Maranathae's Minutes

Help

maranathae — Tue, 07 Aug 2012 05:34:03 GMT

Carolyn!
I need your help! Tomorrow when you get this, can you message Joe-Nadine Shonefeld and Lynn gozzard on my Facebook and tell them they will be getting codes from Facebook on my behalf because I've been locked out of Facebook. I'd contact them myself but I left my fucking phone (potty mouth) in Illinois and my Skype has run out so I can't call them. I'll get Skype tomorrow so I should be able to call them tomorrow! I feel so freaking cut off from the world with no phone, Skype or Facebook! I'm going crazier than usual!
Love you and talk to you tomorrow hopefully!! Thank you!!!!
Love,
Me!

Posted via LiveJournal app for iPad.

Hello fellow Fibromytes!

maranathae — Wed, 30 May 2012 00:11:21 GMT

Hello to all in the Fibro community of LJ!
My name is Lisa ((aka NAT)) and my doctors have concluded that I have had fibro since birth. Juvenile fibro has different symptoms and I've always had intermittent chronic pain since as early as I remember! But it would be good for a day or two then hurt a lot.
7 years ago this July my life was changed forever, I severely broke my hand, it was healing well, when the cast came off my hand was weak but I thought I'd make a perfect recovery, little did I know there was an insidious monster lurking called Fibromyalgia, within 6 months after the cast was off, I still had pain beyond belief.
I went to many doctors and they would poke or prod, one told me I was a fat (120lbs) midget, that was memorable, after a few long years I had my diagnosis. At the time I was working and I pushed myself to do my very best for my clients but I was really digging myself in a whole.
I have been on long term disability and not working. My work was my life and I miss it very much!!

I also have many other medical issues and love to meet and share war stories and hope!

My other conditions
Hypothyroidism
Addison's disease
Hypogonadism
Hyponaltremia
Growth deficiency
depression
Sleep issues
Trigeminal neuralgia
hypothalamic disregulation syndrome
Visually impaired
High functioning Autistic.

Thanks for having this group and I really hope in time we can be friends!
NO DAY BUT TODAY
NAT

Posted via LiveJournal app for iPad.

maranathae — Sun, 27 May 2012 17:19:52 GMT

Yesterday had too much in it. Even last night on the way home as I'm doubled up in pain in the backseat, my parents asked me what's wrong. They don't generally see me without my smile veneered on, pretending everything is ok. I'm paying for it today. Took my max dose of sleep meds last night so I slept fairly well. Just relaxing watching shows today. My apartment is a mess but it'll have to wait til another day.
Peace, love and lollipops
NAT

Posted via LiveJournal app for iPad.

maranathae — Fri, 25 May 2012 21:43:27 GMT

here is me making a fool out of myself by singing LAdy Gaga's song "hair". it was fun but my kitchen table looks like a hairball still. http://www.youtube.com/watch?v=Dm37KmcYcik
One of my greatest wishes is to meet Lady Gaga.
One of my greatest fears is when I pee my pants while meeting Lady Gaga.

NO DAY BUT TODAY!
NAT

Hello world!

maranathae — Fri, 25 May 2012 19:03:08 GMT

Ok ok holy crap! I haven't written in so long so I'll try to give a bit of an update:

-since I broke my hand (it's a few posts back but it's really been about 6 years) I've developed 2 chronic pain conditions, fibromyalgia and trigeminal neuralgia
-I had to quit working, a dull ache in my chest that never goes away, I miss my work family!
-I moved back to my hometown in a little batchelors flat that's 2 floors above my aunt and a few blocks from my parents
-I continue to go to the magic foundation conventions in Chicago, IL
-I have 2 furbabies of the feline persuasion, SMRT (she's so stupid she needs to buy a vowel) and Tazzy

Anyone with any questions, just ask!

NO DAY BUT TODAY!
Lisa aka NAT

Posted via LiveJournal app for iPad.

maranathae — Fri, 25 May 2012 17:23:40 GMT

So here's the deal - we all get curious of what each other looks like, but have you ever wondered what say... the contents of my bookcase, dish cabinets, or wall unit? What my cellphone looks like? The decorations on my walls? Then ask! I've leave this open for a few days, and for those brave enough to ask, I'll take a photo or three, and post them in my next entry. Want to know how full my fridge is? What's in my bedroom closet? The gardens around my building? The ducks in the park? My favourite stores in the mall?

