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Join us in celebrating hae day :-) on 16 May!

Join us in celebrating hae day :-) on 16 May!

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Step 1 of 2 - Choose activity

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  • Thank you for helping us step around the world!

  • Hi Morten, thank you for helping us step around the world!

  • Pick your activity: Click on the drop down by each level to see a selection of activities. If your activity isn’t shown, please select ‘other’ in the category that best suits the energy level of the activity you’ve completed.

    You can enter time for an activity as an individual, or you can enter time on behalf of a group if more than one person took part and only one person is going to enter the data.

  • How much time did you spend on your activity (per person)?
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  • IMPORTANT: This is the number of people who know the activity is for hae day :-). If you are taking part in a class/an event – a yoga class or the London Marathon for example – please do not enter the total number of people in the event, just those who know they are contributing to the challenge with you.
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  • We have converted your activity to steps based on minutes of activity
  • Here you can select the dates for your activities. You can select one or more. For instance if you have the same morning walk every morning, you can add all the dates here, it will then create activities for each of the dates with the same information.
  • Accepted file types: jpg, jpeg, png, Max. file size: 10 MB.
    JPEG and PNG files only
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  • Your country has an HAE Member Organization. Would you like to add your steps to your Member Organization’s total? You can add your steps to your Member Organization and a team if you want to.
  • You don’t have a member organization for your country, so we can’t offer to add your steps to a member organization.

    If you are interested in being the HAE patient advocacy lead for your country, please contact Rachel, our Coordinator, Global Advocacy, via r.annals@haei.org.

  • Please double check the details are correct before clicking submit. If you do not have a profile then once submitted activities can only be deleted by contacting hello@haeday.org

More about hae day :-)

Follow us

Thank you to HAEi’s supporters who contribute to hae day :-)

Who is behind hae day :-)

HAE International (HAEi) is a global non-profit network of patient associations dedicated to improving the lives of people with HAE. HAEi works to raise awareness of HAE, improve time to diagnosis, and fiercely advocate for approval and reimbursement of lifesaving therapies to everyone suffering from HAE. HAEi currently supports more than 100 member countries around the world.

Visit haei.org
hello@haeday.org

FOLLOW US

2025

hae day :-)

AWAENESS. HAE.
FAMILY. FUN.

hae day :-) unites the HAE community with 16 May as an annual focus for activities to raise awareness of HAE amongst the general public, healthcare professionals, healthcare decision-makers, and industry representatives.

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  • Enter activity
  • New in 2026!
  • Get involved
    • About hae day :-)
    • In purple
    • Get involved
    • Help for Member Organizations
    • Earn badges
    • Join a team
    • 2026 Events
    • Image Gallery
    • Activity inspiration
    • 10th hae day :-) celebration in 2021
  • Toolbox
    • Assets
    • Help for Member Organizations
    • Ideas for Member Organizations
    • Working with the media
    • Working with the community
    • Working with social media
  • HAEi and HAE
    • Help for Member Organizations
    • HAEi’s Regional Advocacy
    • HAEi Youngsters’ Community
    • HAE and HAEi
  • Profile
    • Log in
    • Register profile
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