Making sense of ME/CFS
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On disability, ableism, Long Covid, and opportunities for social change
An Imani Barbarin interview, and a little Cory Doctorow
Dec 21, 2025
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K. Johnstone
13
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Medical gaslighting erases us from the world
I've put together a new video, “Sorry I Ghosted You - A tale of medical gaslighting,” exploring how doctors' dismissal of serious illness can cause a…
Dec 17, 2025
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K. Johnstone
18
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Do HEPA air purifiers really remove 99.95% of dangerous particles from the air?
The 99.95% claim is technically true, but misleading. HEPA air purifiers are good! But not that good.
Oct 7, 2025
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K. Johnstone
8
Measuring indoor air quality with a carbon dioxide monitor
I got an Aranet, and learned that the air quality in my apartment is really, really bad!
Oct 4, 2025
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K. Johnstone
8
7
How can we talk about clean air in 2026?
Paradigm shifts are hard.
Sep 30, 2025
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K. Johnstone
7
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The doctors are not OK.
Shame, medical training, gaslighting, and cycles of abuse.
Jun 3, 2025
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K. Johnstone
14
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MCAS: A tale of two consensuses
This post is a little bit tongue-in-cheek. But only a little bit!
May 15, 2025
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K. Johnstone
7
9
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Mast cell activation syndrome (MCAS): what it is, how to tell if you have it, and how to treat it (with or without a doctor's help)
MCAS is so medically neglected, it makes ME/CFS look mainstream. But there are ways to manage and treat it.
May 13, 2025
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K. Johnstone
7
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Making sense of ME/CFS
Exploring ME/CFS and related illnesses. I'm a non-scientist who sometimes writes about science, so take what I say with a dose of caution.
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