No One Has to Face MDS Alone
The MDS Foundation is Here for You
The MDS Foundation is a global nonprofit organization dedicated to improving the lives of those impacted by myelodysplastic syndromes – a rare and often undetected blood cancer. Through patient support, professional education, research, and advocacy, we empower patients, caregivers, and healthcare professionals with the knowledge and resources needed to navigate MDS with confidence.
What is MDS?
Myelodysplastic syndromes (MDS) are a group of bone marrow failure disorders or blood cancers. Healthy bone marrow produces immature blood cells — stem cells - that normally develop into mature, fully functional red blood cells, white blood cells, and platelets. In MDS, these stem cells may not mature and may accumulate in the bone marrow or they may have a shortened life span, resulting in fewer than normal mature blood cells in the circulation.
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Blood Cancer
MDS Resources and Support
Find the information and support you need to navigate MDS with confidence. From understanding your diagnosis to exploring treatment options and connecting with experts and peers, the MDS Foundation offers trusted resources that guide you through every step of your journey.
The MDS Foundation invites you to add your voice to a growing movement.
By sharing your story through the MDS Exchange, you can inspire others, raise awareness, and help ensure no one faces MDS alone.
One voice inspires. Many voices transform.
Featured Resources
What's New?
June 19, 2026
MDS Foundation ASCO Summaries 2026
MDS Foundation ASCO Summaries 2026
MDS Foundation representatives highlighted promising advances from ASCO 2026, including stronger first-line results for luspatercept in lower-risk MDS, early progress in new treatments for higher-risk MDS and AML, and emerging tools like whole-genome sequencing and AI to improve diagnosis and risk prediction. The updates also underscored ongoing challenges, including treatment complications, sepsis risks, cardiovascular mortality, and disparities in care.
Upcoming Events
Jacksonville, FL
Jacksonville, FL
July 11, 2026
Artificial Intelligence and Technology in MDS
Artificial Intelligence and Technology in MDS
July 25, 2026
Caregiver Training 101
Caregiver Training 101
September 12, 2026
Join Our Mailing List
Stay informed about MDS and join a global community of people going through a similar experience. Sign up today to receive the latest in MDS news, resources, programs, and events.
Testimonials
The MDS Foundation has been a great resource for our patients. We held a successful local symposium last year and hope to do that again in the future.
Afaf O
MDSF is fantastic so glad to have you there.
Amy D
We have enjoyed working with the MDS Foundation for many years.
Richard L
MDSF is a terrific organisation, and we appreciate the relationship.
Daniel P
I refer people regularly to the website and patient support services. The MDS Foundation is a great resource.
Mark J
I and my patients are huge fans of the MDS Foundation!
Yazan M
We are excited to keep working with the MDS Foundation as an MDS Center of Excellence to provide our patients the highest quality and state of the art care.
Aditi S
I believe that the Understanding Your MDS booklets and Building Blocks of Hope, MDS and AML Editions are invaluable resources, and I would love to be able to give them to my newly diagnosed patients.
Sophia B
My overall experience with the MDS Foundation is excellent.
Suresh D
I reviewed information on the MDS Foundation website in various languages, and it is very impressive.
Suresh D
It has been a tremendous blessing to have the MDS Foundation’s Northwestern team helping us through our MDS journey.
Stephen and Pat F
Center of excellence is like a 4 star Michelin restaurant rating.
Robert S
The MDS Foundation can assist you in getting into a center of excellence for MDS quickly. It is a top priority.
Amy C
I have found the forum to be a great help.
Marjory B
In my opinion everyone with MDS should put their trust in center of excellence.
Michael