Anything at all!

You get the drift. So ask away, and then repost in your own journal, so we can all be nosy too!!

I am so sorry!

maranathae — Wed, 05 Mar 2008 05:18:18 GMT

Hi everyone!

I have been away for a long long long time and I hope everyone will forgive me!

I hope to post more often.

I know I know don't hold your breath! I'll try though!

I just got back from earlier this month in Florida and it was lots of fun!

I went to a pituitary convention run by the M.A.G.I.C. foundation, it was an adult convention so there were only adults with pituitary problems.

I hope to post more but can't at the moment as it is late late late here!

I hope to post more often from now on, even if it is just once a month.

no day but today!

NAT!

here

Technorati Tags: writing,apologies

is a cool pic of the castle in Disney World!

NAT

back from the dead?

maranathae — Sat, 28 Jul 2007 04:47:21 GMT

hello all!!!
I just wanted to send a quick note that I have not fallen off the face of the planet!! Good news?

I broke my hand a week ago and typing with my left hand is just not-so-fun!! I am right handed of course and so had to break my right hand!! GRR!!

Anyway I am reading posts and such but have not responded to any because it takes me an incredibly long time to type!!! And I thought I was slow before!!!

my cast comes off on AUGUST 16 OR 17 HOPEFULLY!!!

NO DAY BUT TODAY!
Peace, Love and Lollipops!
NAT

My Vacation sucked!!

maranathae — Mon, 16 Jul 2007 04:31:12 GMT

Anyone who has not read the previous post should do so as it will explain why my vacation started (and continued) on such a crappy note.

So I am camping. I love camping! I have gone camping for a week every summer with 2 men with disabilities for the past 7 years, but I always go with another assistant named Renelle and she is on mat leave this summer so another assistant named Nancy is going to come.

Discription of Nancy ( I will try to be as subjective as I can!!)
- she is very tall and skinny ( and she likes to point out how short and "cute" I am)
- she is very excentric ( she has a snake and breeds mice)
- she is a violinist and is a little patronizing when you are not
- she is a really big health nut and comeon! We are camping!!!
- she is a really bad bad bad driver and gets easily distracted while driving.

So I am not going to give a blow-by-blow or day by day analysis I will just tell you the shitty parts of my vacation!
- it rained at least part of every day 6 out of 7 days
- Nancy was very unsettled and wanted to go go go when it was supposed to be a holiday
- she made the menu plan without anyone else and we had to eat organic this and she would not by brand name anything.
- because it was raining I was in pain flare
- it was cold and wet
- one of the men I was caring for was very demanding with myself and the other gentleman there

Things that were good about my vacation
- We went and visited my mom and Bill (her fiance) for supper
- My friend Brian came for lunch
- we came home!!
- I learned turtles breathe out of their asshole when they are hibernating

I am so glad to be home. I won't be camping next year unless Renelle is. I have a whole new appreciation for that woman.

Thats all I got at this hour peoples/
NO DAY BUT TODAY!
Peace Love and Lollipops!
NAT

I have returned!

maranathae — Sat, 14 Jul 2007 03:24:09 GMT

Hello all!!
I am not going to post much tonight but I wanted to let everyone know I have returned alive from my camping trip.
It was very wet, it rained 6 out of the 7 days that we were tenting it!! It drizzled!! When it rains my pain level goes into flare and it becomes really unbearable!!!
I promise I will write more in the next few days but for tonight this is all I can do.
I hope everyone is well and I will enjoy reading everyones posts!

NO DAY BUT TODAY!
Peace, Love and Lollipops!
NAT

Going away!

maranathae — Thu, 05 Jul 2007 05:16:15 GMT

So I will be away from tomorrow until next Thurday July 12th! I am going camping with some people from work! It should be good!! I will post and catch up on reading posts when I get back!!!
Have a great week everyone!!
NO DAY BUT TODAY!!
Peace, Love and Lollipops!
NAT

WTF? it's my opinion?

