Children with sickle cell anemia, the most common and severe form of sickle cell disease (SCD), who undergo stem cell transplant experience better long-term cognitive function after a decade than those given standard treatments like hydroxyurea or blood transfusions, according to a 10-year follow-up study. Transplant recipients also…
Discussion
Sometimes a childhood memory will return and leave me stunned. Last week, I found myself thinking about a medication I had taken every day for the first 11 years of my life: prednisolone. A doctor had prescribed it when I was about 1 year old, and I continued taking it…
Discussion
Brothers Cameron, Cayden, and Carmani Boozer have partnered with NMDP to encourage more young adults to join its blood stem cell donor registry and help people with sickle cell disease (SCD), blood cancers, and other serious blood disorders access potentially curative transplants. NMDP, formerly known as the National…
Discussion
I wasn’t supposed to be writing my next column yet. In fact, I specifically requested that this piece be published on June 19, World Sickle Cell Day. For me, the day is more than an awareness campaign. It is a time to celebrate the resilience, strength, and courage of millions…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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