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Carolyn!
I need your help! Tomorrow when you get this, can you message Joe-Nadine Shonefeld and Lynn gozzard on my Facebook and tell them they will be getting codes from Facebook on my behalf because I've been locked out of Facebook. I'd contact them myself but I left my fucking phone (potty mouth) in Illinois and my Skype has run out so I can't call them. I'll get Skype tomorrow so I should be able to call them tomorrow! I feel so freaking cut off from the world with no phone, Skype or Facebook! I'm going crazier than usual!
Love you and talk to you tomorrow hopefully!! Thank you!!!!
Love,
Me!

Posted via LiveJournal app for iPad.

 
 
 
 
 
 

Hello to all in the Fibro community of LJ!
My name is Lisa ((aka NAT)) and my doctors have concluded that I have had fibro since birth. Juvenile fibro has different symptoms and I've always had intermittent chronic pain since as early as I remember! But it would be good for a day or two then hurt a lot.
7 years ago this July my life was changed forever, I severely broke my hand, it was healing well, when the cast came off my hand was weak but I thought I'd make a perfect recovery, little did I know there was an insidious monster lurking called Fibromyalgia, within 6 months after the cast was off, I still had pain beyond belief.
I went to many doctors and they would poke or prod, one told me I was a fat (120lbs) midget, that was memorable, after a few long years I had my diagnosis. At the time I was working and I pushed myself to do my very best for my clients but I was really digging myself in a whole.
I have been on long term disability and not working. My work was my life and I miss it very much!!

I also have many other medical issues and love to meet and share war stories and hope!

My other conditions
Hypothyroidism
Addison's disease
Hypogonadism
Hyponaltremia
Growth deficiency
depression
Sleep issues
Trigeminal neuralgia
hypothalamic disregulation syndrome
Visually impaired
High functioning Autistic.

Thanks for having this group and I really hope in time we can be friends!
NO DAY BUT TODAY
NAT

Posted via LiveJournal app for iPad.

 
 
 
 
 
 

Yesterday had too much in it. Even last night on the way home as I'm doubled up in pain in the backseat, my parents asked me what's wrong. They don't generally see me without my smile veneered on, pretending everything is ok. I'm paying for it today. Took my max dose of sleep meds last night so I slept fairly well. Just relaxing watching shows today. My apartment is a mess but it'll have to wait til another day.
Peace, love and lollipops
NAT

Posted via LiveJournal app for iPad.

 
 
 
 
 
 
here is me making a fool out of myself by singing LAdy Gaga's song "hair". it was fun but my kitchen table looks like a hairball still. http://www.youtube.com/watch?v=Dm37KmcYcik
One of my greatest wishes is to meet Lady Gaga.
One of my greatest fears is when I pee my pants while meeting Lady Gaga.

NO DAY BUT TODAY!
NAT
 
 
 
 
 
 

Ok ok holy crap! I haven't written in so long so I'll try to give a bit of an update:

-since I broke my hand (it's a few posts back but it's really been about 6 years) I've developed 2 chronic pain conditions, fibromyalgia and trigeminal neuralgia
-I had to quit working, a dull ache in my chest that never goes away, I miss my work family!
-I moved back to my hometown in a little batchelors flat that's 2 floors above my aunt and a few blocks from my parents
-I continue to go to the magic foundation conventions in Chicago, IL
-I have 2 furbabies of the feline persuasion, SMRT (she's so stupid she needs to buy a vowel) and Tazzy

Anyone with any questions, just ask!

NO DAY BUT TODAY!
Lisa aka NAT

Posted via LiveJournal app for iPad.

 
 
 
 
 
 
So here's the deal - we all get curious of what each other looks like, but have you ever wondered what say... the contents of my bookcase, dish cabinets, or wall unit? What my cellphone looks like? The decorations on my walls? Then ask! I've leave this open for a few days, and for those brave enough to ask, I'll take a photo or three, and post them in my next entry. Want to know how full my fridge is? What's in my bedroom closet? The gardens around my building? The ducks in the park? My favourite stores in the mall?

Anything at all!

You get the drift. So ask away, and then repost in your own journal, so we can all be nosy too!!
 
 
 
 
 
 

Hi everyone!

I have been away for a long long long time and I hope everyone will forgive me!

I hope to post more often.

I know I know don't hold your breath! I'll try though!

I just got back from earlier this month in Florida and it was lots of fun!

I went to a pituitary convention run by the M.A.G.I.C. foundation, it was an adult convention so there were only adults with pituitary problems.

I hope to post more but can't at the moment as it is late late late here!

I hope to post more often from now on, even if it is just once a month.

no day but today!

NAT!

here

Technorati Tags: writing,apologies

is a cool pic of the castle in Disney World!

NATCIMG6533

 
 
 
 
 
 

hello all!!!
I just wanted to send a quick note that I have not fallen off the face of the planet!! Good news?

I broke my hand a week ago and typing with my left hand is just not-so-fun!! I am right handed of course and so had to break my right  hand!! GRR!!

Anyway I am reading posts and such but have not responded to any because it takes me an incredibly long time to type!!! And I thought I was slow before!!!

my cast comes off on AUGUST 16 OR 17 HOPEFULLY!!!

NO DAY BUT TODAY!
Peace, Love and Lollipops!
NAT

 
 
 
 
 
 

Anyone who has not read the previous post should do so as it will explain why my vacation started (and continued) on such a crappy note.

So I am camping. I love camping! I have gone camping for a week every summer with 2 men with disabilities for the past 7 years, but I always go with another assistant named Renelle and she is on mat leave this summer so another assistant named Nancy is going to come.

Discription of Nancy ( I will try to be as subjective as I can!!) 
- she is very tall and skinny ( and she likes to point out how short and "cute" I am)
- she is very excentric ( she has a snake and breeds mice)
- she is a violinist and is a little patronizing when you are not
- she is a really big health nut and comeon! We are camping!!!
- she is a really bad bad bad driver and gets easily distracted while driving.

So I am not going to give a blow-by-blow or day by day analysis I will just tell you the shitty parts of my vacation!
- it rained at least part of every day 6 out of 7 days
- Nancy was very unsettled and wanted to go go go when it was supposed to be a holiday
- she made the menu plan without anyone else and we had to eat organic this and she would not by brand name anything.
- because it was raining I was in pain flare
- it was cold and wet
- one of the men I was caring for was very demanding with myself and the other gentleman there

Things that were good about my vacation
- We went and visited my mom and Bill (her fiance) for supper
- My friend Brian came for lunch
- we came home!!
- I learned turtles breathe out of their asshole when they are hibernating

I am so glad to be home. I won't be camping next year unless Renelle is. I have a whole new appreciation for that woman.

Thats all I got at this hour peoples/
NO DAY BUT TODAY!
Peace Love and Lollipops!
NAT

 
 
 
 
 
 
Hello all!!
I am not going to post much tonight but I wanted to let everyone know I have returned alive from my camping trip.
It was very wet, it rained 6 out of the 7 days that we were tenting it!! It drizzled!! When it rains my pain level goes into flare and it becomes really unbearable!!! 
I promise I will write more in the next few days but for tonight this is all I can do.
I hope everyone is well and I will enjoy reading everyones posts!

NO DAY BUT TODAY!
Peace, Love and Lollipops!
NAT