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Ireland, Multiple Sclerosis & Me

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  • Home
  • About [updated]
  • History of MS
  • A to Z of MS
  • MS Explained
    • Why Multiple Sclerosis Is So Difficult to Diagnose
    • What is MS?
    • The Effects of Multiple Sclerosis on Your Body
    • How MS Affects Brain Cells
    • What causes MS?
    • Types of MS
    • Updated McDonald Criteria (2017)
    • Immune System
      • What is an immune-mediated disease?
      • BiteSized Immunology
    • Central Nervous System
    • CNS (videos)
  • MS Symptoms
    • Early signs of MS
    • 16 Early Symptoms of Multiple Sclerosis
    • MS & Sleep
    • Cognition
    • Multiple Sclerosis and Memory Loss
    • Sensory Symptoms
    • Pain, the basic facts
    • What is pain & how do you rate it?
    • Trigeminal Neuralgia
      • Detailed Trigeminal Neuralgia info
      • Trigeminal Neuralgia Infochart
      • Trigeminal Neuralgia – MedlinePlus
      • Understanding Trigeminal Neuralgia
    • Emotional changes in people with MS
      • MS and Mental Health: Depression, Anxiety and Pseudobulbar Affect (Johns Hopkins)
    • What if it’s not MS
      • Do I Have Multiple Sclerosis or Another Disease?
      • The difference between fibromyalgia and MS
      • The difference between ALS and MS
    • Reading Healthcare: A Medical Terminology Study Guide for Patients, Students and Professionals
  • Managing MS
    • Symptom Management
    • What is an MS relapse?
      • Managing Relapses (US National MS Society)
      • Managing Relapses (MS Trust)
    • Managing MS fatigue
      • The Spoon Theory
    • Pain management
    • Preparing for your neurologist appointment
    • Here’s What to Ask Your Doctor About Multiple Sclerosis
    • A Look at Your Multiple Sclerosis Treatment Plan
    • 40 Self-care strategies
  • MS Treatments
    • Medications List
    • Alternative Treatments
      • Healthy eating
      • Vitamins, Minerals, and Herbs in MS
      • Vitamin D info
      • Vitamins, supplements & MS: research
      • Complementary Health Approaches for MS
      • Complementary & Alternative Medicines
      • Medical Marijuana
      • Evidence-based guideline: Complementary and alternative medicine in MS
  • Research & Clinical Trials
    • Current clinical trials – Ireland
    • Current clinical trials – UK
    • Current clinical trials – globally
    • Understanding clinical trials
    • How Do New Medicines Get Approved?
    • Latest Research
    • RESEARCH NEWS – MS IRELAND
    • Research eZine, by MS Ireland
  • Health Organisations – Ireland
  • To update 2025 – Mental Health Ireland
  • Useful Resources
    • MS Societies around the World
    • Disability websites
    • General websites
    • Medical Websites
    • MS Organisations
    • Neurology (Research)
  • My Journey
    • General
      • Media, stop calling it a cure when it’s not even clinically trialled yet!
      • Oh, media, when will you ever learn? Stop calling it a cure!
    • Newly diagnosed
      • Blurred notes to self
      • The first day
      • It’s OK not to be OK
      • I am not my brain
      • Making sense of MS
      • The road to diagnosis
    • Disease-Modifying Treatments
      • 3443 Needles
      • Starting over
      • Injecting object
      • What a difference a needle makes
    • Living with Trigeminal Neuralgia
      • No-wrinkle multiple sclerosis
      • Where is my left cheek?!
      • The five-second MS rant
      • Not my face!
      • No end to trigeminal neuralgia
      • I’m an ex and I’m lovin’ it!
      • Why I love advocacy!
      • 10 years: a lot to be thankful for
      • How (not to) be sick!
      • A future without chronic illness
      • Medical terminology?
      • MRI scans, hope or defeat
      • The MS blame game
      • MS: a social disconnect
      • Then & now
      • What we refuse to discuss
      • What you might not be aware of
    • Fatigue
      • The truth about Cinderella
      • Sleep: a time-consuming commodity
      • Time to recharge
      • Tiredness ≠ fatigue
    • Emotional Health
      • MS and PTSD: not all in your head
      • Body image and MS: how many selfies do you have?
      • Happiness and MS
      • Things that make you love and hate MS resolutions
      • Bliss, the MS-way
      • Depression?
      • I don’t miss myself
      • I’m only human
      • Mortality
      • Peak moments!
      • Resilience
      • Magnetic voices
    • Hyperacusis | Sound sensitivity | Noise sensitivity
      • Noise sensitivity in MS: Turn off your voice!
      • When life with MS is like The Clash’s ‘Should I stay or should I go’
    • That ignorance!
