Living with HAE?
You are not alone

Living with HAE?
You are not alone

HAE International is a global non-profit network of Member Organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.

  • Living in North, Central, or South America?

    Embracing Opportunities in Americas

    HAEi look forward to seeing HAEi friends at the 2026 HAEi Regional Conference Americas in Ottawa, Canada, 23-25 October 2026

  • A truly global organization

    106 Member countries

    HAEi is a global network organization serving Member Organizations (MOs) in 106 countries around the world.

  • Easy-to-use electronic diary

    Track your HAE

    Take control of your HAE: Use the HAE TrackR app to record treatments, attacks, and the impact HAE has on your life.

  • For hae day :-) on 16 May

    Be #active4HAE in purple!

    Join us with all types of activities – physical and wellbeing – as part of our #active4HAE activity challenge from 1 April to 31 May.

  • Free and secure app for your travels

    Your pocket-size travel partner

    Plan for a safe trip: Use the HAE Companion app with HAE Emergency Cards and HAE-relevant contact information worldwide.

  • Educational program for youngsters

    HAEi LEAP

    HAEi LEAP is an educational program developed by HAEi that allows young people to learn new skills and develop as individuals, and advocates.

Living in North, Central, or South America?

Embracing Opportunities in Americas

HAEi look forward to seeing HAEi friends at the 2026 HAEi Regional Conference Americas in Ottawa, Canada, 23-25 October 2026

A truly global organization

106 Member countries

HAEi is a global network organization serving Member Organizations (MOs) in 106 countries around the world.

Easy-to-use electronic diary

Track your HAE

Take control of your HAE: Use the HAE TrackR app to record treatments, attacks, and the impact HAE has on your life.

For hae day :-) on 16 May

Be #active4HAE in purple!

Join us with all types of activities – physical and wellbeing – as part of our #active4HAE activity challenge from 1 April to 31 May.

Free and secure app for your travels

Your pocket-size travel partner

Plan for a safe trip: Use the HAE Companion app with HAE Emergency Cards and HAE-relevant contact information worldwide.

Educational program for youngsters

HAEi LEAP

HAEi LEAP is an educational program developed by HAEi that allows young people to learn new skills and develop as individuals, and advocates.

Attacks with swelling and pain

Not all swelling is an allergic reaction

HAE presents with swelling, abdominal pain, and airway obstruction and is often misdiagnosed as an allergic reaction.

The guiding forces behind HAEi

Our Mission

To lead a global network of Member Organizations and provide specially designed tools, resources, educational programs, and hands-on assistance to empower awareness, accelerate diagnosis, and champion access to life-saving HAE therapies.

Our Vision

To unite and strengthen the HAE global community, achieve a world free of barriers where effective treatments are accessible everywhere, and provide a higher quality of life for people with HAE.

Our Value

To fulfill the highest priority needs of our Member Organizations with an extraordinary level of dedication, effectiveness, and accountability, guided by compassion, kindness, and inclusivity.

Stay up to date with what’s going on in the world of HAE

Read inspirational articles featuring HAE patients, detailed information from our Member Organizations, interviews with HAE experts and guests at our workshops and conferences, and the latest news from the industry.

HAEi reports on news from the industry

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