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The last few weeks, well months, have been an up and down roller coaster ride of emotional triumph and turmoil that is the ride of my life. I decided to put all of my emotions aside and do what I do best. Get online, get a man and get my prescriptions filled.

The Internet seemed like a dead zone to me lately: nothing of interest. Then “he” signed on. The stats were right, top, Asian, tall and negative. Bingo! Within several minutes we had arranged to meet. Taking into account my new stance, or experiences in life, we agreed to meet for dinner first instead of heading straight to the bedroom. We set the place and by the end of the hour I had arrived.

I got to the restaurant first. I always choose busy places on first dates like the one I was about to enter. It makes me feel safe. It also gives me a chance to run through the crowds and disappear if at first glance I do not like what I see. Fortunately as my date came into view I felt my loins began to erupt in flames of desire. My dates name was Marvin and before he spotted me I quickly slipped a little pill into my mouth, swallowed, then walked towards him with a smile. My eyes caught his eyes light up as he glanced at me for the first time. He quickly continued to make strong eye contact and let out a smile that went from ear to ear as we neared each other. Feeling the effects of the pill I strutted over confidently and introduced myself. In my head I thought, “this is going to be way to easy.”

My first instinct was on point. Marvin seemed a little too excited to be meeting me. We quickly sat down at a table and started off with the normal first date talk. I found out where he lived, what he did for work and what hobbies he was into. During our conversation his eyes remained lit up with excitement. Something about this look in a man does amazing things to me. I seem to recognize it within a millisecond. It’s this sparkle in the eye that says they are attracted to me. I rarely feel attractive but when someone stares at you the way Marvin was staring at me you cant help but feel good looking. This sparkle tells me to play it cool as well, be the ken doll they expect me to be and they will idolize me for something I am not. Maybe it is me they like or maybe it is the thought of a perfect white partner that they have dreamed of. Either way the only reality of that sparkle was that I was going to get laid. I remained restrained and cool, thanks to the help of my online pharmacy.

The more Marvin and I talked the more I began to like him. I felt my cool slightly slipping and excused myself to go to the bathroom. This guy was hot and he wanted me! I got out another little pill from my pocket and slipped it into my mouth before returning to the table. We continued to talk about our lives and he got onto the subject of cars. Turns out the one I drove was his dream car. This couldn’t be going any better! I began to chip away at the persona I had put on and began to let myself relax, trying to be me as much as possible while still keeping my voice a few octaves lower than what it wanted to be. Our food came and went along with a few drinks and we were left with the check. Dinner had gone better than I could of hoped for and Marvin still had a twinkle in his eyes when he looked at me. With just a side smile I paid the check, nodded my head towards the restaurant door and headed out. Marvin, wide smile intact, was soon right beside me.

After a few oohs and aws over my car I drove him to my place. A minute after parking I had him through my front door and sprawled out on my bed.

I hadn’t felt a connection like this in a long time. The hairs on the back of my neck stood up and our mouths softly caressed one another’s. The scent of his flesh caused my heart and dick to tremor in heat. He ran his hands down my back as I straddled him on my bed. My whole body began to quiver as he ripped off my belt and unzipped my jeans in two quick hand movements. “Wow” I thought to myself, this guy has skills. He continued to rip off my clothes as I did the same to him. Soon we were in nothing but our socks and undies; dry humping each other like two adolescent teens underneath the high school gym bleachers. He pulled our mouths apart and brought his left hand up to his lips, he then licked and spit on it. Quickly after he plunged his wet hand right onto my dick as he pulled my head back towards his to continue making out. This guy was awesome! I was in full-blown heat and all the stresses of my life seemed to be fading away. As I lay on top of him I noticed that he had been grinding me through his underwear, but the only thing I could feel was his hard hip. I hadn’t noticed this before because everything had been so hot and steamy. Copying his movements I brought my hand to my mouth, gave it a lick, and slipped it past the lining of his boxers and into his crotch. Big mistake.