      • MS Anxiety
      • Defined by myself
      • Dissecting words
      • Ignorance
      • Pull up your big girl panties!
    • Optimism
      • The duality of MS
      • I am not my brain
      • You will survive!
      • What singing taught me about life with MS
      • Branded!
      • Do I have stupid written on my forehead?
      • Fake it ’til you make it!
      • Giving up is not an option
      • How far do baby germs fly?
      • Life begins at the end of your comfort zone
      • Life’s meant to be…
      • The day I stopped being weak
      • Man up!
      • Now what?!
      • Paper dreams
      • Waiting
      • What about it?
      • Why I should be a brainiac, but I’m not
      • You will survive!
    • Relationships/Friendships
      • Body image and MS, fake or not
      • Hell is other people
      • MS and single on Valentine’s Day?
      • MS + single on Valentine’s Day?
      • Kids? Not right now, please…
      • Philosophy of Friendship
      • Single life!
    • MS Relapses / Flare-ups
      • Game, set, relapse!
      • Relapse!
      • Relentless relapse
    • Heat sensitivity / Uhthoff’s Symptoms
      • About Vikings, Vitamin D and multiple sclerosis!
      • Heat sensitivity and MS?
      • Too hot for you? Heat sensitivity explained!
      • The duplicity of MS
      • Every leaf speaks bliss to me
      • Hot town!
      • That thing people call ‘summer’
    • Other symptoms
      • Sensory MS symptoms: The hair that isn’t there
      • You retired at age what?
      • Mental or physical, your choice
      • Silver Linings
      • The social swing of life
      • Jammed filter!
      • Wheelchair?
    • Optic Neuritis
      • Eyes of sorrow
      • Fourteen MS years and counting
    • Ireland
      • Paper dreams
      • The Celtic Tree of Life… sort of!
      • Why Ireland?
      • Ireland, a love story
      • Dublin: a state of mind
      • Back to Ireland
      • Photography
        • Famine
        • Caged
        • An Irish General… and me
        • Irish Selfie
  • Top Posts
  • 🎀 3443 Needles (Winner Ireland Blog Awards 2018) 🎀
  • Blog Awards
  • MS Trust DMT Decisions Aid
  • [NEW] 45 Best Multiple Sclerosis Blogs and Websites in 2025
  • [NEW] Your Everyday Guide To Living Well With Multiple Sclerosis
  • [NEW] 7 Common Complications of MS
  • [NEW] What’s New in MS Research in 2025
  • Privacy Policy
  • Home
  • About [updated]
  • History of MS
  • A to Z of MS
  • MS Explained
    • Why Multiple Sclerosis Is So Difficult to Diagnose
    • What is MS?
    • The Effects of Multiple Sclerosis on Your Body
    • How MS Affects Brain Cells
    • What causes MS?
    • Types of MS
    • Updated McDonald Criteria (2017)
    • Immune System
      • What is an immune-mediated disease?
      • BiteSized Immunology
    • Central Nervous System
    • CNS (videos)
  • MS Symptoms
    • Early signs of MS
    • 16 Early Symptoms of Multiple Sclerosis
    • MS & Sleep
    • Cognition
    • Multiple Sclerosis and Memory Loss
    • Sensory Symptoms
    • Pain, the basic facts
    • What is pain & how do you rate it?
    • Trigeminal Neuralgia
      • Detailed Trigeminal Neuralgia info
      • Trigeminal Neuralgia Infochart
      • Trigeminal Neuralgia – MedlinePlus
      • Understanding Trigeminal Neuralgia
    • Emotional changes in people with MS
      • MS and Mental Health: Depression, Anxiety and Pseudobulbar Affect (Johns Hopkins)
    • What if it’s not MS
      • Do I Have Multiple Sclerosis or Another Disease?
      • The difference between fibromyalgia and MS
      • The difference between ALS and MS
    • Reading Healthcare: A Medical Terminology Study Guide for Patients, Students and Professionals
  • Managing MS
    • Symptom Management
    • What is an MS relapse?
      • Managing Relapses (US National MS Society)
      • Managing Relapses (MS Trust)
    • Managing MS fatigue
      • The Spoon Theory
    • Pain management
    • Preparing for your neurologist appointment
    • Here’s What to Ask Your Doctor About Multiple Sclerosis
    • A Look at Your Multiple Sclerosis Treatment Plan
    • 40 Self-care strategies
  • MS Treatments
    • Medications List
    • Alternative Treatments
      • Healthy eating
      • Vitamins, Minerals, and Herbs in MS
      • Vitamin D info
      • Vitamins, supplements & MS: research
      • Complementary Health Approaches for MS
      • Complementary & Alternative Medicines
      • Medical Marijuana
      • Evidence-based guideline: Complementary and alternative medicine in MS
  • Research & Clinical Trials
    • Current clinical trials – Ireland
    • Current clinical trials – UK
    • Current clinical trials – globally
