About
The Anishininiiw Nanandowi’kikendamowin program was established in 2021 to ensure that research is community-driven, participatory, and reflects the health and research priorities of the communities served by SLFNHA (Resolution 12-08).
In Resolution 12-08, Chiefs describe how SLFNHA requires sufficient health data and evidence to support and advocate for the delivery of appropriate, adequate, and proactive health care for communities.
Anishininiiw Nanandowi’kikendamowin is a community-directed research program that supports research initiatives based on community identified health priorities.
The following 5 research priority areas were established in June 2023, though will change over time as community needs and priorities change—feedback is always welcomed! These areas do not limit project with which SLFNHA can partner or support.
Our Team
Ariel Root
Program Manager
Amos Ajayi
Research Coordinator
For information, questions, or general inquiry,
please contact
research@slfnha.com
History
In 2013, the Anishinaabe Bimaadiziwin (AB) Research Program was established in response to Chiefs’ Resolutions 12-08 and through support of Resolution 13-04. Given the increased interest of First Nations communities, SLFNHA, and Sioux Lookout Meno Ya Win Health Centre (SLMHC) in research that could promote healthcare change and advocacy, this program was jointly funded and represented a partnership in regional research. The AB Research Program intended to promote both community-based participatory research and primary investigator/clinician research projects. However, the design of this program challenged community involvement and autonomy in project design.
The AB Research program was disbanded in 2020, and SLFNHA established the Anishininiiw Nanandowi’kikendamowin Program in 2021 to better support First Nations governance and autonomy over research activities within the region. The Anishininiiw Nanandowi’kikendamowin Program established the Research Advisory Committee in 2021 to support development of the program, help review proposed projects, and provide guidance to ongoing projects. This Committee is comprised of Tribal Council and community membership, though no specific research education or training is required for membership. If you are interested in more information about the Research Advisory Committee or becoming a member, please contact research@slnfha.com
Research Process: Working Together
The Anishininiiw Nanandowi’kikendamowin Program supports community-set health priorities and therefore respects and integrates community autonomy in research design, activities, and reporting. Because of this, we do not follow one specific process—instead, we follow individual community’s direction in research processes. The overall general process is as follows:
There are 3 main ways a project starts:
1. A community requests more information about a health topic, or asks a question that could be answered through research
2. Northern physicians, SLFNHA care providers, or other health care providers to community notice trends or patterns in health that they want to explore to improve health service delivery
3. External organizations (e.g. universities, health care centres, etc.) approach SLFNHA with research topics that may be of interest to the region.
SLFNHA works on a variety of research topics that span beyond the research priority areas. This increases our ability to support the research areas of interest to all communities served by SLFNHA, and those which may be relevant at particular times. Proposed projects are reviewed internally to discuss:
- Does this question/topic/project align with a research priority area?
- Is this question/topic/project of interest to the SLFNHA Board/Health Service Advisory Committee/Research Advisory Committee/ Leadership?
- Does this project align with or support a Chiefs Resolution?
Have a research idea for SLFNHA?
Connect with us: research@slfnha.com
All projects in which SLFNHA partners are co-created with partners including community. This means that community is invited to be involved in asking the research question, choosing appropriate methods (i.e. how data is collected), reviewing materials for community members (e.g. posters, interview questions, consent methods, etc.), analyzing data, and writing of any materials that come from data collection (e.g. reports, booklets, journal articles, briefing notes, etc.).
When a project is proposed by an external organization (e.g. university, health centre, private organization), SLFNHA requires community consent to participate. Documentation of consent can be any form the participating community decides. Some examples include (but are not limited to): a research agreement, terms of reference, letter, Band Council Resolution.
Research Data Guidelines: SLFNHA ensures that all projects with our partnership adhere to, at the very minimum, the OCAP® principles written by FNIGC. Broadly, these principles state that “First Nations have control over data collection processes, and that they own and control how this information can be used”. Therefore when:
- SLFNHA is a main partner in a research project, data ownership and sharing is part of research agreements, wherein all data collected from the Sioux Lookout area regarding the communities served by SLFNHA and its members will belong to SLFNHA
- SLFNHA supports one or more communities in a research project, SLFNHA will support communities to draft a letter or agreement regarding data ownership, usage, and sharing that describes that all research data belong to and will be stored by the community or be stewarded by SLFNHA if requested.
PLEASE NOTE: researchers should adhere to community request as to what sort of documentation is preferred and appropriate, as preferences will differ between community partners.
All projects are reviewed by the Research Review and Ethics Committee at Sioux Lookout Meno Ya Win Health Centre to ensure they are ethical and of value or benefit to communities, community members, and/or health care providers. Full committee membership includes physicians, nurses, SLFNHA staff, community members (of Sioux Lookout, tribal councils), privacy officer, pharmacy, legal and ethics representation, and an Elder.
Ethical review by the committee is intended to ensure that: research carried out minimizes the risk to participants, and that safeguards are identified for vulnerable populations; methods are sound; confidentiality is protected; participating communities/organizations have been engaged, consulted, and consent to collaboration; OCAP® principles and/or any other proposed Indigenous data governance principles are observed and upheld.
Below is the RREC application and meeting dates for 2025:
- April 29, 2025
- September 10, 2025
- Application Form
To consider when budgeting for research in community:
- Hiring a local community researcher
- Vehicle rental while in community
- Refreshments for participants or gatherings
- Participant incentives
- Gifts for community leadership
- Travel: flight or mileage
- Community accommodations
- Deliverables generated by research
- Translation of materials
To consider when offering surveys:
SLFNHA supports Indigenous data governance and therefore suggests avoiding cloud-based survey platforms, especially those whose storage is outside of Canada. While we explore different survey tool options that meet these needs, SLFNHA continues to use Microsoft Forms, whereby survey data collected remains secured on the SLFNHA server.
