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Posts Tagged ‘grief’

You must do the thing you think you cannot do.     Eleanor Roosevelt

Learning to accept what was unthinkable changes you.   Jackie Kennedy

We cannot afford to forget any experience, not even the most painful.

 Dag Hamarshjold

 

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In 2006 I gave birth to fraternal twin boys who were sadly stillborn. I was 34 weeks pregnant. They weighed 5 pounds 4 ounces and 6 pounds 3 ounces.  I am also the mother of 4 living sons.

In August the year before, I had [had]my tubes tied so we would not have anymore children. I started to get sick after the procedure and told the doctor. She said that I might have an infection from the procedure. I also complained of pain, so she sent me for a ultrasound cause she said I most likely had cysts on my ovaries. A week after the ultrasound was done I called to get the results and found out I was pregnant again and this time with twins. My husband and I needless to say were very surprised but extremely happy about the news as we thought we no longer could have children. My first question was if they were OK  because I had the surgery around the time they were conceived. The doctor did not check before I had the surgery to see if I was pregnant.

Everything was fine right up till the end. Two weeks before they passed away, I went to the hospital in extreme pain on the left side of my stomach. I was given Tylenol, hooked up to a fetal heart monitor and then sent home. I was told what ever happened inside my uterus my babies were tolerating it well and that was it. No further tests were done. The next day I saw my doctor and told her what happened. She said if it happened again to go back to the hospital and only to come back to see her in two weeks. I never got to see her again. A week and a half later I had a ultrasound that was booked weeks before anything went wrong. [At that time] I was told they were perfectly healthy little boys. I had noticed that the baby on the left’s heart rate was lower than it normally was and I asked why. She said it was because there was really no more room left to grow, he wasn’t active and probably sleeping at the moment. 

On the Tuesday after my ultrasound I went for a nap before my husband had to go to work. I woke up and started to get supper ready for my four boys. I cleaned and then received a phone call from my sister-in-law that she wanted to take my youngest son for the night. I got him ready. By the time I had a few moments to sit, I [realized] that I did not feel any movement since before I went for my nap. I went to get something to eat and drink because usually that would make them move. When that didn’t work I tried to move them myself and nothing happened. I called my husband at work and told him I was going to the hospital. I told him I would call him because he was not allowed to leave unless I was in labor as I already called him home many times that week. I went to the hospital and they told me that they had one baby’s heartbeat but the other baby was probably hiding so they were going to give me a ultrasound to see and hear them better. That was the moment my heart truly broke. The doctor on call told me that both boys were dead. They said that they picked up my heartbeat earlier.  I asked them to call my husband at work. They couldn’t tell him anything on the phone and just told him that he needed to come. He arrived almost a hour later cause he went home first to change because he thought I was in labor and he gets really dirty at his job. When he arrived I heard the nurse tell him in the hallway just outside my room. I remember feeling so numb, how could this be happening to us? 

My stay in the hospital was very emotionally straining because of rude comments I had to endure from medical staff (which I did make a formal complaint about). It was hard enough to deal with what I had to go through then I had to deal with what these (so called) medical professionals were saying to me.  EXAMPLE:  A lab technician said “You had a baby?” I said “Yes, I had twin boys” she asked “Where are your babies?” I said “They passed away.” She replied “Oh you’re the one they are talking about downstairs.  You don’t want any sick or mal-formed babies anyway.  It’s for the best they died.” My sons were not sick , they were not mal-formed. They were healthy little boys. There were other comments as well.

I was told that Lucas died first and he was the baby on the left, the side I  first had problems on, and the baby whose heart rate was lower than it normally was.  I have yet to receive the results of the autopsy report.  I was told by the doctor who delivered my sons that the test they received back showed no cause. I can’t deal with the fact I am being told I buried two healthy little boys. I delivered my boys by c-section and it was discovered later that I had an infection from the surgery.  L. was born at 2:16pm and weighed 5’4 lbs. R. was born at 2:17pm and weighed 6’3 lbs. I remember returning to my room it was 4:30pm. The nurse brought in my babies and placed them both in my arms. I remember thinking they just look like they were sleeping but I knew they would never wake up from this sleep. I kissed each of their little heads and told them I was sorry and that I loved them. The nurse came and took them to another room.  I later asked for them again because I wanted to hold them individually.