    • Understanding clinical trials
    • How Do New Medicines Get Approved?
    • Latest Research
    • RESEARCH NEWS – MS IRELAND
    • Research eZine, by MS Ireland
  • Health Organisations – Ireland
  • To update 2025 – Mental Health Ireland
  • Useful Resources
    • MS Societies around the World
    • Disability websites
    • General websites
    • Medical Websites
    • MS Organisations
    • Neurology (Research)
  • My Journey
    • General
      • Media, stop calling it a cure when it’s not even clinically trialled yet!
      • Oh, media, when will you ever learn? Stop calling it a cure!
    • Newly diagnosed
      • Blurred notes to self
      • The first day
      • It’s OK not to be OK
      • I am not my brain
      • Making sense of MS
      • The road to diagnosis
    • Disease-Modifying Treatments
      • 3443 Needles
      • Starting over
      • Injecting object
      • What a difference a needle makes
    • Living with Trigeminal Neuralgia
      • No-wrinkle multiple sclerosis
      • Where is my left cheek?!
      • The five-second MS rant
      • Not my face!
      • No end to trigeminal neuralgia
      • I’m an ex and I’m lovin’ it!
      • Why I love advocacy!
      • 10 years: a lot to be thankful for
      • How (not to) be sick!
      • A future without chronic illness
      • Medical terminology?
      • MRI scans, hope or defeat
      • The MS blame game
      • MS: a social disconnect
      • Then & now
      • What we refuse to discuss
      • What you might not be aware of
    • Fatigue
      • The truth about Cinderella
      • Sleep: a time-consuming commodity
      • Time to recharge
      • Tiredness ≠ fatigue
    • Emotional Health
      • MS and PTSD: not all in your head
      • Body image and MS: how many selfies do you have?
      • Happiness and MS
      • Things that make you love and hate MS resolutions
      • Bliss, the MS-way
      • Depression?
      • I don’t miss myself
      • I’m only human
      • Mortality
      • Peak moments!
      • Resilience
      • Magnetic voices
    • Hyperacusis | Sound sensitivity | Noise sensitivity
      • Noise sensitivity in MS: Turn off your voice!
      • When life with MS is like The Clash’s ‘Should I stay or should I go’
    • That ignorance!
      • MS Anxiety
      • Defined by myself
      • Dissecting words
      • Ignorance
      • Pull up your big girl panties!
    • Optimism
      • The duality of MS
      • I am not my brain
      • You will survive!
      • What singing taught me about life with MS
      • Branded!
      • Do I have stupid written on my forehead?
      • Fake it ’til you make it!
      • Giving up is not an option
      • How far do baby germs fly?
      • Life begins at the end of your comfort zone
      • Life’s meant to be…
      • The day I stopped being weak
      • Man up!
      • Now what?!
      • Paper dreams
      • Waiting
      • What about it?
      • Why I should be a brainiac, but I’m not
      • You will survive!
    • Relationships/Friendships
      • Body image and MS, fake or not
      • Hell is other people
      • MS and single on Valentine’s Day?
      • MS + single on Valentine’s Day?
      • Kids? Not right now, please…
      • Philosophy of Friendship
      • Single life!
    • MS Relapses / Flare-ups
      • Game, set, relapse!
      • Relapse!
      • Relentless relapse
    • Heat sensitivity / Uhthoff’s Symptoms
      • About Vikings, Vitamin D and multiple sclerosis!
      • Heat sensitivity and MS?
      • Too hot for you? Heat sensitivity explained!
      • The duplicity of MS
      • Every leaf speaks bliss to me
      • Hot town!
      • That thing people call ‘summer’
    • Other symptoms
      • Sensory MS symptoms: The hair that isn’t there
      • You retired at age what?
      • Mental or physical, your choice
      • Silver Linings
      • The social swing of life
      • Jammed filter!
      • Wheelchair?
    • Optic Neuritis
      • Eyes of sorrow
      • Fourteen MS years and counting
    • Ireland
      • Paper dreams
      • The Celtic Tree of Life… sort of!
      • Why Ireland?
      • Ireland, a love story
      • Dublin: a state of mind
      • Back to Ireland
      • Photography
        • Famine
        • Caged
        • An Irish General… and me
        • Irish Selfie
  • Top Posts
  • 🎀 3443 Needles (Winner Ireland Blog Awards 2018) 🎀
  • Blog Awards
  • MS Trust DMT Decisions Aid
  • [NEW] 45 Best Multiple Sclerosis Blogs and Websites in 2025
  • [NEW] Your Everyday Guide To Living Well With Multiple Sclerosis
  • [NEW] 7 Common Complications of MS
  • [NEW] What’s New in MS Research in 2025
  • Privacy Policy
  • Multiple Sclerosis,  Resources,  World MS Day

