Subscribe
Sign in
Home
Notes
Archive
About
I Went to See My Consultant and He told me I was old!
Should age be a factor in helping people?
Dec 4, 2025
•
Strong and Rare
4
1
Pins and Needles and a Little bit of Treacle
What a recipe
Oct 3, 2025
•
Strong and Rare
1
3
How Does Your Garden Grow!
mine doesn't much!
Sep 10, 2025
•
Strong and Rare
3
1
Not feeling well when not feeling well.
i.e. having a sickness on top of your chronic illness
Sep 8, 2025
•
Strong and Rare
3
1
It's Been A While, I thought I'd tell you about my holiday
A Trip to Weymouth Uk 2025
Aug 27, 2025
•
Strong and Rare
1
2
1
I Want To Walk Again
I want to be the person I was before I got sick
Jan 22, 2025
•
Strong and Rare
2
The Hug Nobody Wants
A lot of people with chronic illnesses have chest spasms.
Dec 13, 2024
•
Strong and Rare
3
1
Latest
Top
Discussions
Clothing When You Are Sick
What to wear today??
Nov 29, 2024
•
Strong and Rare
3
Feeling sick when you are Chronically Ill
Can it get any worse
Nov 21, 2024
•
Strong and Rare
2
1
1
Facing The Future
There is nothing that can be done, just a wait to get worse
Nov 5, 2024
•
Strong and Rare
4
2
Is it Neglect?
Or a sign of the times?
Sep 30, 2024
•
Strong and Rare
4
1
How the scIG is going!
The good, the bad and the yucky
Sep 25, 2024
•
Strong and Rare
2
3
Misunderstood
Am I talking rubbish?
Sep 17, 2024
•
Strong and Rare
5
2
I Had a Dream, well My Daughter did
And I could walk!
Sep 11, 2024
•
Strong and Rare
3
See all
Anne’s Substack
Here I plan to write my story about my journey with Stiff Person Syndrome, what it's like living with a rare condition and how I survive day by day.
Subscribe
Recommendations
View all 16
Rachel Sambrooks: Bab on Books
Rachel Sambrooks
Badreads
Lauren Hough
SmallStack
Robin Taylor (he/him)
Sandra de Helen’s Finding Joy
Sandra de Helen
Ask Erin
Erin Khar
Anne’s Substack
Subscribe
About
Archive
Recommendations
Sitemap
This site requires JavaScript to run correctly. Please
turn on JavaScript
or unblock scripts