Please be advised that crowdsourcing data using surveys is often ineffective in the SLFNHA region. Researchers should be prepared to visit communities with paper surveys and complete on a 1:1 basis. A translator is often required.
To consider when offering interviews or focus groups:
Because of language and culture, all interview and focus groups materials must be co-created with SLFNHA staff at the very least, if not with community directly. Co-creation of materials will help ensure that questions asked will resonate with both researchers and participants. When co-creation is not possible, piloting materials is essential. This means testing the interview or focus group questions with the population before full operation.
Project findings must be shared with community in their preferred format. Various deliverables can be generated from one project, but community must be involved in and aware of what is generated. Community should be involved in authorship of resulting reports, articles, or other publications. Sharing an abstract of a journal article or report is insufficient. Findings are to be share with leadership AND participants in a meaningful way.
Ongoing Projects
SLFNHA is currently engaged in the following projects.
For general inquires, please contact research@slfnha.com
About: Oral Health
Keywords: Cavity prevention; silver diamine fluoride; children’s oral health
Aim: To determine if Silver Diamine Fluoride treatments help prevent early childhood tooth caries (cavities in baby teeth), reducing the number of dental surgeries under general anesthesia required.
Partners: University of Toronto (Dr. Herenia Lawrence, D.D.S., M.Sc., Ph.D.)
For more information contact: ariel.root@slfnha.com; janet.gordon@slfnha.com; herenia.lawrence@dentistry.utoronto.ca
About: Oral Health
Keywords: Children’s oral health; cavity prevention; public health; general anesthesia
Partners: University of Toronto (Dr. J Kamila Sihuay Torres, DDS, MSc, PhD Candidate)
For more information contact: ariel.root@slfnha.com; Kimberly.lawson@slfnha.com; kamila.sihuay.torres@mail.utoronto.ca
About: Oral Health
Keywords: Program development; evaluation framework; culturally safe care
Partners: University of Toronto (Dr. Fabio Arriola-Pacheco, DDS, MSc, PhD Candidate)
For more information contact: ariel.root@slfnha.com; Kimberly.lawson@slfnha.com; f.arriola@mail.utoronto.ca
About: COVID-19
Keywords: COVID-19; experiences; impact on health; community health
Partners: Lakehead University (Dr. Anna Koné, PhD, MSc, B-Eng); Athabasca University (Lana Ray, PhD, MPH); Waasegiizhig Nanaandawe’iyewigamig HAC; Matawa First Nations
For more information contact: ariel.root@slfnha.com; akonepe@lakeheadu.ca
About: Diabetes
Keywords: Community-based diabetes care; models of care; community design
Aim: Building a community-focused and co-designed approach to diabetes care that amplifies community voices.
Partners: University of Toronto, University Health Network, Canadian Institutes of Health Research
For more information please view the Diabetes Connections Brochure & Poster.
About: Suboxone & Pharmacy
Keywords: Community-based programming; harm reduction; quality improvement; interagency collaboration
Aim: Explore the operational practices of community-based suboxone programs, and understand the workflow between these programs and pharmacies that remote dispense suboxone
Partners: Sioux Lookout Local Education Group (Dr Ruben Hummelen, MD, PhD, MSc) For more information contact: ariel.root@slfnha.com; ruben.hummelen@slfnha.com
About: Colorectal Cancer Screening
Keywords: Cancer prevention; communication materials; health promotion
Aim: To collaboratively develop culturally safe and implementable communication strategies and materials for cancer screening
Partners: University of Toronto; Sunnybrook Research Institute (Dr. Jill Tinmouth, MD, PhD,
For more information contact: pearl.mamakwa@slfnha.com; jill.tinmouth@sunnybrook.ca
About: Colorectal Cancer Screening
Keywords: Cancer prevention; improve access to care; improve screening
Partners: Ontario Health
For more information contact: janet.gordon@slfnha.com; terri.farrell@slfnha.com; ariel.root@slfnha.com
About: Virtual Care
Keywords: patient experience; virtual care; access to healthcare; remote healthcare
Aim: Determine patient perspectives on use of virtual care
Partners: Lakehead University (Dr. Darrel Manitowabi, PhD), University of the Arctic (Mia Emilie Andresen Reinen, MD-PhD Student)
For more information contact: ariel.root@slfnha.com
Key Messages
- Public health service delivery to communities has historically failed to meet health needs, in part due to ambiguous service delivery and inadequate legislation.
- Federal and provincial legislation has long oppressed First Nations by either limiting health services First Nations people can access, or disregarding First Nation developed, governed, and implemented systems.
- Health laws, practices, and protocols have existed at the community-level, and must be reclaimed and recognized in current legislation, as outlined in Section 35(1) of the Constitution Act, 1982 and article 3 of the United Nations Declaration on the Rights of Indigenous Peoples.
- Public health re-organization for First Nations must include true Nation-to-Nation relationships, and recognize First Nations rights and authorities.
This paper summarized the number of type 2 diabetes diagnoses among First Nations women in northwest Ontario who previously had a gestational diabetes (diabetes in pregnancy) diagnosis. This paper is based on hospital records collected between January 1, 2010 to December 31, 2017 at the Sioux Lookout Meno Ya Win Health Centre. Some of their findings included that:
- 2 years after birth, 18% of women who had gestational diabetes developed type 2 diabetes
- 6 years after birth, 39% of women who had gestational diabetes developed type 2 diabetes
In conclusion, women who experience gestational diabetes are at higher risk for developing type 2 diabetes later in life. Community-based resources, food security, and social programming may help lower the rates of diabetes during pregnancy