maranathae — Wed, 04 Jul 2007 01:30:55 GMT

Hi everyone,
I just had a conversation with someone through MSN messenger and it has upset me so I need to talk about it, please respond if you have similiar issues or have helpful tips on how to deal.
He asked me if I was drinking tonight (I guess the reason being that it is a long weekend here in Canada) and I said no, i don't drink. He then told me all the alcohol he had at his house and the conversation was all centered around alcohol consumption and was pretty much one sided, him talking about it and me saying "I see" "uhhuh" and various patitudes. Again I said I do not drink and he just kept saying things like, it's your opinion and such.
I told him I don't drink because I am on too many meds to safely consume alcohol and again got "it's your opinion".
What is my opinion? WTF?
I am angry because I would maybe like to go out and party and maybe not have to be so damn careful/catious all the time and I guess he just reminded me I may be in a young body (29) but i am really so old!!! I have fun, don't get me wrong! There are days lately where I would really like to be "normal", not be in pain or having to administer meds to myself all day. I just feel like I am missing out some days, that my life has been one uphill battle! I can't wait to get to the downslope!! LOL!!
What do you think?

Asexuality

maranathae — Tue, 03 Jul 2007 20:57:20 GMT

This post is about my asexuality, for more info abnbout asexuality go here! http://www.asexuality.org/home/index.php?option=com_content&task=section&id=6&Itemid=28 which is the FAQ for the Asexual Visibility and Education Network. If you find asexuality wrong or stupid please do not read under the cut and do not leave rude messages here, they are not wanted or appreciated!

Hi y'all!
I had a friend who is training to be a priest and he knew I was asexual and he seemed to be OK with it. Until last April, he accosted me for my "lifestyle" even though he has the same one, a celebate one! He said some really hurtful things like I was "a crime against God" and that I was "denying my female nature" whatever that means. I almost turned away from the church because of him until I talked to a wonderful nun who indead said I was not a crime against God. Now my "friend" is not willing to talk to me and has sent me some nasty emails.

So he did not talk to me for 3 months and out of nowhere he emailed me "Hi" just out of the blue. WTF? This guy ripped my heart out and feed it to me with a rusty spoon and then just comes back saying "hi"

Si I emailed him "Is there something that I can do for you?" I didn't know what else to say I was so upset that I was finally getting ok with being me and that I was not a bad person for being asexual when he randomly pops back in to my life.

He wrote back that he was just wondering if I would respond or ignore him. Did he want me to ignore him so he could validate to himself and others that I was a horrible person? Who plays these kinds of games anyway?
I wrote him something to the effect that I was not wanting to play games and what the hell was his alterior motive. that I was not interested in playing games with him. I wrote it of course in much nicer terms so that he could not validate his opinion that I was Cruella De Ville!

I am just so confused about this whole thing and I don;t know what he is thinking! I DO know that I will not bend!! I AM a good person even if my sexuality is asexual! If he thinks he can "save" or "convert" me he is sadly mistaken. In my opinion sexuality is not a choice, whether you are asexual, heterosexual, homosexual, bisexual, polyamourous, transgendered, two spirited, or any of the other wonderful ways God has made us into a rainbow of humanity. Itis in our differences that I see so much beauty in the world!!!

I think he is a lonely person, and I feel bad because I think I was the one friend who supported him in his choice to become a priest, I just think he needs more experience and to get off his moral/pious high-horse now and then and live in the real world!

NO DAY BUT TODAY!
Peace, Love and Lollipops!
NAT

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uh wow hi again everyone!

maranathae — Tue, 03 Jul 2007 20:31:40 GMT

yeah sorry all that it has been so long since I posted! there has been a fair bit of drama and tension going on and I really felt that it would be a hard thing to write it down until I calmed a bit. I think this post will just be for the random, non upseting parts of my week.
Random #1
First of all today I went and got my hair cut and it feels and looks a lot better than it did, so yay for personal appearance! For my new friends that don;t know me personally in the flesh, I don't usually care what I look like or am wearing as long as it and I am clean and it is modest clothing. I also want to point out I don't really care what other people look like or are wearing as long as they are a good person!
Random #2
I went swimming yesterday and it was great fun!! I went with 2 of the guy assistants from where Iwork and we had a blast! It is very relaxing for me and I enjoy the weightlessness of being in water, i also feel it helps my chronic pain!
Random #3
This was Canada Day weekend so I dragged myself out of the house (I have a horendous cold!!) and down to the park for some fresh air and frolicking! I supported the local drama group I belong to and was in a play that they put on at the park. Well I was sat on by one of the characters in the play (called Aspiring Francine) and it was very fun. there were some really mean teenage boys down in the park at the time of the play and they were being so rude! I was so mad!! where did the respect for elders or even fellow human beings go in our youth?
Well one of the actresses centered them out and got them back!! it was a kindof audience participation play and she centered them out in front of everyone!! HA! it was sweet sweet victory!!! Chalk one up to the good guys!!

