Substacks recommended by Stephen Haine | Stevies Dementing Diaries

Recommended by Stephen Haine

I write for caregivers about skills, beliefs, options, and tips for thriving on the road to healthier living... built in a community of like-minded, caring individuals who open their hearts and support others. Join us at Smarter Caring, Smarter Living.

Parkinson's for beginners

By Tony Parkinson

A mostly light-hearted newsletter about Parkinson's, with tips, complaints, moans, inspiration -- along with a smattering of honesty

The Dill Pickle

By Jennifer Sullivan

A naughty and honest newsletter about love, sex, and Parkinson’s disease.

Dementia's Daughter

By Sasha Neal

After 10+ years of sandwiched caregiving, reflections on dementia, ageing, navigating the UK's social care system, ageing, relationships, loss and grief, and of course dancing.

Hi, I just came across this post by the daughter of a dementia sufferer and thought it might interest those carers who are subscribing to mine. I would like to find more records like this and add them to my post, the aim being to build something which is NOT just about my moaning/groaning - but which gives space and recognition for those who (willingly or unwillingly) find themselves as carers.

- Stephen Haine

Falling Leaves

By Judi Bailey

My Personal Substack features information about dementia and caregivers of people with dementia from the perspective of a person with MCI, mild cognitive impairment, a condition much like dementia. I also write stories from my psychotherapy background.

Searching for the Words

My husband of 40 years is living and dying with FTD, a rare form of dementia. My name is Patricia Paddey. I search for God in the midst of our days, and through this Substack, process my learnings on this uninvited, unanticipated, and unwelcome journey.

Dementia Diaries

By Kimiye Kawashima-Triggs

Life in the trenches of caregiving for loves ones with dementia

I have been trying to find related substack posts to my own and came across this one - a useful honest description by a daughter with dementing parents.

- Stephen Haine