I found out the reason why his hipbones were the only hard thing I could feel as his crotch was aggressively rubbing against me. Between my wet fingers was nothing more than a nubbin. Yes, a nubbin!! It seemed as though what he was packing was no larger than my pinky! I was in disbelief and the fire of heat that had erupted from our encounter was quickly being distinguished. Marvin must have had no idea because he began to groan “oh yea baby rub that big dick”. My mind went mad with thoughts. First of all I was not his "baby". I hate when people call me that. Secondly, he said his big dick? He was joking, right? I continued to stroke this tiny monstrosity through his boxers in disbelief as to what I was feeling. He continued to moan and groan, obviously not realizing my lust had gone from hero to zero and then he started to tell me to suck it. Suck it? Well at least I could see what it looked liked; it couldn’t be as small as I felt. Could it? This guy was hot and great at foreplay. Maybe I had taken too many pills. Out of an urgent need to prove myself wrong I pulled my body up off his and ripped his boxers down. Another mistake.

As soon as I had his boxers to the ground I pulled him to the edge of the bed. As he sat up with his legs wide open and feet on the ground I crawled in between them and brought my head face to face with a dick that would break my heart. In front of me stood an erect penis no larger in girth or height than my pinky. My heart (and my dick) sank to the ground. Marvin, in the midst of a deep groan, seemed to have no idea and began pushing my head into his crotch. Then with his deep voice he began telling me to suck his “Big” dick. Big!?! I didn’t no whether to cry or laugh. He has got to be on more pills than me to think that thing was big! Not only was it tiny his entire ball sack was about the size of a golf ball. He began pushing my head closer and closer into his crotch and I felt my stomach begin to lurch in disgust. I felt as if I was going to puke, I couldn’t do it. I quickly got up and ran into the bathroom.

Once I was safe inside the bathroom with the door shut I realized I needed to try to control my panicked nauseas state. Too bad I was naked and all my pills were in the other room. I was going to have to think this situation through on my own. I hoped that maybe he would just get up and leave and that this situation would be over. I sat cringing naked in my bathroom as I began to here him move. Fuck! He was coming towards the bathroom. I thought quickly and did the one thing I could think of… I pretended to puke.

Marvin came over by the bathroom door as I hurled and hurled into the toilet. Little did he know I had my finger shoved as far as possible down my throat to make me gag. I wasn’t actually vomiting, it just sounded like it. After a few very loud hurls he asked if I was ok, sounding concerned. I took this as my out. I yelled through the door, “I think so, what we ate for dinner must have made me sick.” I gagged a few more times for special effects and wrapped myself up in a towel. I walked out of the bathroom and Marvin was standing near the doorway, still naked. I tried to stop myself but I couldn’t help but glance at his penis. In the light it looked even smaller. He just kind of looked around and asked if I was ok. I told him I thought I would be all right but best to call it a night so I could rest. He got dressed and I showed him out.

The next night my best friend and I googled “micro penis.” The definition and images were spot on of what I had encountered. Marvin contacted me once after to hang out again but nothing came of it. Our schedules were very different. Feeling guilty I could have made this guy feel bad about something he could not do anything about I made sure to tell him I had a great time, before the puking of course, and how attractive he was. The situation thankfully fizzled itself out without anymore encounters and was left on good terms.

After this I realized size does matter. Maybe bigger isn’t as bad as I once thought.

This is Ehlers-Danlos Syndrome Awareness Month. EDS is a group of connective tissue disorders which may, depending on the type and severity, make a person super flexible, reduce mobility, cause constant pain, or even threaten life. Basic to all is that a person's collagen is defective, resulting in stretched skin and dislocated joints. The Ehlers-Danlos National Foundation website is a good starting point for learning about the condition.

A good website from which to learn about the life of a person with EDS is LibrarianInBlack. Last week Sarah Houghton-Jan wrote about her life with EDS. As a dedicated librarian intent on educating readers, she embedded two videos about other EDS cases and photos showing hyperelastic skin and joints. She also included a link to the Ehlers-Danlos Support Group. You can also look through the recent posts and archives of LibrarianInBlack to see what an active person Sarah is despite her condition.