Well that is all I got for randomness posts! I will post the other topics today too! I just feel they need a separate space!
NO DAY BUT TODAY!
Peace, Love and Lollipops!
NAT

but you don't look sick

maranathae — Thu, 28 Jun 2007 16:48:22 GMT

So today is international invite a friend day at www.butyoudontlooksick.com it is a beautiful site for people who have invisible illnesses and don't look sick! It is a really great community for those with illnesses and the people that care for them. They are also on facebook as a group! This group is amazing and I want everyone to go and look up the spoon theory. here is the direct link to the spoon theory http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf It's brilliant! Have a good day!
NO DAY BUT TODAY!
Peace love and Lollipops!
NAT

Spoons, Spoons, Spoons.... Find out what they are all about!
(and find out a little bit about me too!)

I AM

maranathae — Wed, 27 Jun 2007 04:26:05 GMT

I got this from someone and liked it so I am passing it on! it is called I AM....

I am the guy who came out to the entire school in his senior speech and got a standing ovation for his courage.

I am the girl who kisses her girlfriend on the sidewalk and laughs at those who glare.

We are the couple who planned and studied and got a damn good lawyer and BEAT the state that wanted to take our child away.

We are the ones who took martial arts classes and carry pepper spray and are just too dangerous to gay bash.

I am the transgender person who uses the bathroom that suits me, and demands that any complaining staff explain their complaint to my face in front of the entire restaurant--and shares with my other trans friends which restaurants don't raise a stink.

I am the mother who told her lesbian daughter to invite her girlfriend over for dinner.

I am the father who punished his son for calling you a fag.

I am the preacher who told my congregation that love, not hate, is the definition of a true follower of God.

I am the girl who did not learn the meaning of "homosexual" until high school but never thought to question why two men might be kissing.

I am the woman who argues (quite loudly and vehemently) with the bigots who insist that you do not have the right to marry or raise children.

We are the high school class who agrees, unanimously, along with our teacher, that love should be all that matters.

If you agree, repost this. Do it. You don't have to be afraid. You can handle it. You're stronger than you think.

I am making a difference. Hate will not win.

NO DAY BUT TODAY!
Peace Love and Lollipops!
NAT

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days off are fun

maranathae — Wed, 27 Jun 2007 03:28:04 GMT

I had my usual day off from Monday noon (well actually it ended up being 2:30 pm because one of the ppl here was sick but that is ok!) A friend called me up and invited me to go with her and her adorable almost 6 month old girl, swimming at her mom-in-laws who also happens to be a coworker and friend as well. Then when I got back to the house I stay at for my days off, my landlady and very good friend had made too much food for her and her mom for supper so I scored there and didn't have to fend for myself! then it was time to come home and hide downstairs on the internet for a weekly chat group for ppl with pituitary problems (well they all have had or do have tumours but it is all the same pituitary functions!). I chatted with my friend Tara and reconnected with someone from the MAGIC foundation convention I went to in Las Vegas,NV in February, so that was fun.
Today
I went shopping bought 3 things but only one (facewash) was for me. I went swimming again with the same friend and her daughter, then had supper and headed home to watch an evironmental movie about why global warming is just a big funding swindle and not because of human CO2 production. Here is the link to watch the movie, it is quite interesting! http://www.jonhs.net/freemovies/great_global_warming_swindle.htm

I am not in anyway saying we don't have a part. Don't comment negatively unless you watch the whole movie! Then feel free to let the fur fly :)

NO DAY BUT TODAY!
Peace Love and Lollipops!
NAT

ripples in bed linens and death?

maranathae — Wed, 27 Jun 2007 02:44:10 GMT

hello all!
Here is a heavier post than my usual hebetudinous banter.....you have been warned! :) It's under the cut.