    🧡 Happy World MS Day! 🧡

    30 May 2025 / No Comments

    Continue reading
  • Multiple Sclerosis,  Resources,  World MS Day

    World MS Day 2025: What I would tell my newly diagnosed self

    25 May 2025 / 1 Comment

    Within your diagnosis lies the potential for transformation; it can either forge our strength or test our resolve, shaping us in profound ways. Mine was no different. Find out what I would tell my newly diagnosed self twenty years ago.

    Continue reading
  • Woman head down black and white
    Mental Health,  Multiple Sclerosis,  Resources,  World MS Day

    Is Multiple Sclerosis its own worst enemy?

    22 March 2025 / 1 Comment

    MS doesn’t concern itself with how long your bucket list is. It adds unexpected chapters to your story where you didn’t want any, and it’s up to us to fill these pages advocating for our own new normals, even when we feel ill-equipped.

    Continue reading
  • MS,  Multiple Sclerosis,  World MS Day

    Happy World MS Day!

    30 May 2018 / No Comments

    Let's do our bit to advance research until we find a cure. and be part of the solution instead of the problem!

    Continue reading
  • Beauty and fashion,  MS,  Multiple Sclerosis,  World MS Day

    Oh my god, I am (so not) dying!

    30 May 2017 / No Comments

    Life with MS can be awkward. It can be puzzling. It is unquestionably easier said than done. It’s the little things that are happening inside your central nervous system that can make you stumble as if your body reinvents and transforms itself without your consent as if the ‘old’ you is suddenly not good enough anymore.

    Continue reading
  • Vintage clock
    Mental Health,  MS,  Multiple Sclerosis,  Resources,  World MS Day

    World MS Day 2025: Early Diagnosis after 200 days

    15 November 2016 / No Comments

    "To many, life with MS can seem like a book where letters have been replaced by numbers or where the cover can be too hard or too soft for its content. Because of this, I don’t want them to see what MS can turn into. I refuse to show them that there is no cure, I refuse to give them a reason to give up on me. In my view, it is very much a case of the illness being mine, but the tragedy theirs if I let them."

    Continue reading
  • Finances and MS,  MS,  Multiple Sclerosis,  World MS Day

    World MS Day 2016

    25 May 2016 / 1 Comment

    As each day passes with life with MS, it’s worth noting that quite often, there is still a large information gap to be filled on a medical, emotional, societal and political level. Like many other disease groups, the MS community wants to enhance “Life with…” once a year in a bid to give more insight in what people without MS may otherwise take for granted. In the past, I’ve written about World MS Day on my blog, as well as on the Irish MS Society’s blog and on Novartis’s MS blog. As a person living with the illness day in, day out, highlighting it has become a moral obligation.

    Continue reading
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What? Why?

IMSM is an award-winning blog filled with personal experiences and general information about MS to fill the gap left by websites crowded with medical jargon.

Now 22 years in Ireland and 20 years post-diagnosis, my goal is to connect people who like me, found themselves in front of MS’s door, and were dragged in for an extended stay in one of its uncomfortable, dark-lit backrooms. Hopefully, we will connect somehow to share its burden and be an inspiration to each other. After all, IMSM was created to do just that: trying to make sense of MS nonsense.

© Willeke Van Eeckhoutte and Ireland, Multiple Sclerosis and Me, 2025

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