bifida

Center for Disease Control

Department of Health

Office for People with Developmental Disabilities

New York Association on Independent Living

Guidelines for Expectant & New Parents