{"id":3140,"date":"2022-03-31T14:53:34","date_gmt":"2022-03-31T14:53:34","guid":{"rendered":"http:\/\/www.orphadata.com\/faq\/"},"modified":"2025-08-01T16:06:36","modified_gmt":"2025-08-01T16:06:36","slug":"faq","status":"publish","type":"page","link":"https:\/\/sciences.orphadata.com\/faq\/","title":{"rendered":"faq"},"content":{"rendered":"
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\n \n \n What can I use the data for ?<\/span>\n
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\n \n \n Use of Orphadata Science datasets<\/span>\n
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Users may download the datasets made available on\n www.orphadata.com<\/a> in the\n Orphadata Science<\/a> section and use them as they wish (including use in other information systems) according to the\n Commons Attribution 4.0 International<\/a> (CC BY 4.0) licence that we have decided to apply to Orphadata Science datasets and APIs. This means that you are free to copy, distribute, display and make commercial use\n of this data in all legislations, provided you give us credit (citation guidelines below).<\/p>\n

You must indicate if you have made changes to the data. This can be done so in a reasonable manner, but not in any way that suggests that Orphanet endorses you or your use.<\/p>\n

You may not apply legal terms or technological measures that legally restrict others from doing anything the licence permits <\/span>(\n please consult the terms of <\/strong>\n licence<\/strong><\/a>\n <\/strong><\/a>for more information<\/strong>).<\/p>\n

When this licence is applied, it is stated clearly on the page giving access to the dataset and in the dataset itself.<\/p>\n

If you have any doubts on the use you wish to make of this data, please \n contact us.<\/a>\n <\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n

\n \n \n How to quote Orphadata Science<\/span>\n
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The appropriate form when quoting Orphadata Science is:<\/p>\n

Orphadata Science: Free access data from Orphanet. \u00a9 INSERM 1999. Available on\n https:\/\/sciences.orphadata.com\/<\/a>. Data version [Date of data version].<\/p>\n

Use of our logos (Orphanet, Orphadata, Orphadata Science, Orphadata Products, ORDO, HOOM, ORPHAcodes etc) is subject to our prior approval. Please use the\n contact form<\/a> to ask.<\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n

\n \n \n What datasets and ontologies do you offer?<\/span>\n
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We describe Orphadata Products data and services in a series of\n documents<\/a>.<\/p>\n

These documents also include\n annotated samples of the data<\/a>, and\n schemas when applicable<\/a>.<\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n

\n \n \n What is an XML file? How do I use it?<\/span>\n
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If you are unfamiliar with this format, you are probably not at ease with parsing and processing XML. Extensible Markup Language (XML) is a markup language that defines a set of rules for encoding documents in a format that\n is both human-readable and machine-readable. See Wikipedia for further information. It is also possible to use the data in a simple way. There is plenty of software able to open it. For instance, if you are an Excel user,\n it is very easy: just download the file you are interested in (right-click the link and download it). Once it is downloaded, just open it with a recent version of Excel (2003 or later). Excel will transform the XML into a\n Excel spreadsheet. Then you can save it in any other format convenient for you (xls, cvs, txt etc.). Mac users should be aware that Office on Mac OS version may have some difficulties managing XML in general.<\/p>\n

Some extensions for browsers (if locally installed) let you to display XML by opening the file in a new tab\/window. We would advise\n Pretty XML<\/a> or XML Viewer Plus for\n Firefox <\/a>or\n Google Chrome<\/a>\n <\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n

\n \n \n I found data on the Orphanet website which are not in Orphadata. Is something wrong here?<\/span>\n
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The Orphanet website has a weekly update cycle. Orphadata Science has a twice-yearly update cycle (July and December) and distributes datasets that are an extraction of the data stored in Orphanet, which is also accessible\n at www.orpha.net for consultation purposes only. As a result you may notice differences between data consulted on the Orphanet website and in Orphadata Science. <\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n

\n \n \n I would like a different format, or a different dataset. Is it possible?<\/span>\n
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This is a service offered through Orphadata Products, please <\/span>\n contact us<\/a>.<\/span><\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n

\n \n \n Can we contact you for a partnership ?<\/span>\n
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We are open to exploring partnerships. You can contact us using our\n contact form<\/a>.<\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n

\n \n \n Instead of using XML files I would like to access an API. Do you have one ?<\/span>\n
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This is a service offered through Orphadata Products, please \n contact us<\/a>.<\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n

\n \n \n Is it possible to access an older version of the files than those currently available ?<\/span>\n
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Please ask us using our \n contact form<\/a>.<\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n

\n \n \n Legal Issues<\/span>\n
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You can find additional information in our\n legal notice<\/a>.<\/p>\n

If you have any other questions, please\n contact us<\/a>.<\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n

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What can I use the data for ? Use of Orphadata Science datasets Users may download the datasets made available on www.orphadata.com in the Orphadata Science section and use them as they wish (including use in other information systems) according to the Commons Attribution 4.0 International (CC BY 4.0) licence that we have decided to […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"page-templates\/full-width-page.php","meta":{"footnotes":""},"class_list":["post-3140","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/sciences.orphadata.com\/wp-json\/wp\/v2\/pages\/3140","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/sciences.orphadata.com\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/sciences.orphadata.com\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/sciences.orphadata.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/sciences.orphadata.com\/wp-json\/wp\/v2\/comments?post=3140"}],"version-history":[{"count":20,"href":"https:\/\/sciences.orphadata.com\/wp-json\/wp\/v2\/pages\/3140\/revisions"}],"predecessor-version":[{"id":15113,"href":"https:\/\/sciences.orphadata.com\/wp-json\/wp\/v2\/pages\/3140\/revisions\/15113"}],"wp:attachment":[{"href":"https:\/\/sciences.orphadata.com\/wp-json\/wp\/v2\/media?parent=3140"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}