We had two services for them because we live so far away from home. We had a service where we live which was open casket and which was the choice of two of my older children. I’m glad we did that because I was feeling a bit better from the surgery than when I originally saw the babies and this time I got the chance to kiss them good-bye without feeling all groggy from pain meds. We had to transfer their bodies ourselves back home which was a hard, long drive (7 hours).  My aunts put together the service back home which was more than I ever expected. I hadn’t been home in 2 years and it was really something to see how many people cared. My boys were not planned but I wanted them more than anything in this world and as each day goes by, I miss more then I think my heart can handle at some times.

 

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Question: 

After giving birth to our quadruplets at 26 weeks, our son died at 19 days old. We have a very supportive family, but I continue to struggle.  It is getting worse now that we are going out more with the babies and are getting the comments – Wow, you have triplets!! Sometimes I give more details and sometimes I just say yes…but I feel guilty that I don’t let them know about Devon. It’s nice to read that no matter what I say…it’s the right way. 

Suggestion:  

I am so sorry to hear of your loss of Devon.  That has to be heart breaking and I have no doubt you feel as if you are abandoning him when you agree you have triplets.  In fact, nothing could be further from the truth.  Your heart knows the truth and we do not have to explain everything to strangers.  It may not feel appropriate at the time.  On the other hand, you may feel that you would like to acknowledge Devon’s birth at another time.  If you feel that way and tell a little of your story, that is right too.  Sometimes you want to explain and sometimes you don’t.  You call the shots.  When you choose not to say any thing, you aren’t denying him, you are acknowledging him within you and that may be enough for that particular day.  You are his Mom now and forever.  May your path be gentle and your challenges manageable.

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Supportive article:  http://www.npr.org/sections/health-shots/2016/08/20/488991373/for-parents-who-have-lost-a-baby-some-aid-in-their-grapple-with-grief

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~”4 years (ago) I l lost my brother.  I still want to take my life. Why should I struggle through life? It’s so hard ..”

I receive a lot of messages such as the above and each one puts a lump in my chest.  The sadness, unhappiness, loneliness, and inability to see any future that so many survivors feel is astounding – understandable, but also astounding.

It is an enormous challenge to go from We to I.  There is no proper preparation for such a state.  From the very beginning two or more souls have been together, aware of each other, caring and “checking in” with each, sharing a birthday, sharing so much.  When the connection is cut, forever, what now?  Who is watching my back?  I have lost my best friend (some survivors say the feeling is worse than losing a spouse).  How can I possibly be anything or move forward without my special partner?  There may be survivor’s guilt. So many messages indicate that the survivor wants to die and join their co-multiple.

How do we help and support these very vulnerable folks at the worst point in their lives? How do we assist them in recognizing what they are feeling but encourage them to continue on to be the best they can be, without guilt: get an education, meet someone, perhaps have a family, travel, share their experience and still remember their true roots?

~I think understanding professional help is a good start.  Speaking with someone who is aware of the unique bonds between multiples and who won’t pooh-pooh a survivor’s deep-seated feelings is essential.  We know that multiples are aware of each other in the womb and these intense connections survive beyond the womb and remain throughout their lives.  A professional who is aware of the unique bonds and honours them when counselling a survivor, is a gem indeed.

~I feel quite strongly that the deceased co-multiple would not wish their survivor to join them in death.  What they would want is for their co-multiple to mourn and move on to live a healthy, happy life and enjoy what they can from life, free of guilt, while remembering and keeping a small part of their heart to remember their deceased.  I do not think for a moment that a deceased co-multiple would choose death for their co-sibling.  It just does not make sense that this would be the case.

