Islamabad, 11 June 2026 (Kamran Raja):The United Nations Independent Expert on the human rights of persons with albinism, Muluka-Anne Miti-Drummond, has called on Pakistan to adopt a more comprehensive and inclusive approach to addressing the challenges faced by persons with albinism, warning that they remain largely overlooked in the country’s human rights and development efforts.
Speaking at the conclusion of her official visit to Pakistan, Miti-Drummond expressed concern that despite their distinct physical appearance, persons with albinism continue to be “invisible” in policies, programmes, and data collection systems designed to ensure that no one is left behind.
“Despite being highly visible because of their physical appearance, persons with albinism are too often invisible in policies, programmes and data that are intended to ensure that no one is left behind,” she said.
While acknowledging positive measures undertaken by Pakistan, including free education, healthcare services, and subsidised air and rail travel for persons with albinism, the Independent Expert noted that fragmented implementation across federal and provincial levels has resulted in inconsistent access to support services.
She highlighted the need for stronger coordination and harmonisation of disability rights legislation and policies related to education, healthcare, employment, and social protection to better address the unique needs of persons with albinism.
Miti-Drummond also stressed that widespread misunderstandings and misconceptions about albinism continue to contribute to discrimination, mischaracterisation, and inadequate responses to the intersecting human rights concerns faced by affected individuals.
A major concern identified during the visit was the absence of disaggregated data on albinism across sectors. According to the expert, the lack of reliable data makes it difficult to determine the prevalence of albinism in Pakistan, understand geographic distribution, and identify barriers to accessing essential services.
The Independent Expert further raised alarm about the impact of climate change on persons with albinism. With temperatures in some parts of Pakistan reaching up to 55°C, individuals with albinism face heightened risks of skin damage due to their sensitivity to ultraviolet (UV) radiation. She noted that despite these vulnerabilities, persons with albinism remain largely absent from climate adaptation and mitigation policies.
Miti-Drummond commended the Pakistan Albinism Society for its efforts in building awareness and support networks despite limited resources and capacity.
She called on the Government of Pakistan, development partners, and donors to strengthen support for persons with albinism through improved data collection, targeted policy interventions, and increased investment in programmes that address inequalities and promote inclusion.
The Independent Expert will present a comprehensive report on her findings and recommendations to the UN Human Rights Council in March 2027.