The Human Variome Project

An NGO maintaining operational relations with the United Nations Educational, Scientific and Cultural Organisation (UNESCO)

The Human Variome Project is an international non-governmental organisation that is working to ensure that all information on genetic variation and its effect on human health can be collected, curated, interpreted and shared freely and openly.

Project Activities

The Human Variome Project unites global efforts to share genetic data responsibly, improving public health through ethical and sustainable collaboration.

Data Sharing Solutions

The Human Variome Project offers guidance and global standards to support ethical and open sharing of genetic data.

Find Data Resources

The Human Variome Project provides global resources on genetics, ethics, and data sharing, promoting accurate reporting of genetic variants.

14th International Symposium on Variants in the Genome:

About the Human Variome Project

Building a Global Network for Responsible Genetic Data Sharing

The Human Variome Project is a worldwide initiative dedicated to improving global health through the open and ethical sharing of genetic variation information. By connecting scientists, clinicians, and researchers across countries, we work to create standards, infrastructure, and best practices that make genetic data accessible, reliable, and beneficial for all.

Work With the Human Variome Project

Partner With Us to Advance Global
Genetic Knowledge

Join our mission to build a connected world of ethical and open genetic data sharing. Together, we can develop innovative solutions that strengthen healthcare and research globally.

Work With the Human Variome Project

Explore Global Tools and Knowledge for
Genetic Data Sharing

Access valuable resources that support ethical, accurate, and open sharing of human genetic variation data — from country activities to global databases and journals.

Country Activities

Discover how nations around the world are advancing genetics and public health through Human Variome Project initiatives.

Gene/Disease Databases

Explore trusted databases curated by experts for specific genes and diseases to support research and diagnostics.

Ethical & Legal Resources

Find essential guidelines addressing the social, ethical, and legal aspects of genetic data storage and sharing.

Journals & Publications

View leading journals and research publications supporting transparent and standardized genetic reporting.

Frequently Asked Questions

Answers to Common Questions About the Human Variome Project

What is the Human Variome Project?

The Human Variome Project is a global initiative that promotes the responsible collection and sharing of genetic variation data to improve health outcomes worldwide.

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