Tyranny of Indistinguishability

The Tyranny of Indistinguishability, by Kassiane (Neurodivergent K blog).

‘Indistinguishability isn’t a moment … It is an unending job, and it gets more and more complex as you age. If there is anything I learned from How To Be A Real Person In 1000 Data Sheets, it’s that hiding is essential. Being noticed is the end of the world. Indistinguishability is tyrannical, because once you achieve it, it is the goal of every moment-to not be distinguished. That is no way to live a life. That actually isn’t a good goal at all. If the best prognosis you can possibly get is “will spend life hiding and exhausted”, you need to rethink your plans for that individual. Hiding is no way to live.’

Truly informed decisions

The DNA Age- Prenatal test puts Down Syndrome in hard focus (NY Times). What a wonderfully proactive group of parents!  These parents are concerned that people who receive news that their unborn baby has Down Syndrome, also only receive negative predictions from their doctor – and they are lobbying doctors to also provide their group’s contact details, so that these people can meet children with DS, see family life in action, and ask their questions, so that any choice they make is truly informed.

Given the amount of autism research money being channeled towards finding a cause- it concerns me that before too long, the autism community could be facing a similar situation.

Story of an Autistic Teacher

Story of an Autistic teacher: encouraging Aspies beyond their “natural limits”, by Captain Quirk (Autistic, Not Weird blog). A lovely personal account of how the author’s role model/mentor stretched him beyond his comfort zone, and gave him responsibilities- and how this trust encouraged him to work in fields that would usually be considered unusual for an Aspie. He has seen this stretching/responsibility/trust have a similar effect in the children he has mentored.