The following is a collection of EDS resources available in public libraries (many at the Downers Grove Public Library). Readers will notice that there is disagreement in the EDS literature as to how many types of the syndrome exist. No one source tells the whole story. Persons with EDS will, of course, seek many sources to help them understand their prognosis. Friends and family are urged to take time to also explore many resources.

Missing from the list are book-length EDS memoirs. I found none through our local library system catalog, Worldcat, or Amazon.


Reference Books

Dorland's Illustrated Medical Dictionary, 31st viagra., 2007 - A user has to look at two entries to see all that the dictionary says about about EDS. On page 603 is an entry "Ehlers-Danlos Syndrome" which provides a pronunciation and the names of the two dermatologists for whom the syndrome is named, Edvard Ehler of Denmark, 1863-1937 and Henri Alexandre Danlos of France, 1844-1912. For more information, readers have to turn to page 1854 and look under "syndromes." Dorland's describes six types of EDS (down from ten) and includes a photo of hyperextensible skin.

American Medical Association Family Medical Guide, 4th cheap cialis., 2004. - This AMA guide has about a page of information about EDS under the heading of "Autosomal Dominant Disorders." Across pages 969-70 are paragraphs about symptoms, diagnosis, and treatment. Near the end is a stern warning to parents to reduce injuries by preventing their children from "showing off" their unusual flexibility.

Dictionary of Syndromes and Inherited Disorders by Patricia Gilbert, 3rd ed., 2000 - Gilbert says that an alternate name for the syndrome is "joint laxity." On pages 102-5, she describes population incidence of EDS, genetic causation, syndrome characteristics, and case management. She emphasizes the need for good dental care.

Current Medical Diagnosis and Treatment by Stephen J. McPhee and Maxine A. Papadakis, 2009 ed. - CMDT does not have a separate entry for EDS, but it is mentioned in entries for mitral valve prolapse (p. 301), cardiac involvement in miscellaneous systemic disease (p. 373), cardiac patient and pregnancy (p. 374), and thoracic aortic aneurysms (p. 414).

Harrison's Principles of Internal Medicine, 17th ed., 2008 - Harrison's includes about two large pages of professional level content about EDS, pages 2465-67. A chart explains eight types of EDS. The syndrome is also mentioned in entries about skin manifestations of internal disease (p. 335), bleeding (p. 366), valvular heart disease (p. 1472), cardiac manifestations of systemic diseases (p. 1499), aortic aneurysms (p. 1563), stroke (p. 2519), and osteoporosis (p. 2400).

Gale Encyclopedia of Medicine, 3rd ed., 2006 - Like other resources, the encyclopedia describes many types of EDS and explains family genetic patterns. Friends and family may appreciate the prognosis section, which describes the challenges of living with EDS. A total of five pages is included in the encyclopedia. Entries in two other Gale titles, Gale Encyclopedia of Children's Health and Gale Encyclopedia of Genetic Disorders, 2nd ed., resemble this entry. The latter, however, also mentions EDS in entries for other syndromes.

Genetic Disorders Sourcebook, 3rd ed., 2004 - Only two brief pages about EDS. A bit disappointing.

Encyclopedia of Genetic Disorders and Birth Defects by James Wynbrandt and Mark D. Ludman, 3rd ed., 2008 - The authors note that EDS experts have proposed that the official number of types of EDS be reduced to six, but they then describe ten types anyway. Two full pages of data.

Encyclopedia of Skin and Skin Disorders by Carol Turkington and Jeffrey S. Dover 3rd ed., 2007 - The authors focus on skin in their entry about EDS but also describe the overall condition of the EDS patient on pages 125-26.

Rudolph's Pediatrics, 21st ed., 2003 - This pediatrics medical guide describes the clinical features of six types of EDS and emphasizes injury prevention (shin guards, knee pads, braces). Surgical correction is also discussed.