So I have been thinking about death a lot lately. I have no fear of death since one of my very best friends in childhood, Jeremy, passed away when I was 12 and he was 8. I am patiently waiting my turn to see him again and I lookfor signs of his reincarnation in this life. He is/was my cousin and we spent a lot of time together growing up because when all the other children in our family would run off to do things healthy children do, we would play together because we were the ones who couldn't keep up and would be made to feel like we were slowing down the group. We had a close friendship and would talk about much and would share secrets. I miss him and think of him very often. I have a hole in my soul that is missing my buddy! I love to think of him in the afterlife doing all the things he couldn't when we were younger. He visits me in dreams and leaves me (I am sure it is him) curious presents occasionally.
I digress....
So I have been thinking of death because my adrenal problems have reared their ugly head after being stable for so so long and although it has always had the potential to have life threatening complications, there is even more potential. So much so that my new doctor is making me carry around a letter detailing what has to be done IMMEDIATELY to preserve my life. Alot of Adrenal Insufficiency patients sit out in hospital waiting rooms for hours because doctors do not see the seriousness/fatality of a common cold or flu that could kill me/us! So now I have this kick ass note that says "hey listen do something about this! it is serious" well maybe not in so many words!

So I have been thinking about death and praying about it, not really for myself because I know I am going to be ok, I am very safe about taking all my meds and I am never stoic when I think I need to go to the hospital it is just down the street 500 metres is all. But I was praying for all the people that will die in this day, all the people affected by that death, the ripple effect is HUGE! It got me thinking about my OWN ripple and how I want to affect people. I don't need to tel you that ripples can be good or bad and I have my own fair share of bad ripples I need to smooth out. I wish it was as easy as smoothing out a rippled sheet while you are making the bed. I have far too many negative ripples that I have inflicted on myself as well, how do I begin to smooth out all the negativity and hate..yes hate. I have exrerienced and given in this life. Regret, revenge and hate need to go away like those ripples in that sheet. Particularly with my father who left us and is too human to describe, and with God because I still feel the sting of the loss of Jeremy daily. I miss them both.

I was watching the movie "the last Holiday" with Queen Latifah in which the plot of the movie is a quiet, keeps-to-herself woman who works very hard but enjoys nothing extra special in life finds out she has very little time left to live and what she does with that time. "It's not how you start but how you finish" is one of the lines I like very much in it. K I have to admit through the marvels of modern technology, I was watching the movie up to my neck in a giant, warm grapefruit smelling bubble bath and as I was "dancing" around to the music I thought to myself "oh yeah I am totally not ready to check out of this crazy game called life but if I go now, I go out smiling and clean too" LOL!

The reason I sign my posts "NO DAY BUT TODAY" is because it is so true for all of us, we can't (as much as we would sometimes like to!) live in the past (although we can visit) and the future is just not guarenteed for any of us. I made a promise to myself when Jeremy died, i pledged to live a good life for me and for all he has missed out on.....within reason! I am sorry if he wanted to bungie jump that is something he will have to do in the afterlife cause there ain't no fricken way! LOL!

so now that I have depressed everyone......
GO MAKE SOME GOOD RIPPLES PEOPLE!

NO DAY BUT TODAY!
Peace, Love and Lollipops!
NAT

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Welcome Nadine!

maranathae — Mon, 25 Jun 2007 21:23:10 GMT

Hey Y'All

I would just like to welcome my cousin who is more like a sister to me, Nadine, to LJ!! May you enjoy it here! I know I do!

NO DAY BUT TODAY!

Peace Love and Lollipops

NAT

June 24th 2007 was a day!

maranathae — Mon, 25 Jun 2007 02:54:48 GMT

Well today was a day that is over now!!! It was a busy busy busy day!
The assistant that I think is useless went on his day away and all I could think of was "yeah, go on your day off so i can continue to do everything but feel less frustrated!". I am sorry if my posts all seem to be centered on bitching about work but if I don't get it out I will explode and then there won't be anyone to clean it up!!!
The relief assistant that was supposed to be in at 1 did not arrive until 4 pm!! It was really not a big deal that I was on my own with all the core members! I enjoyed it!!! I was so worried that something had happened to him or his family! But they were just at a church picnic and forgot! NO BIGGIE!!!
I am in a medium amount of pain tonight. I took something for pain last night so I think I will rough it out as much as possible tonight. I hate taking more meds if it is not absolutely neccesary!
I am enjoying drawing a butterfly and another project. It is fun!
I am sorry if my posts are not very detailed or personal yet. I am just getting to know everyone and trying to find time and discipline to journal daily.

