Brisbane City Council organises shared taxis at scheduled times for residents who find it difficult to get to their local shops. To be eligible for this service, you must be over 60, mobility impaired, or a Pensioner/Senior Card holder- and you may be accompanied by a carer or a child under your care. Costs $1-$3 each way, and covers many suburbs and shopping centres. Looks like a very helpful scheme- may be worth asking if similar opportunities are available in other cities.
Children’s books about tough stuff
So many parents turn to books to help explain some of the more difficult aspects of life to their children, so I’m always on the lookout for lists of books that tackle the tough subjects. This list contains books about divorce, potty training (this one has a lot of good reviews on Amazon), anxieties, death, being different (several books), bullying, bad behaviour, moving, cancer, etc.
Patient File Checklist
After two emergency trips to hospital this year, I’ve finally assembled a special folder for our younger daughter, Abi. This Patient File Checklist contains some good ideas of what to include in it, and I’ll add a few more below.
The latest reports between her doctors.
A current pathology request “wishlist” (ie tests that her doctors would like completed if opportune to do so).
Results from her last few tests (for comparison and trends, if necessary).
An annotated list of drugs (sedatives, anti-nausea etc) used with her previously, both those that were effective and those that caused unpleasant reactions/side-effects.
Prescriptions for medications (even something as simple as melatonin to help her sleep- I know what dosage to give her, but not what strength the mixture is).
A current list of the supplements she’s taking.
And I’m hoping that now I’ve assembled the folder, I won’t need to use it :).
Education of girls on the spectrum
Education of girls on the autism spectrum– webinar from the UK’s National Autistic Society. Quite a long webinar, but a very thorough overview about girls on the spectrum. Great as a one-stop overview for people new to how differently autism presents in females.
Autism and SN Guides Qld and beyond
One of the incredibly resourceful ladies I’ve had the privilege of “meeting” through Facebook has put together two very indepth resource guides that she is keen for people to share wherever they would be useful.
A Resource Guide & Ideas for Therapists, Teachers, Parents and Carers working with people with Special Needs- covers a multitude of topics, and is well worth checking out.
The Queensland Autism Parents Handbook is 101 pages and is a comprehensive guide to autism services, support, tips and ideas for Qld. The book is most relevant to Qld but is a valuable source of info wherever you live.
Explanation of Low Tone
What does low tone mean?, by Starfish Therapies. Great explanation!
Muscle tone is the resting state of your muscles. When a child has low muscle tone it means that they need to put a lot more energy into getting their muscles to turn on to do what they want them to do. I often try to explain this to parents by describing that feeling when you finally get to sink into the couch or your favorite arm chair and relax and then someone calls you from the other room and you have to rev up the energy to get up. Think about having to do that every time you move because that’s what it can be like for kiddos who have low tone.
When I talk about strength being a challenge for kids with low tone I am talking about not just their ability to generate enough force to move their arm or their leg, but also their endurance and their ability to switch their muscles on and off. These components all work together to produce movement.
Rules of courtesy
15 unspoken rules of courtesy that everyone should adhere to. A set of captioned photos, illustrating everyday courtesies that are sometimes sadly lacking. Examples include:
- When you borrow someone’s car, fill up the tank to say thank you;
- If you ask friends for help with housework, feed them;
- If you stay the night at someone’s house, make the bed or fold the blankets before you leave;
- When someone cooks for you, offer to help clean up the kitchen.
Simple description of SPD
Getting “used to it”- how SPD affects me, by The Dreamer (Totally Abnormal blog).
Since I read a lot of blog posts related to Sensory Processing Disorder (SPD), I have seen many people’s descriptions of what SPD is:
“The sensory sliders in my brain are all over the place.”
“My sensory cup is too big for some senses and too small for others.”
“Everything is multiplied for me.”
These are all good descriptions of SPD, but I wanted to think of a quick one. A simple one. One that would help people that had no prior knowledge of SPD know how oversensitivity feels.
I don’t get used to things.
Managing dysregulation
We have autism all wrong: The radical new approach we need to understand and treat it, an excerpt from “Uniquely Human: a different way of seeing autism” by Barry Prizant.
Instead of just managing behaviours, he suggests listening carefully, observing closely, and seeking to understand the child’s perspective and experience.
Usually the answer is that the person is experiencing some degree of emotional dysregulation. Our neurological systems help by filtering out excessive stimulation, telling us when we’re hungry or tired or when to protect ourselves from danger. People with autism, primarily due to underlying neurology (the way the brain’s wiring works), are unusually vulnerable to everyday emotional and physiological challenges. So they experience more feelings of discomfort, anxiety, and confusion than others. They also have more difficulty learning how to cope with these feelings and challenges.
To be clear: Difficulty staying well regulated emotionally and physiologically should be a core, defining feature of autism. Unfortunately professionals have long overlooked this, focusing on the resulting behaviors instead of the underlying causes.
Here is the important irony: Most of the behaviors commonly labeled “autistic behaviors” aren’t actually deficits at all. They’re strategies the person uses to feel better regulated emotionally.
Supporting competence
Supporting Competence: the parent’s journey (Profectum). This presentation features Ido Kedar, his mother Tracy Kedar, and Elaine Hall. Ido wrote a very insightful book called “Ido in Autismland”, which I have reviewed here, and Elaine is the author of “Now I see the moon”. For those who can’t access Ido’s book, this is a great summary/introduction to his story, and his passion to see parents, therapists and teachers presume competence in non-verbal Autistic people, and Tracy and Elaine tell similar stories.