~Suicide is, in my opinion, something that a desperate person chooses.  One who feels this is the only recourse left open to them.  They have convinced themselves that no one would miss them and the world would be a better place without them.  They cannot take the pain any longer of living.  Living is not an easy thing to do day in, day out.  We need tools in our toolbox to handle a lot of what is handed to us over a life time:  house burns down and we lose our things, crash our car, didn’t get the job we wanted, our best friend moved away, have trouble losing weight, to name a few – or we lose our co-multiple.  This can be a monumental challenge, but seeking the right support and resources can get us through and tomorrow can be a little brighter, promise.  The world would NOT be a better place without you and so many family members, friends and colleagues would miss you beyond belief.  Please, please, please don’t choose suicide as an option.  Life is not bleak every minute of every day and with the right support, you can get through.  You are not alone.  Plus who better to remember your co-multiple than yourself?  Only you know the details of your lives and are in the best position to remember and honour your special sibling.

~Don’t be shy about reaching out to speak with others.  The Internet is full of Web Sites, books, resources, grief information to help you help yourself get through.  Speak to your doctor, clergy person, or someone who feel safe with.  Every one of these resources is ready and waiting to support and assist you.

~Some surviving co-multiples have written books sharing their experiences of being with and being without their co-multiple.  Maybe writing such a book would also be good for you. Or simply keeping a journal for your own eyes can be very cathartic.  I will list some of the books written below.  I have read them all and each and every one of them is worth their weight in gold.

I sincerely hope you can find some solace in this world until your own time is decided and live a full and happy life, while honouring your unique birth experience and partner.

Sincerely,                                                                                                                                                      Lynda  (July, 2016)

Support For Survivors

Books

Living Without Your Twin, by Betty Jean Case
Who Moved the Sun?  A Twin Remembers, by Ron McKenzie                                            

The End of The Twins: A Memoir of Losing a Brother, by Saul Diskin                                

The Lone Twin, by Joan Woodward
The Survivor, by Lynne Schulz

On the Internet

Lynda’s Site

http://www.jumelle.ca

Multiple Births Canada

Loss Support Network

http://www.multiplebirthscanada.org

Twinless Twins Organization   (US)

http://www.twinlesstwins.org

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Loss in utero or the womb has two levels of grief:  One for the parents and probably one for the survivor(s) at some point in time.  From time to time, it happens that a parent may feel that their survivor is responsible for the death of the co-multiple in utero.  One survivor shared that she had a difficult relationship with her mother and when she was in her mid-twenties, her mother ‘lost it’ and screamed at her that she had killed and eaten her twin in the womb.  Such a situation isn’t possible and the loss in the womb isn’t anyone’s fault.  From time to time for no apparent reason a fetus is absorbed (Vanishing Twin Syndrome) or miscarried at some point in the pregnancy.  Neither the survivor or the mother is responsible.  More likely is that one embryo was unhealthy and unable to properly attach itself to the uterine wall to obtain the maternal nutrition it needed to grow and develop as its co-multiple did.  We don’t exactly know why this happens, but it does from time to time.

 

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I have been watching the weather lately in Eastern Ontario and beyond (as I am certain that most of us have in our own communities) and those quickly changing weather patterns struck a chord with me:  sunny and fair one moment, 5 minutes later a downpour from gentle to fair to torrential and then back to some sun shine.  The mosquitoes adding a tormenting component.  I am finding these days of dramatic and changing weather patterns can mirror grief lines.  One minute managing, coping, completing necessary and daily tasks and then everything is brought to halt, reality seeps in and our loss speaks volumes.  Tears may flow gently, or in torrents, trying to make sense when there is no sense.  The calm and the storm become intermingled and vie to ‘be the boss of me.’  Time helps but it doesn’t take away the pain indefinitely.  It remains to visit again another day and yet, somehow, we go on.

May you find comfort in the sun, in your garden, in your family, in your plans, in your laughter, in your tears as your life moves forward.

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For parents who have lost one, more or all of their babies, The Ottawa Citizen did the following interview with me:

 

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When we share our joy, we double it.  When we share our grief, we halve it.

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