Outcomes
AutProm Toolbox – We are working with the autistic community to create and test the AutPROM Toolbox – a set of accessible survey instruments to measure the outcomes that matter most to autistic adults.
Healthcare
Improving Hospital Experiences – We aim to understand what it’s like to be an autistic adult in hospital and what resources might make hospital stays better.
Healthcare Toolkit Systems Integration – We are studying how to best integrate the AASPIRE Healthcare Toolkit into three different health systems (Kaiser Permanente Northern California, OHSU, and Legacy Health System) and look at the effects of the toolkit on autistic patients, providers, and support staff.
AASPIRE Healthcare Toolkit – We developed and tested an interactive healthcare toolkit meant to help improve healthcare access and quality for adults on the autism spectrum.
Healthcare Survey and interviews – We did a study to understand health care inequities and barriers to health care experienced by autistic adults.
Reproductive Health
Pregnancy Phone App – We aim to make an app that people with disabilities that affect thinking can use to make decisions about pregnancy. We are using research to help make sure we design the app right. Part of that is including people with disabilities in the research to design it.
Employment
Employment Outcome Measures – This project adapts and tests surveys to measure the things that autistic people said meant employment success in our skilled employment study.
Autism and skilled employment – We aimed to understand experiences related to skilled employment and use the information to develop an intervention plan.
Mental Health
Participatory study for suicide prevention – We aim to understand experiences of suicidality among autistic people, and develop and pilot a community-based intervention for suicide prevention.
Pilot study on autistic burnout and suicide behavior – We aim to begin characterizing autistic burnout and to take the first steps in developing a way to measure it.
Older Studies
The AASPIRE Co-Directors, the Autistic Self Advocacy Network, and other AASPIRE members are collaborated on “the Partnering Project” – Partnering with People with Developmental Disabilities to Address Violence and Health – to understand the relationship between violence victimization and health in people with developmental disabilities.
AASPIRE Internet Use, Community, & Wellbeing Study – We aimed to examine topics such as Internet use, identity, sense of community, well-being, and social support among adults on the autistic spectrum and adults with and without other disabilities.