Newspaper and Magazine Articles

"Kids' Illnesses Spark Battle with State: A California Mom Spent Years Trying to Figure Out What Made Her Children Sick, Then Almost Lost Them," Chicago Tribune, March 20, 2008, p. 4 - A story about how a pattern of bruises and injuries in her children nearly led to abuse charges against a mother whose children have EDS.

"A Life with Purpose," Swimming World, May 2005, pp. 29-30 - A profile of Nancy Burpee, a champion swimmer who has had EDS for 40 years.

"Coping with Livelong Pain," Toronto Star, April 30, 2009, p. U10 - A story about how a pain clinic is helping a mother and her two daughter, all of whom have Ehlers-Danlos syndrome.

"A Mother's Burden," Santa Fe New Mexican, August 8, 2007, p. D1 - A story about a mother and three daughters with EDS. Tells how use of braces reduced pain and injuries in the children.

"After a Multitude of Tests, an Answer from Grandmother's Memory," New York Times, August 24, 2004, p. E5 - A story about the difficulty of diagnosing EDS in infants and toddlers.


Websites

Ehlers-Danlos National Foundation - Sarah says that this is the website with the most useful information.

Ehlers-Danlos Support Group - This British site has a message board and a section with advice for living with EDS.

Mayo Clinic - The Mayo Clinic website includes a basic definition, symptoms, causes, complications, treatment, and advice for coping with the syndrome.

Medline Plus - This site from the National Library of Medicine and National Institute of Health tells us that EDS is also called "cutis elastica." The EDS page includes links to articles from nonprofit organizations and medical journals.

National Organization for Rare Disorders - Basic information on EDS, identifying eight types. The site has a list of recommended websites.

NLM Gateway - Search this website to find basic information, medical journal articles, and clinical trials that may be recruiting participants.


Final Note

My abbreviated notes about these resources, of course, oversimplify what they contain, but together they suggest the vast amount of information on the topic. Ironically, there is still much that is not known or understood, and being a rare condition, as Sarah explains, EDS is not a priority in medical research. I hope that you spend a bit of time with these resources to comprehend the uncertainty of the EDS experience and the hand dealt to people with the syndrome.

Jelly Bracelets with different color meanings have been used in many cheap cialis and fitness campaigns to fight cancer and other diseases. However today's youth have devised a new sexual meaning for the wearing of the bracelets and they are a trend in some schools.

 

Jelly bracelets are thin rubbery bands which can be worn one at a time or interconnected together on the wrists, ankles, or around the neck. They are available in an array of colors.

 

Jelly Bracelets with different color meanings have been used in many health and fitness campaigns to fight cancer and other diseases. However today's youth have devised a new sexual meaning for the wearing of the bracelets and they are a trend in some schools.

The wearing of jelly bracelets started when Lance Armstrong, an athlete overcame cancer and defied the odds. As a way of helping to fund cancer research he helped to design and sell a simple bracelet that was yellow.The colored bracelets caught on and Lance raised millions of dollars in cancer research money. Other health foundations around the world have set up similar funds as well.

In a sexual game called snap, a boy or girl snaps or breaks a bracelet off the wearers wrist. The rules of snap can require players to do all manner of things from kissing to actual intercourse, depending upon the color of the bracelet.

 

Colored Jelly Bracelets Meanings

Black - the wearer will have regular "missionary" sex
Blue - indicates oral sex performed on a guy
Clear - indicates a willingness to do anything the snapper wants
Green - indicates that oral sex can be performed on a girl
Glittery Blue - is willing to perform anal sex
Glittery Clear - wearer will let the snappee "feel up" or touch any body part
Glittery Green - the wearer is willing to "69"
Glittery Pink - willing to "flash" a body part
Glittery Purple - willing to French kiss
Glittery Yellow - indicates kissing and hugging is acceptable
Yellow - wearer is willing to hug
Pink - wearer is willing to give a hickey
Orange - wearer is willing to kiss
Purple - wearer is willing to kiss a partner of either sex 
Red - wearer is willing to perform a lap dance 
White - wearer will flash what they have