NO DAY BUT TODAY!
Peace Love and Lollipops!
NAT

ARTZES!

maranathae — Sun, 24 Jun 2007 15:05:40 GMT

Not much to post yet today! I was so glad that I could show a gift of my appreciation for Sidi and Z last night! I will be drawing more I think and I may even find my old sketch pencils ! I never throw any art supplies away because I am so wishy-washy and will switch from one artsy thing to another often. I don't know if it's because I get bored or because I get so passionate about one medium and then it's gone!
Oh well! I was glad to do some ARTZES as Z so exuberantly put it!
NO DAY BUT TODAY!
Peace Love and Lollipops!
NAT

a drawing gift to Sidi and Z!

maranathae — Sun, 24 Jun 2007 06:10:38 GMT

A drawing for my dear sister Sidi and her Imzadi Z! I hope you like it! Others who may look upon this, please do not judge it too harshly this is my 2nd drawing after not drawing for about 10 years. I am more of a painter type.
NO DAY BUT TODAY!
Peace Love and Lollipops!
NAT

http://i203.photobucket.com/albums/aa46/maranathae/CIMG3714.jpg

maranathae — Sun, 24 Jun 2007 00:26:31 GMT

hey everyone!
My friend who is doing a presentation, at an upcoming pituitary disorders convention I am going to, asked some people to write articles on the topic "An inspiration to Fight back" so here is mine, i hope you like it! The MAGIC Foundation is a foundation for families and people with pituitary disorders. www.magicfoundation.org

NO DAY BUT TODAY!
Peace Love and Lollipops!
NAT

My name is Lisa Gozzard and I am 29 years old. I was diagnosed with

SOD/ONH when I was 4. I have been a MAGIC member for almost a year and

it has really changed my life.

An inspiration to fight back......
What a loaded statement that brings up so many emotions.....the first

being Whoa! fight back? what do I have to fight back? I am non violent,

i don't believe in fighting!
But then as I thought and prayed about ....an inspiration to fight

back.

An inspiration...
MY MOM
She is such a blessing and has made me into such an independent

woman.Who never let me get away with anything even if I had different

needs from my siblings! She lugged a fasting, hypoglocemic child on a

2.5 hour bus ride to the children's Hospital in Toronto and then back

again with a cooler of breakable medication vails to add to what she

had to juggle! Every three months!!

MY FRIENDS
They all encourage me to do my best but understand that I can't always

do everything the same way they do. They do know I can do anything!!

They lift up my spirit when it's down. I have one really good friend

from Kindergarden and we still talk everyday!

MAGIC FOUNDATION
Everyone I met at my first convention in Las Vegas this February was

amazing!! I feel belonging in MAGIC, for the first time I am meeting

people who have similiar experiences!

Fight back!!....
FEAR
I fight fear, I do not let fear get in the way of trying something new,

something that I might fail or get hurt at. When you have adrenal

problems fear can keep you in your house and afraid to go out where

there might be germs or stress. I will not let fear rule me, I live my

life every day! I can sum it up with a quote from one of my favorite

movies "No day but today!"

BULLYING
Sadly, I was bullied when I was younger and occasionally even in

adulthood. I have become a much more assertive person because of it. I

will fight for justice and equality for myself and others.

SOME INFO ABOUT THE PICS
To my LJ friends! sorry I don't have the pics attached but the stories are still cute!

My Christening....
Me and my mom, Linda at my Christening. I was 1 1/2 years old and I

weighed 14 pounds. Growing up I gained 2 pounds for each year not on

GH. Once I started GH I grew and got a lot bigger. I was off of GH for

a year when I was 7 or 8 and I did not gain a pound or a millimetre!

My Grandpa and I...
I was about 6 or 7 in this pic. I was the apple of my Grandpa Herold's

eye! He spoiled me like crazy! Well what can you expect? I was pretty

darn cute!

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sleep what is that?

maranathae — Sat, 23 Jun 2007 14:53:47 GMT

I had such problems with LJ technical difficulties last night! (Well in all actuality it was MY technicallogical ineptitude but whatever) that I had a hard time sleeping last night because I got too frustrated with myself and riled up. I went to bed at 2am, tossed and turned then woke up at 5:32am, then 7am then 9am and I just got into a good sleep when my alarm went off at 9:40 that it was time to get up!! Grrrr!
Thanks to Sidi and Z for all your help last night! Sorry it took so long for this dunderhead to get it!!!
I will post more tonight!
NO DAY BUT TODAY!
Peace, Love and Lollipops!
NAT

Hello Again!!

maranathae — Sat, 23 Jun 2007 04:46:00 GMT

Ok everyone!! What a week! sorry I have not posted but now I will give you the run down on my very busy week!!
Tues June 19th 2007

I went into the city and went down into the market area. Now I can spend days in the market!! Lots of veggie and fruit stands to buy from and funky clothes and handicrafts and jewlery

. You can get Hennah (temporary tatoos) and different crafts there. It really is sensory overstimulation but I love it!!! So i met up with my friend Dave who is a poet for a breakfast of fresh fruit.

So I wandered around there for a while and then went off to meet my new endocrinologist Dr Silverman.

MY SPECIALIST APPOINTMENT!!!
O MY GOODNESS! I LOVE MY NEW ENDO!!! I have found a whole new breed of doctor...one who listens!!
We actually looked at my blood results and decided that my thyroid level is just worth monitoring not worth changing meds yet, my iron is actually within normal range again just worth monitoring and he feels my new multivit will be enough!
He is actually not sure he believes in adult GH therapy but I told him ho much better I feel on it and he said I might even convince HIM to get off the fence and hop onto the pro side! I like this man! He said "after all you have been an expert in this fight for a lot longer than I have been a doc in it" and he increased my dose which is what I was hoping for.
He was very knowledgeable about Adrenal Insufficiency and even gave me an emergency note for the next time I have an adrenal crisis so I don't have to fight with a doc when I feel like poo!
He applauded that I get my own lab results! He wrote it on the front page of my file with big letters so he would not forget!
The only negative experience was that the receptionist/nurse was uber partronizing! Oh well I am short and cute and I look young she can't help it! :)
I will be going to my own GP about my other issues that are cropping up so we shall see soon!

My Philosophy of TEAM care
- I call docs by their first name or nickname most of the time if they are willing (and most are!) I call my GP Dr Cindy or just Cindy
- they call me Lisa
- I get to participate in all decisions
- I get a copy of all of my own bloodwork results
- I prefer to speak in medical terms when at an appt. (I hate it when DRs use dumb-downed speech- although it is helpful when just diagnosed or learning) Drs are usually surprised when I lauch into a concern or thought and use their language!

Wednesday June 20th 2007
Ok majorly busy day!!! Grocery shopping at 8:30 am for 10 people, then putting them all away!!! OH JOY!!! I prepared part of the ingredients for our supper of homeaid Pizza then I had some free time in the afternoon and then I was off and running to prepare the musi for our Wednesday night Vespers (evening prayer) before supper. I came home to make supper and we had a guest who was very very angry because her husband was in the hospital. So I sat outside with her while I helped her to get calm. Then we had a birthday party to go to! Whew will this day ever end? All the gang is supposed to be going to a picnic at a cottage near by tomorrow, they are all very excited and I hope the weather co-operates!!!

Thursday June 21st 2007
Torrential downpour, drizzle, sun, downpour seems to be a theme for the weather today. Plans are cancelled, then back on, then cancelled all over again! I went out for lunch and had chicken fingers, mmm my first since becoming a meat eater again!! ( I was a vegetarian for 7 years and now I eat little amounts of meat) I walk back to the house from the office ( about 10 minute walk) and enjoy some quiet time of prayer before heading back to work, it was very good!! The other assistant is upset that the hamburger wa not unthawed to make spaghetti sauce, I suggest vegetarian but instead he puts shrinp in it! I am allergic so he leaves some plain sauce out for me, it is good! I can't imagine shrimp in my spaghetti and I am a little grossed out just thinking about it!!!! We have vespers at home for the first time in a long time, it is also good! :) I have to sleep at another house tonight so I head over there for the night.

todays posting deserves a whole post to itself!!!

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